We exist to improve the lives
of everyone affected by epilepsy

Council of Management - Register of interests

Epilepsy Action has a policy on Council member’s conflict of interest and a code of practice to provide guidance on managing real or potential conflicts of interest.

As part of the policy and practice, Epilepsy Action keeps a register of Council member’s interests which may be relevant to their role as a trustee. The purpose of the register is to publicly disclose any interests that trustees might have that might present a conflict with their role as a trustee.

It is a requirement of each Council member that they complete a declaration about their interests and subsequently keep their entry in the register up to date. The register is subject to a systematic annual review in any event.

It is the responsibility of each individual Council member to identify and disclose their potential or real interests.

Interests listed in the register are broadly classified as being either outside of the charity’s normal operation – ‘external interests’ – or inside the charity’s normal operation – ‘internal interests’.

 

Ena Bingham

External interests:
  • Employed as an epilepsy specialist nurse within the NHS working closely with Epilepsy Action’s Regional Services Manager in Northern Ireland

Internal interests:

  • Voluntary speaker at Epilepsy Action events.
  • Personal support provided to local Epilepsy Action groups in Northern Ireland.

John Bostock

External interests: 
  • Member of University Hospital North Staffs. hospital trust committee.
  • Vice chair of mid-Cheshire area health long term neurology committee.
  • Chair, Stoke-on-Trent parent partnership advisory services.
  • Adviser on youth services in Stoke-on-Trent.

Internal interests:

  • Chair, Epilepsy Action Stoke-on-Trent branch.
  • Epilepsy Action Accredited Volunteer 

Jayne Cage

External interests:
  • Member of the Royal Society of Chemistry.
  • Member of NASUWT trade union. 

Internal interests:

  • Member of Epilepsy Action Women’s Advisory panel.
  • Epilepsy Action Accredited Volunteer.

 

Richard Chapman 

External interests:
  • Full time paid employment with the Department for Environment, Food and Rural Affairs.
  • Membership of the Institute of Health Promotion and Education.
  • Membership of PCS trade union.
  • Holdings of shares in various listed companies as personal investments, none of which constitute significant holdings (i.e. more than 1% of the issued share capital) in any one company and none of which has to my knowledge any relationship with or interest in the work of Epilepsy Action.

Internal interests:

  • Director (unpaid) of Epilepsy UK and Epilepsy Action – both dormant companies and wholly owned by the British Epilepsy Association, (Epilepsy Action).

 

Susan Duncan

External interests:
  • None listed 

Internal interests:

  • Recipient (with three others) of an Epilepsy Action research grant (2009-2012). 

Jan Follett 

External interests:
  • A member of two other epilepsy charities. 

Internal interests:

  • None listed 

 

Mike Harnor 

External interests:
  • Elected governor, (until 2012), ‘Salford Royal NHS Foundation Trust’ (incorporating the ‘Greater Manchester Neurosciences Centre’, provider of specialist neuroscience services to Greater Manchester, east Cheshire and north west Derbyshire). Vice-Chair of the strategic direction sub-group.
  • Executive committee member and trustee, ‘Greater Manchester Neurological Alliance’ (GMNA)  (Chair 2005-8).
  • Representative member (alternating for GMNA), Greater Manchester Neuroscience Network Board. (GMNN is a sub-group of the Assoc. of Greater Manchester PCTs.)
  • Member, GMNNB appointed review group currently evaluating neuro-rehabilitation services (2009-?)
  • Accredited lay member, NHS (North West) Research Ethics Committees (National Patient Safety Agency -NRES).
  • ‘Commission on Human Medicines’, appointed lay member, advisory group on neurology and pain management 2005-current.
  • ‘MHRA ’lay members group’, 2007-current.
  • ‘NICE’ – appointed patient member, guideline development group for the epilepsies, 2009-2011.
  • Previous long standing academic staff establishment contract, Manchester Metropolitan University.
  • Son-in-law holds a clinical directorship with NHS Cumbria (pct)
  • Holdings of shares in the following companies as private investments, none of which constitute significant holdings (i.e. more than 1% of the issued share capital):
    • Astra Zeneca plc
    • Smith and Nephew plc
    • GlaxoSmithKline plc
    • Finsbury World Wide Pharmaceutical Trust plc 

Internal interests:

  • Director, Epilepsy UK and Epilepsy Action – registered companies (not trading) wholly owned by the British Epilepsy Association.
  • Director, BEA Trading, a registered company which donates all profits to British Epilepsy Association

Michele Harper 

External interests:
  • None listed.  

Internal interests:

  • Epilepsy Action Accredited Volunteer.
  • Member of Epilepsy Action West Midlands Forum 

 

June Massey 

External interests:
  • A professional interest in epilepsy and education.

Internal interests:

  • Epilepsy Action Accredited Volunteer 

 

Markus Reuber 

External interests:
  • Consultant in the NHS.
  • Active epilepsy researcher.
  • Member of the editorial board of the scientific journal ‘Epilepsy & Behaviour’.
  • Recipient of research funding and travel grants from the following pharmaceutical companies: UCB Pharma, Pfizer, Janssen-Cilag, GSK, Sanofi Aventis and Eisai.  

Internal interests:

  • Co-supervisor of an Epilepsy Action funded PhD student (based at the University of York).
  • Recent holder of an Epilepsy Action research grant. 

Beryl Sharlot 

External interests:
  • Member of local GP practice patient participation group.

Internal interests:

  • Epilepsy Action Accredited Volunteer.
  • Chair of the Epilepsy Action Warwick & District branch.
  • Chair/Treasurer of the Epilepsy Action West Midlands Forum.
  • Director (unpaid) of Epilepsy UK a dormant company wholly owned by the British Epilepsy Association.

Keith Skivington 

External interests:
  • Member of local community health council.
  • Member of Dyfed police force voluntary custody visitor.
  • Member of Plaid Cymru political party. 

Internal interests:

  • Epilepsy Action Accredited Volunteer.
  • Chair of the Epilepsy Action Llanelli branch. 

 

There are no comments yet. Be the first to comment...

Contact Author

CAPTCHA
This question is for testing whether you are a human visitor and to prevent automated spam submissions.