Epilepsy Services

Epilepsy Services Manager, Monica Cooper

Monica is responsible for the Epilepsy Services Department, which provides a range of epilepsy services to people with epilepsy or an interest in the condition. With a team of thirteen, the work of the department covers the following areas:Monica Cooper

Accredited Volunteers

  • We have 75 Accredited Volunteers in England, Wales and Northern Ireland.
  • They provide advice face-to-face and by phone.
  • They deliver presentations to local businesses, public sector organisations and charities.

Research

  • We commission research on identified research priorities.
  • We offer annual research bursaries and prizes.
  • We carry out surveys on current epilepsy issues.
  • Consultations
  • Every year we work to support organisations like the following:
  • The Disability Rights Commission
  • Department of Health
  • National Institute for Clinical Excellence

Sapphire Nurse Scheme

  • This provides UK hospitals and the community with grants to set up specialist nurse posts.
  • We have placed 70 paediatric (child) and adult epilepsy specialist nurses to date.
  • Sapphire Nurses deal with medical care, counselling, advice & information, training and audits.

Advice and Information Services:

  • Our free telephone and email advice & information service is staffed by trained advisors. (Telephone helpline service - 0808 800 5050 - UK only. Email helpline - helpline@epilepsy.org.uk)
  • We produce and stock a large range of booklets, fact sheets, books, videos and audiotapes for all age groups. Many of these can be ordered direct from the online shop on our website.
  • We offer a large, up-to-date source of epilepsy information on the website.

Education

  • We work to raise awareness of the educational needs of children with epilepsy.
  • We work with training providers in the UK education sector.
  • We liaise with officers within the Department for Education and other bodies involved in education.