What is forum4e?
It’s an online community for people with epilepsy and carers of people with epilepsy.
Who can join?
Anyone with epilepsy and carers of people with epilepsy. You just have to be 16 or over.
How much does it cost?
Nothing. It’s free.
Do I have to be a member of Epilepsy Action?
No, you just have to complete the Creating an account form for forum4e. However, you may want to become a paying member of Epilepsy Action anyway. You can get copies of our membership magazine Epilepsy Today, and various other benefits. Your subscription will support the charity’s vital work and keep forum4e going. Find out more.
How can I join?
It’s simple. Head over to the the forum4e website. Then click on 'Create a new account' and follow the instructions. You are not committing yourself to joining by going to this page. But we’d love it if you did.
What can I do on forum4e?
- Read other people’s ideas and thoughts.
- Post This means asking questions, responding to other messages, or offering general thoughts.
- Chat This means you can go into the Chat room and chat with other members. This is very regularly used and a great way of feeling part of the community.
- Blog This is like a personal diary. It’s a great place to let off steam.
- Private message if you want to contact someone privately.
What sort of subjects do people write about?
Anything and everything.
Obvious subject areas include medication, seizures, carers, benefits, driving and employment. There is also regular information from Epilepsy Action on its campaigns, research and fundraising.
What will I get out of it?
It’s a really friendly, supportive community. It’s a great source of information from people who know. It’s a way of feeling less isolated and better understood. And there are some truly dreadful jokes on there.
Is it moderated?
Yes. An online community officer checks in every weekday. There are terms and conditions which you agree to on joining. Also there is a clear set of behaviour guidelines for how we expect people to be with each other.
What if I get stuck with the technology?
Do not worry. Many a person who has hardly touched a computer before, has been delighted to find themselves managing fine on forum4e. And if you do have any problems, help is on hand. Often other members can help you out. Or you can ring the online community officer.
Do I have to use it regularly to keep up my membership for forum4e?
No, its completely up to you. Some people only visit for a specific question, others start that way and then get involved and stay for ever! And some people are just occasional visitors.
When should I join?
- Information for...
- Information on...
- Fundraise
- Donate
- Membership
- Campaigns
- Take epilepsy action campaign
- Automatic substitution of anti-epileptic drugs
- National commissioning of paediatric epilepsy surgery
- National Epilepsy Week
- Save our Sapphires, protecting all epilepsy specialist nurse posts
- Women's campaigns
- Epilepsy in England: time for change
- 'Epilepsy Aware' scheme for GP practices and pharmacies
- Campaign Supporters' Group
- Surveys
- News
- Research
- Our services
- Forum
- About us
Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Twitter: epilepsyadvice
- Txt msg: 0753 741 0044 info






