Blogs

National Service Framework for Long Term Conditions – Review

In 2005, the Department of Health launched the National Service Framework for Long Term Conditions. This publication set out a programme for ten years to provide the best care for people with long-term conditions.

Postal strike information (2 November 2009)

Epilepsy Action relies on the generosity of the public and businesses for around 90 per cent of its income. Without this support many of our essential services would not be possible.

National Voices: Online social care green paper poll

National Voices has set up an online poll to find out what people think about the UK government's new proposals to reform social care.

Changes in the driving regulations for a first epileptic seizure for UK drivers

If you're in the UK, and you have had a first, single, unprovoked, epileptic seizure, you may now be able to get your licence back:

Epilepsy Action is looking for young people between 13-19 and their parents (in the UK)

Epilepsy Action is looking for young people between 13-19 and their parents (in the UK) to be involved with a Question Time event at the House of Commons.

Background

The idea behind the event is for MPs to meet with young people (and parents) to discuss how to best support people with medical conditions, in our case epilepsy, at school. 

New Quality and Outcomes Framework indicator for epilepsy care in Great Britain

Epilepsy Action welcomes the proposed new epilepsy-related indicator in the recommendations for 2010/11 Quality and Outcomes Framework.

Letter from health minister Ann Keen to strategic health authorities in England

During National Epilepsy Week, the All Party Parliamentary Group on Epilepsy met in Westminster. Health Minister Ann Keen attended the meeting to hear about the work being carried out on behalf of people with epilepsy. She announced that she would be writing to all Strategic Health Authorities (SHA) in England to highlight this work, and ask them to improve their services for people with epilepsy.

Improving social care in England

The Department of Health is holding ‘Regional Stakeholder Events’ to discuss the Care and Support System Green Paper. Members of the public can attend these events and put forward their ideas to improve social care in England.

Response from the Northern Ireland health minister Michael McGimpsey to our open letter

On 16 June we sent an open letter to the Northern Ireland health minister Michael McGimpsey about epilepsy care in Northern Ireland.

e-Petition against automatic substitution of anti-epileptic drugs

Updated 2 October 2009: A big thanks to everyone who has signed the e-Petition, or campaigned in other ways (such as writing to their MP) on the issue of automatic generic substitution. 

The e-Petition has now closed, managing to attract 12,158 signatures.

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