Campaigning For Better Local Epilepsy Services
Campaigning, or lobbying, for better local epilepsy services does not need to be difficult or frightening. What is needed is a structured, methodical approach. Generally, the more people who are involved in a specific campaign, the better. However, it is important that the campaign is properly organised so that everybody knows what he or she is doing and to what timescale. This guide is aimed mainly at groups of people who want better epilepsy services, for example Epilepsy Action branches but it can also be used by individuals.
Epilepsy Action has been involved in many local and national campaigns over the years and with a great deal of success. Outlined below is a general guide, which can be used to campaign for better healthcare, education and community services. As well as the general guide, you will find additional add on modules, which can be used to lobby for specific services. These modules, such as campaigning for a Sapphire Epilepsy Specialist Nurse and campaigning for more respite care, contain more detailed contacts, statistics, quotations and guidelines.
- Preparing your case
- The target
- Political contacts
- Using the local media
- Interviews
- Writing a letter
- Writing a press release
If you live in the UK and need help with your campaign call Epilepsy Action on 0113 210 8800 and ask for the Campaign and Policy Officer or email epilepsy@epilepsy.org.uk.
Campaigns
- Awareness raising campaigns
- Campaign Supporters' Group
- Consultation responses
- Lobbying campaigns
- All Party Parliamentary Group on Epilepsy inquiry
- Campaign to save UK epilepsy specialist nurses
- Consensus statement - NICE guideline
- Epilepsy Services in England Reports
- First ever UK epilepsy care plan announced by Welsh Assembly
- Government action plan on epilepsy services in England
- Have you had problems getting a concessionary bus pass?
- How Do I Lobby For Better Epilepsy Services?
- Mapping epilepsy services
- National Service Framework on Long-Term Medical Conditions
- Surveys
Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Txt msg: 07797 805 390 info





