Would you like to be part of a new project to map epilepsy services in England?

We are looking for people living in the UK who have had any difficulties in accessing epilepsy services in the last two years. You would need to be willing to talk about your personal experiences and be available in January 2009 to attend the House of Commons in London for the launch of the report.

(At present, we are only looking for people in the UK)

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Data protection agreement

  • Your data will be kept on our systems for one year. After this time, it will be reviewed and you will be asked if you wish for your records to be removed. If you do wish for the information to be removed, your name, area and telephone number will be kept so we know not to contact you, should you be suggested for media work.
  • Should you wish to be removed from our records at any time, please contact us and tell us.
  • The information provided by you to Epilepsy Action will be used for the benefit of Epilepsy Action and people with epilepsy. This may be passed to journalists, whilst maintaining your anonymity, prior to gaining your consent.
  • Any published information will have entered the public domain, and once there, may be picked up and used for other articles without Epilepsy Action’s explicit consent. Epilepsy Action cannot be held liable for this eventuality.
  • The information provided by you will be used for articles in a wide range of media formats around the world, i.e. newspapers, publishing, web pages, electronic publishing, television and radio.
  • You undertake to keep us updated with accurate details.

What Happens Now?

Once you click on 'Submit', your details will be sent through to the press office here at Epilepsy Action. They will be held on file until we get a request from a journalist where we think your story is suitable for the journalist's requirements. At that point we will contact you to ask if you would be happy to talk to the journalist.

We will not pass your contact details on to any journalist without speaking to you first.

If you have any questions about being a media volunteer, please contact Epilepsy Action's press office: