One of the methods we use for deciding which campaigns we run is by asking our members and website visitors for their opinions on various subjects.
As the UK's leading epilepsy charity, we're also asked to help with recruitment for studies the our membership magazine 'Epilepsy Today', branches, online community and website. Before agreeing to publicise such projects all requests are thoroughly assessed to ensure that the studies are genuine and will ultimately benefit people with epilepsy.
Current survey
We would like to hear the experiences of UK residents living with epilepsy as a disability.
Do you live in the UK? Have you had the vagus nerve stimulation (VNS) implant?
We want to collect evidence about VNS. We would like people to share with us their thoughts and experiences, good and bad, about the device.
What do you think makes a great adult epilepsy specialist nurse?
The Epilepsy Specialist Nurses Association is developing a list of the skills and knowledge that an epilepsy specialist nurse should have. This will help employers and new nurses to meet the needs of people with epilepsy.
How Epilepsy Action can help your study
Epilepsy Action is always pleased to support genuine studies aimed at improving the daily lives of people living with epilepsy. If you are feel that we may be able to assist you by helping with recruitment of participants, or in any other way, please contact Margaret Rawnsley research@epilepsy.org.uk or ring 0113 210 8800 (UK) or (+44) 113 210 8800 (International)
Disclaimer
Epilepsy Action tries to take every care to ensure that the research projects included on its website are genuine. However, including information on its website does not mean that the research has Epilepsy Action approval or that we recommend people with epilepsy should take part.
Anyone who wishes to take part in these studies should satisfy themselves that this will not be harmful to their health or well-being. Epilepsy Action cannot be held legally responsible for any harm that might result.
Previous surveys
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Campaigns
- National commissioning of paediatric epilepsy surgery
- Save our Sapphires, protecting all epilepsy specialist nurse posts
- Automatic substitution of anti-epileptic drugs
- Women's campaigns
- A better deal for neurology - support our campaign for a national neurology strategy
- National Epilepsy Week 2012
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