For some of the families we support, Christmas will be a time to remember a loved one who died unexpectedly because of their epilepsy.
Thankfully sudden unexpected death in epilepsy (SUDEP) is rare and not everyone with epilepsy is at the same risk. But it does tragically cause around 500 deaths each year in the UK and not enough people with epilepsy are aware of it.
Your donation this Christmas can help us raise awareness of SUDEP amongst those who are at risk:
- £30 could equip a GP or epilepsy specialist nurse with SUDEP information for patients to share with their loved ones and carers.
- £10 a month can help our Helpline experts speak to more people about SUDEP and help them make the right choices to reduce their risks.
Read messages of support for people affected by SUDEP on Facebook
If you would like more information about SUDEP, we can help:
- call the Epilepsy Helpline on freephone 0808 800 5050
- email helpline@epilepsy.org.uk
- visit www.epilepsy.org.uk/info/sudep
Update 24 November: Steve McCabe MP secured a debate on epilepsy related deaths in the Houses of Parliament on Tuesday 29 November.
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Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Twitter: epilepsyadvice
- Txt msg: 0753 741 0044 info







