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Benefits information for people with epilepsy in Wales

This information is about entitlements and benefits that may be available for people with epilepsy who live in Wales.

If you have epilepsy and live in England, Northern Ireland or Scotland, Epilepsy Action has different information available for you.

If you live outside the UK, you can find out about entitlements in your country by contacting your local epilepsy group.

In this section

Free prescriptions

If you live in Wales, you are entitled to free prescriptions if you;

  • are registered with a GP in Wales, and
  • get your prescriptions from a pharmacy in Wales

If you live in Wales but are registered with a GP practice in England, you can still get free prescriptions from pharmacies in Wales. To do this, you need to apply to your local Health Board for an entitlement card. 

A list of local Health Boards in Wales is on the Health in Wales website: www.wales.nhs.uk. Alternatively, contact Epilepsy Action for this information, freephone 0808 800 5050.

The Disabled Person’s Railcard

If you have epilepsy, you are eligible for a Disabled Person’s Railcard if you either:

  • still have seizures even though you take epilepsy medicine; or
  • you are not allowed to drive because of your epilepsy. 

You will need to pay for a Disabled Person’s Railcard, but it will save you money if you regularly travel by train.

Adults get a discount of up to a third on a range of rail tickets. One person travelling with you will get the same discount as you.

Children aged from five to 15 years will pay the normal child’s train fare. However, if a child has a Disabled Person’s Railcard, one adult who is travelling with them can then claim a discount of one third off their own adult’s fare.

You can get an application form for a Disabled Person’s Railcard from any of the following places.

Free bus travel

If you have epilepsy, you are eligible for a bus travel pass if:

  • you would be refused a driving licence if you applied for one, because you have epilepsy; or
  • you receive the higher rate mobility component of Disability Living Allowance.

A bus travel pass entitles you to free travel on registered local bus services throughout Wales. It can be used at any time of day. A person traveling with you will also get free travel. Travel passes are available for both children and adults with epilepsy.

For more information about how to get your travel pass, contact your local council. You can find their details in your local Phone Book, or by contacting Epilepsy Action, freephone 0808 800 5060. Alternatively, a list of local councils in Wales is on the Directgov website: www.direct.gov.uk

Epilepsy Action has more information about epilepsy and driving.

Access to Work

Some people who can’t drive because they have epilepsy, may be entitled to help with the additional costs of travel to and from work, and also travelling while at work. This comes under the Access to Work scheme.

You apply by ringing the number for Wales which is 02920 423 291.

The interview is conducted over the phone and will take about 15 – 20 minutes. It is possible to ask for a call back.

More information on the Access to Work scheme: www.gov.uk/access-to-work/overview

Welfare benefits

If you have difficult to control epilepsy or other disabilities, you may be entitled to receive certain welfare benefits. These include Disability Living Allowance, Personal Independence Payment or Attendance Allowance. 

Disability Living Allowance

Disability Living Allowance (DLA) is awarded to children and adults aged 64 or under, who have care needs and/or mobility needs. DLA is paid at different rates depending on how your disability affects you. To qualify, you must have needed help for at least three months because of a severe physical or mental illness or disability. You should need this help for at least another six months.

DLA is tax-free and isn’t affected by any other income or savings that you have. It is paid on top of any other earnings or income.

Epilepsy Action has more information about claiming DLA.

Personal Independence Payment

From 2013 a new Personal Independence Payment (PIP) will replace Disability Living Allowance for disabled people aged 16 to 64.

Your entitlement to PIP isn’t based on your disability, but the help you may need because of your condition or disability. Your personal circumstances are taken into account and the impact that your condition or disability has on your ability to live independently.

The payment is tax-free and isn’t affected by any other income or savings that you have. It is paid on top of any other earnings or income, so you can claim it whether you are in or out of work.

Changes from Disability Living Allowance to Personal Independence Payment

Aged under 16
There is no change for Disability Living Allowance for children up to 16 years of age - this will continue.

Aged 16 to 64
In the future, Personal Independence Payment (PIP) will replace Disability Living Allowance (DLA) for everyone aged 16 to 64.

If you already claim DLA, you don't need to do anything now. The Department for Work and Pensions will contact you between 2013 and 2016, to let you know when your DLA will stop. They will tell you when and how you should make a claim for PIP.

Aged 65 or over
If you are aged 65 and receive Disability Living Allowance, this will continue, as long as you still meet the entitlement conditions. You will not need to claim Personal Independence Payment (PIP).

More information about PIP is available from the Directgov website: www.direct.gov.uk

Attendance Allowance

Attendance Allowance (AA) is awarded to adults aged 65 or over who need help with personal care, or supervision or watching over to keep them safe. It is paid at different rates depending on how the person’s disability affects them.

AA is tax-free and isn’t usually affected by any other income or savings that you have. It is paid on top of any other earnings or income.

If you get AA, you will not be affected by the introduction of Personal Independence Payment.

Organisations that offer benefits advice

Benefit Enquiry Line
A confidential telephone advice and information service, providing general advice on benefits. They can also help you fill out claim forms for benefits.
Helps with:

  • finding out if you can make a claim
  • making a claim.

Freephone: 0800 88 22 00
Textphone: 0800 24 33 55

Cerebra
Cerebra have a free guide which takes you through each stage of applying for Disability Living Allowance for children.
Helps with:

  • making a claim for a child.

Tel: 0800 328 1159
Website: www.cerebra.org.uk

Citizens Advice Bureau (CAB)
CAB gives free, confidential, impartial and independent advice about your rights, including benefits. They can also help you fill out claim forms for benefits.
Helps with:

  • finding out if you can make a claim
  • making a claim
  • appealing against a decision about your benefits.

Tel: 0844 477 2020 (For advice by telephone)
Tel: 0207 833 2181 (for details of your local branch)
Website: www.adviceguide.org.uk/wales

Community Legal Advice
A free and confidential advice service paid for by legal aid. They offer advice about benefits. They can also give you details of solicitors in Wales.
Helps with:

  • appealing against a decision about your benefits.

Tel: 0845 345 4345
Tel: 0845 609 6677 (for people who have problems speaking or hearing)

DIAL UK
Disability Information and Advice Line services, run by and for disabled people. They may be able to refer you to someone who can help you fill out claim forms for benefits (provided there is someone in your area).
Helps with:

  • making a claim.

Freephone: 0808 800 3333 (to find your local group)
Website: www.scope.org.uk/dial

Directgov
This website has lots of information about all the different benefits that are available.
Helps with:

  • finding out if you can make a claim. 

Website: www.direct.gov.uk (go to the Money, tax and benefits section)

Disability Rights UK
This website has a number of free factsheets you can download. It offers basic information about benefits, tax credits, social care and other disability related issues for claimants and advisers.
Helps with:

  • finding out if you can make a claim.

Website: www.disabilityrightsuk.org (go to the Ways we can help section)

Turn2us
A confidential service which helps you to find out about benefits and grants you may be entitled to.
Helps with:

  • finding out if you can make a claim. 

Freephone: 0808 802 2000
Website: www.turn2us.org.uk


We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.
Code: 
F068.02

Epilepsy Action would like to thank Wendy Collins, Benefits Trainer, for her contribution to this information.

Wendy Collins has no conflict of interest to declare.

This information has been produced under the terms of The Information Standard.

  • Updated October 2012
    To be reviewed October 2014

Comments: read the 1 comments or add yours

Comments

This information has been most usefull as no one tells you what help we can get .
I will be able to look into it now thank you so much .

Submitted by Pamela Coates on

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