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of everyone affected by epilepsy

Epilepsy Action Information Reviewers (EAIRs)

Would you like to have a say about our advice and information materials? We are looking for people who would be willing to review our publications.

As a member-led organisation, Epilepsy Action believes it is important that people with epilepsy, or those who care for someone with epilepsy, have an opportunity to help us shape the future of our advice and information materials.

We want to recruit a number of people to become an Epilepsy Action Information Reviewer – an EAIR. As an EAIR, you will have the opportunity to give us feedback on our publications at different stages of their development.

What will I have to do as an EAIR?

We will ask you to complete a short, simple form, about a particular Epilepsy Action title. You can ask for a sample form to be emailed to you.

What is my commitment to Epilepsy Action?

You will agree to review at least one out of every five titles for review. You can review more if you want to. We will not ask you to review more than 12 titles during the course of a year.

What is Epilepsy Action’s commitment to you?

As an EAIR, we will listen to what you tell us and act on your suggestions where appropriate.

What experience or skills do I need to become an EAIR?

If you or a family member have epilepsy, or you care for someone with epilepsy, you have the experience we are looking for. You don’t need any special skills, but you do need to have an interest in epilepsy information. You also need access to the Internet and an email address where we can contact you.

How do I apply?

We're currently not looking for any new EAIRs. However, we do have other ways you can volunteer.   

 If you have any queries about becoming an EAIR, you can contact us at: eairs@epilepsy.org.uk.

What happens next?

We will consider your application and let you know if you have been accepted as an EAIR.

Where can I get more information?

Email us at eairs@epilepsy.org.uk.

Comments: read the 1 comments or add yours

Comments

My beautiful son Sean passed away on 29th January 2010. He was my only child and so full of life and has left a 3 year old son of his own. This SUDEP is frightening. Why aren't families of people of epilepsy suffers and those suspected of it made aware of this. It really sickens me. My son wasn't officially diagnosed but was being investigated for epilepsy. Reading all your stories pains me. Whilst waiting for his MRI and EEG appointments my son said to me about a month before he died that he was scared and didn't want to spend his life taking medication or stop driving. If he had known this could happen and his son would grow up without him he may have changed his mind. He was fiercly independent He suspected he may have been having fits for a while as he would complain of having a sore tongue and feeling very tired and achy, but because he lived alone no one knew for sure, until he stayed with a friend who informed him in the morning what happend overight. God we all miss him so. He was such a big personality.

Submitted by Donna on

We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.

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