Children's Chatterbox
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Epilepsy Action has produced a fun chatterbox game, with questions and answers about epilepsy and activities. Questions include:
- I want to learn karate, is this OK?
- Can I ride a horse?
- Is it safe to go on the rides at the theme park?
The chatterbox is an ideal tool to help children learn more about epilepsy, for example in PSHE or citizenship lessons.
We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.
Epilepsy advice and information A to Z
- What is epilepsy?
- Children
- Depression
- Disability Discrimination Act (UK)
- Driving
- Education
- Employment
- Entitlements for people with epilepsy in England
- Entitlements for people with epilepsy in Wales
- Epilepsy and caring for children: a comprehensive guide
- Epilepsy and learning disabilities
- Epilepsy in later life
- Epilepsy information for prisons
- Getting a diagnosis
- Identity jewellery
- Inheritance
- Living with dificult to control epilepsy
- Me and my dad
- Memory
- Men and Epilepsy
- Mobile phones and epilepsy
- Osteoporosis, osteomalacia and epilepsy
- Photosensitive epilepsy
- Safety
- Seizures
- Sports and leisure
- Stress and epilepsy
- Sudden unexpected death in epilepsy (SUDEP)
- Swine flu and epilepsy
- Syndromes
- Travel abroad
- Treatment
- Women and epilepsy
- Young people and epilepsy
- Epilepsy Action and the Information Standard
- The Epilepsies: You, Epilepsy and the NICE Guideline
- Epilepsy Action Information Reviewers (EAIRs)
- Technical editing/writing and copyright
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Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Txt msg: 07797 805 390 info







Comments
dear amy,
im sorry that happened to you but remember that everyone with epilepsy may not have the same type of epilepsy but we all have epilepsy so we should all be able to stand up for ourselves just like anyone else should. also remember that we're no different to anyone else. lots of love from
georgia stent xx
thanks i hope good things come by your way too xx
dear alex this is a poem i wrote for you:
There is a girl i met called alex,
And she seemed to be in a bit of a panic,
She had something called epilepsy,
She had exactly the same symtoms as me.
I talked to her and calmed her down on chatterbox,
And told her not to lose her socks,
This seemed to work very good,
As we became good friends like all friends should.
if she ever sees this then i want her to know,
that big things come in small packages so,
she wont have to worry soon,
because everything will be good again.
but if she ever gets scared again,
then she will always have someone for time to spend.
with lots of love from georgia stent xx
hi my name is georgia,
most of you have heard my story before, that i might be able to get rid of my epilepsy with an operation. i have heard some of your stories too and i think that you should all be a bit scared or have a few emotions from your epilepsy because there is, of course, a reason for it and that is that you sometimes might not be able to as many things as wanted to when you get older. but remember, big things come in small packages so you never know, like me, you might someday be able to get rid of you epilepsy and not have to worry about it, or if not then you will at least be treated for it good enough that you won't have your seizures any more. i wish good luck to all of you lot because i know how you feel because i've had my epilepsy for 6 years nearly, because i'm 12 in 6 days. i really do feel for all of you guys and girls and i wish you all the best of luck it was nice meeting you all,
xx georgia xx
When I was doing a school play, I had an absense and a girl next to me ruffeled my peice of paper lots and nudging me. When I came out of it I, she was still nudging me and then my teacher gave me a look that I felt I should say sorry. Have any of you ever felt that way before? Stupid? Upset?
Amy
dear alex,
you shouldn't be scared about your epilepsy i'm sur it will be sorted out soon. also i've had epileps since i was four so i know what its like to be upset. aswell, even though i'm not there with you i can always talk to about things on the chatterbox, so if you want any support i can always help.
if you want some support than always know that i'm always here.
nice to meet you,
georgia. xx
I hope the operation goes well georgia!
My name is Amy and I have been recently been diognosed with juvenile absense epilepsy (absense and tonic-clonic seizures). I had a tonic-clonic seizure on the school field and when I came out of it I saw all my teachers looking down at me.
When we got given our practice SATs paper, I didn't get through all my questions in 45 minutes so I ended up getting about 13 out of 25. The mark did make me cry but my friends were all very supportive and understanding. Last thursday my mum arranged a meeting with the educational psychologist to come and test me and she was very good and told my mum exactly what the problem was, so both my mum and I feel more relaxed.
Amy
Georgia,
Just be really brave and I will say a prayer for you.
my name is georgia and i am 11 years old. i started having seizures when i was four and i had it for another four years then i was seizure free for two years. my medicine then treated my seizures but it made me put on lots of weight, my friends started to not like me and call me names, then i had no friends and i got bullied every day. it was when i was ten when i was performing a school play to the school and i nearly walked off the stage. then i had two more when i went to see my dad and i had just been shopping and i was in the car, it was my sister who noticed it happen. one of those times i was really dizzy and we had to get home super fast so that i could get out of the car quickly so that i could sit down. from then i had alot more seizures and mini ones at school aswell. finally after all that i got a hospital appointment and got some new medicine. the medicine works and i had an EEG scan to see where the seizures were coming from. after that my docter told me to have an appointment with a different doctor in a different hospital but still in the same area, she told me that he was a consultant and he might be able to do more about my epilepsy. when i went to see him he told me about having tablets instead of liquid, he also told me about having an opperation to remove the part of my brain that is causing my epilepsy. the consultant said that the opperation would be really safe and all they had to do was work out a couple of plans before they do anything, keep me in overnight for a couple of nights to do some scans whilst i'm asleep, a couple of weeks/months later they will do the opperation and keep me in hospital for about a week, then to catch up with school i will stay at home for about two weeks and the school will send me worksheets to do whilst im at home, then i can go back to school and see my friends. im really scared about the opperation but the docter says that its a really good oppertunity for me and mum says that i need to be really brave and shell be really proud of me when i have had the opperation. im have really mixed feelings at the moment because im exited to get rid of my epilepsy, im also scared incase it might go wrong and because i keep picturing the knife going in my head but also proud because im trying to make my mum proud aswell and thats what matters right?
i dont know how to tell my friends either its going to be so hard telling them because they might be scared too.
thank you for listening,
georgia
I am 16 year old and i have epilepsy. I can have them in my sleep, as well as during the day. In my sleep i wont know unless someone else has seen me. I will wake up not remembering anything that i did the previous day. When i have them during the day, i will stop and stare off and try to controll myself, but my eyes are uncontrollable, they want to turn and close. I fight myself trying to make sure that i look like nothing is happening and make sure that i stay conscious. I am afraid of what could happen if i were to just let it go. The seizures i experience during the times that i am awake are like memories from a specific time, that i can see right in front of myself but as soon as its over, i cant remember what i have just seen. Its scary not really knowing what is going on with your own body and that you cant control what is going on. My doctor sais that my epilepsy is sleep deprived, which means i need all of the sleep i can get. I didnt know much about epilepsy until i read what was on this website. I dont know if i will ever loose epilepsy or grow out of it. My brother who is my best friend tells me that it is the scariest thing he has ever seen, and that he will be there with me every time i have one. If anyone has similer symptoms, please respond to my post. Posted By Alex Tomassetti