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Children's Chatterbox

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Epilepsy Action has produced a fun chatterbox game, with questions and answers about epilepsy and activities. Questions include:

  • I want to learn karate, is this OK?
  • Can I ride a horse?
  • Is it safe to go on the rides at the theme park?

The chatterbox is an ideal tool to help children learn more about epilepsy, for example in PSHE or citizenship lessons.

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We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.
‹ Seizures ExplainedupMedication ›

Comments

I am 16 year old and i have epilepsy. I can have them in my sleep, as well as during the day. In my sleep i wont know unless someone else has seen me. I will wake up not remembering anything that i did the previous day. When i have them during the day, i will stop and stare off and try to controll myself, but my eyes are uncontrollable, they want to turn and close. I fight myself trying to make sure that i look like nothing is happening and make sure that i stay conscious. I am afraid of what could happen if i were to just let it go. The seizures i experience during the times that i am awake are like memories from a specific time, that i can see right in front of myself but as soon as its over, i cant remember what i have just seen. Its scary not really knowing what is going on with your own body and that you cant control what is going on. My doctor sais that my epilepsy is sleep deprived, which means i need all of the sleep i can get. I didnt know much about epilepsy until i read what was on this website. I dont know if i will ever loose epilepsy or grow out of it. My brother who is my best friend tells me that it is the scariest thing he has ever seen, and that he will be there with me every time i have one. If anyone has similer symptoms, please respond to my post. Posted By Alex Tomassetti

Submitted by Alex Tomassetti on 14 May, 2009 - 02:52.

my name is georgia and i am 11 years old. i started having seizures when i was four and i had it for another four years then i was seizure free for two years. my medicine then treated my seizures but it made me put on lots of weight, my friends started to not like me and call me names, then i had no friends and i got bullied every day. it was when i was ten when i was performing a school play to the school and i nearly walked off the stage. then i had two more when i went to see my dad and i had just been shopping and i was in the car, it was my sister who noticed it happen. one of those times i was really dizzy and we had to get home super fast so that i could get out of the car quickly so that i could sit down. from then i had alot more seizures and mini ones at school aswell. finally after all that i got a hospital appointment and got some new medicine. the medicine works and i had an EEG scan to see where the seizures were coming from. after that my docter told me to have an appointment with a different doctor in a different hospital but still in the same area, she told me that he was a consultant and he might be able to do more about my epilepsy. when i went to see him he told me about having tablets instead of liquid, he also told me about having an opperation to remove the part of my brain that is causing my epilepsy. the consultant said that the opperation would be really safe and all they had to do was work out a couple of plans before they do anything, keep me in overnight for a couple of nights to do some scans whilst i'm asleep, a couple of weeks/months later they will do the opperation and keep me in hospital for about a week, then to catch up with school i will stay at home for about two weeks and the school will send me worksheets to do whilst im at home, then i can go back to school and see my friends. im really scared about the opperation but the docter says that its a really good oppertunity for me and mum says that i need to be really brave and shell be really proud of me when i have had the opperation. im have really mixed feelings at the moment because im exited to get rid of my epilepsy, im also scared incase it might go wrong and because i keep picturing the knife going in my head but also proud because im trying to make my mum proud aswell and thats what matters right?
i dont know how to tell my friends either its going to be so hard telling them because they might be scared too.
thank you for listening,
georgia

Submitted by georgia on 6 January, 2010 - 20:03.