Education professionals

At Epilepsy Action we know that being responsible for the welfare and education of a child with epilepsy can seem daunting, but we have plenty of information and resources to help education professionals.

Many young people with epilepsy don’t have special educational needs (SEN), and may never experience a seizure at school. About two thirds of children with epilepsy do underachieve academically, and a minority will experience seizures during school time. We hope that by working together with education professionals, we can make sure that the educational needs of young people with epilepsy are met, and that they can feel safe at school.

Individual Healthcare Plan for pupils and students with epilepsy.

Epilepsy Action recommends that all children and young people with epilepsy should have an Individual Healthcare Plan (IHP). A new and improved template form is available to download free

On this site, you will find information on first aid for epilepsy; routine and emergency medication; and epilepsy awareness including the different types of seizures and triggers. There are also sections on epilepsy in the classroom, which explains how epilepsy may affect young people at school; advice on school activities, including swimming and educational visits; and higher education and careers advice for young people with epilepsy. A news section, summaries of our education research, and resources for teachers complete the picture.

If you have any questions, need further resources or can’t find what you’re looking for, please contact our Epilepsy Helpline on freephone 0808 800 5050, or email Leanne Creighton, our education policy and campaign officer, on education@epilepsy.org.uk.

Epilepsy is a very individual condition and every person with epilepsy is different. Epilepsy Action recommends that teachers find out as much as possible about a child’s epilepsy, from the child and their parents or carers. The type of information that would be useful might include some of the following:

• what type of seizures a child has
• how long they last and what they look like
• what first aid is appropriate and what care the child will need after the seizure
• any particular conditions or events that might trigger a seizure
• whether the child has a warning (aura) before a seizure
• how often routine medication is taken and what side-effects may be experienced
• what constitutes a medical emergency for the child, and what to do in such an emergency
• whether emergency medication has been prescribed and how it should be administered
• which, if any, activities the child’s parents or carers and medical professionals have advised them to avoid
• whether the child has any other medical conditions
• whether the child has had any learning difficulties or disability identified
• how much understanding the child has of their condition and its treatment

Epilepsy Action's free downloadable 'Epilepsy Policy for Schools' includes lots of information about epilepsy and some useful forms for documenting information on a particular child's epilepsy. It includes an Individual Healthcare Plan to record information about a child’s medical condition, and an agreement for the school to administer a child's medication.
You can download a template for an Individual Healthcare Plan.

Awareness in schools scheme

The Awareness in schools scheme provides free training for school staff, delivered by Epilepsy Action’s Accredited Volunteers. The scheme has now been extended to more areas of the UK using our network of dedicated and trained volunteers, who have participated in a training course accredited by the Open College Network.
Find out online if there is a volunteer in your area and request training.

• Epileptic seizures explained