Research
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Epilepsy Action actively encourages research into the social and medical (non-laboratory) aspects of epilepsy, providing this research falls within the organisation's aims and objectives, will contribute to our achievements and is intended for the ultimate benefit of people with epilepsy.
The direction of Epilepsy Action's research activities reflects the views of Members of Council of Management and staff at Epilepsy Action. However, we welcome your views about the research we carry out or fund, so please don't hesitate the contact us.
Epilepsy Action's research into education includes two recent surveys. One is a survey of parents with children with epilepsy, asking about their experience of education. The second is a survey of schools, assessing the level of awareness of epilepsy and its effects within the education sector.
We are currently funding an external research project 'Understanding of epilepsy by children with, or without, epilepsy' by Professor Ann Lewis of University of Birmingham:
To date, there has been little systematic evidence concerning the views of children with epilepsy, and their classmates, about their condition. Schoolmates’ understanding about epilepsy is important; these children are a vital source of potential support, advocacy and friendship. This project will explore the understanding of children and young people, in mainstream schools, of the nature, causes and long term effects of epilepsy. The information gathered will be used to produce guidelines concerning the most effective ways for teachers and other professionals to integrate children with epilepsy in an inclusive school.
Professor Ann Lewis is Professor of Special Education and Educational Psychology at University of Birmingham. She has a longstanding concern (both research and professionally-oriented) with exploring the views of children with disabilities, particularly in relation to the way they see educational provision. She is an experienced researcher and has published widely.
You can read more about Epilepsy Action's research activities on our main research pages.
We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.
Epilepsy advice and information A to Z
- What is epilepsy?
- Children
- Depression
- Disability Discrimination Act (UK)
- Driving
- Education
- Higher education
- Parents and carers in England and Wales
- Parents and carers in Northern Ireland
- Support available for young people with epilepsy taking GCSE and GCE exams at school or college
- Education professionals
- Give us feedback on this section
- Employment
- Entitlements for people with epilepsy in England
- Entitlements for people with epilepsy in Wales
- Epilepsy and caring for children: a comprehensive guide
- Epilepsy and learning disabilities
- Epilepsy in later life
- Epilepsy information for prisons
- Getting a diagnosis
- Identity jewellery
- Inheritance
- Living with dificult to control epilepsy
- Me and my dad
- Memory
- Men and Epilepsy
- Mobile phones and epilepsy
- Osteoporosis, osteomalacia and epilepsy
- Photosensitive epilepsy
- Safety
- Seizures
- Sports and leisure
- Stress and epilepsy
- Sudden unexpected death in epilepsy (SUDEP)
- Swine flu and epilepsy
- Syndromes
- Travel abroad
- Treatment
- Women and epilepsy
- Young people and epilepsy
- Epilepsy Action and the Information Standard
- The Epilepsies: You, Epilepsy and the NICE Guideline
- Epilepsy Action Information Reviewers (EAIRs)
- Technical editing/writing and copyright
Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Txt msg: 07797 805 390 info






