What people say about epilepsy and work

• “I don't feel that having epilepsy has affected my ability to find employment, although I am aware of the impact that it could have upon my ability to work should I have seizures again… I am hesitant about discussing my epilepsy openly as much as I would like, as I do worry about the way people may react.”

• “When I recently underwent a major review of medication, my employer was fantastic, giving me time off to attend for EEGs and appointments at the hospital.”

• “Because I can't drive it limits what I can do. I am a newspaper reporter. Buses aren't a problem, but in my job you need transport quickly and conveniently. I am applying for Access to Work to help. My employer is really being helpful and not making it a big issue. I have had seizures at work and it is not a problem.”

• “I worked hard to ensure I was seen as a good, efficient and effective 'team player’ first, before people were told I have epilepsy. This helped prevent formation of 'disabled stereotype'. Constant pressure of having to prove worth, leads to working harder than colleagues at times.”

• “Having a disability employment advisor at the JobCentre has helped greatly. He has directed me to a work preparation programme which is allowing me to test out a work environment without losing my benefits.”

• “I am very lucky because I work for the NHS so they are very understanding.“

• "My epilepsy, I believe and know from experience, has had an awful effect on my confidence in applying for jobs. I never hide it and am more than happy to explain what I can to people, it’s the ones who are ignorant towards it and don't want to know that angers me – they could have it tomorrow!”

• These are statements from people with epilepsy in the UK who shared their employment experiences with us . We know that some employers are very knowledgeable about employing people with long term conditions, such as epilepsy, but many aren’t. How can you be an informed employer? Read this section of our website and see.

Last updated 2 May 2007