Talking about epilepsy
Encourage open discussion with the person with epilepsy. No two people are the same, so asking questions about the person’s seizure type and any trigger they may have can be really useful. (An example of a trigger for seizures would be lack of sleep or stress.)
Also, it is worth discussing what action should be taken, if a seizure happens at work, and making sure that first aiders are aware of any agreed plan.
If the employee is seizure free or only has sleep seizures or seizures first thing in the morning, it may not be necessary to tell other people in the workplace about the epilepsy. However, if someone may have a seizure at work, it is worth deciding with that person what, if anything, to tell other members of staff.
Bear in mind that employees have a right to confidentiality, so ask their permission before any information about them is passed to third parties.
We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.
Epilepsy advice and information
- What is epilepsy?
- Children
- Depression
- Disability Discrimination Act (UK)
- Driving
- Education
- Employment
- UK employment restrictions
- Work and epilepsy - an employer's guide
- What people say about epilepsy and work
- What is epilepsy?
- Talking about epilepsy
- Attendance
- Disability Discrimination Act
- Health and Safety laws and risk assessments
- Reasonable adjustments
- Insurance
- Pensions
- Disclosing epilepsy
- Photosensitive epilepsy and working with computers
- Access to Work
- Driving and Epilepsy
- Seizure types
- First aid for tonic-clonic seizures
- Calling an Ambulance
- Recovery (in a work situation)
- Summary
- Work and epilepsy – an employee’s guide
- Entitlements for people with epilepsy in England
- Epilepsy and caring for children: a comprehensive guide
- Epilepsy in later life
- Epilepsy information for prisons
- Getting a diagnosis
- Identity jewellery
- Inheritance
- Learning disabilities
- Living with dificult to control epilepsy
- Me and my dad
- Memory
- Men and Epilepsy
- Mobile phones and epilepsy
- Osteoporosis, osteomalacia and epilepsy
- Photosensitive epilepsy
- Safety
- Seizures
- Sports and leisure
- Stress and epilepsy
- Sudden unexpected death in epilepsy (SUDEP)
- Swine flu and epilepsy
- Syndromes
- Travel abroad
- Treatment
- Women and epilepsy
- Young people and epilepsy
- Epilepsy Action and the Information Standard
- The Epilepsies: You, Epilepsy and the NICE Guideline
- Epilepsy Action Information Reviewers (EAIRs)
- Technical editing/writing and copyright
Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Txt msg: 07797 805 390 info
- Live online: Tuesdays and Thursdays 1230-1330 UK time






