Support
How can I get in touch with other men with epilepsy?
If you’d like to contact other men who also have epilepsy, perhaps to share experiences or seek support, here are some ways you can do this.
Accredited Volunteer scheme
Epilepsy Action trains male and female volunteers who live in England, Wales and Northern Ireland, to provide one to one support and advice and information to people with epilepsy and/or their families/carers. If you’d prefer to speak to a male volunteer, we’ll try to arrange this.
Online community – www.forum4e.com
This website has members with epilepsy from all over the world, who contact each other through chat rooms and emails. You choose your own user name, so you can be as anonymous as you want. If you’d prefer, it’s possible to contact men only.
Support groups
There are around 95 Epilepsy Action support groups around England, Wales and Northern Ireland. These groups are set up and run by volunteers and offer a wide range of services within the community, such as providing advice, information and friendship.
Penfriends
Members of Epilepsy Action receive our magazine Epilepsy Today several times a year. This has a section which allows you to advertise for penfriends.
November 2008
More in this section:
- Introduction
- What is epilepsy?
- Living with epilepsy
- Treatment
- Visiting your doctor
- Sex and sexuality
- Becoming a father
- SUDEP
- Support
We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.
Epilepsy advice and information
- What is epilepsy?
- Children
- Depression
- Disability Discrimination Act (UK)
- Driving
- Education
- Employment
- Entitlements for people with epilepsy in England
- Epilepsy and caring for children: a comprehensive guide
- Epilepsy in later life
- Epilepsy information for prisons
- Getting a diagnosis
- Identity jewellery
- Inheritance
- Learning disabilities
- Living with dificult to control epilepsy
- Me and my dad
- Memory
- Men and Epilepsy
- Mobile phones and epilepsy
- Osteoporosis, osteomalacia and epilepsy
- Photosensitive epilepsy
- Safety
- Seizures
- Sports and leisure
- Stress and epilepsy
- Sudden unexpected death in epilepsy (SUDEP)
- Swine flu and epilepsy
- Syndromes
- Travel abroad
- Treatment
- Women and epilepsy
- Young people and epilepsy
- Epilepsy Action and the Information Standard
- The Epilepsies: You, Epilepsy and the NICE Guideline
- Epilepsy Action Information Reviewers (EAIRs)
- Technical editing/writing and copyright
Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Txt msg: 07797 805 390 info
- Live online: Tuesdays and Thursdays 1230-1330 UK time






