Support

How can I get in touch with other men with epilepsy?

If you’d like to contact other men who also have epilepsy, perhaps to share experiences or seek support, here are some ways you can do this.

Accredited Volunteer scheme

Epilepsy Action trains male and female volunteers who live in England, Wales and Northern Ireland, to provide one to one support and advice and information to people with epilepsy and/or their families/carers. If you’d prefer to speak to a male volunteer, we’ll try to arrange this.

Online community – www.forum4e.com

This website has members with epilepsy from all over the world, who contact each other through chat rooms and emails. You choose your own user name, so you can be as anonymous as you want. If you’d prefer, it’s possible to contact men only.

Support groups

There are around 95 Epilepsy Action support groups around England, Wales and Northern Ireland. These groups are set up and run by volunteers and offer a wide range of services within the community, such as providing advice, information and friendship.

Penfriends

Members of Epilepsy Action receive our magazine Epilepsy Today several times a year. This has a section which allows you to advertise for penfriends.

November 2008

More in this section:

• Introduction
• What is epilepsy?  
• Living with epilepsy
• Treatment
• Visiting your doctor
• Sex and sexuality
• Becoming a father
• SUDEP
• Support