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Epilepsy in newborn babies

What causes epilepsy in newborn babies?

There are many different causes of seizures in newborn babies and in the first six months of life. In very premature babies, the most common causes are a reduced blood and oxygen flow to the brain, and bleeding into the brain. Other causes include infections such as meningitis, low blood sugar or calcium, poor development of the brain and rarely, problems with the metabolism. In some cases, the seizures may be due to a faulty gene or chromosome. In other cases no cause can be found.

See also: What is epilepsy? 

Types of seizures

Seizures in newborn babies are often difficult to recognise. This is because the immature brain of a very young child is unable to produce the more obvious seizures that can be seen in older children. In a newborn baby seizures may be very subtle and consist simply of changes in breathing patterns, movements of the eyelids or lips or bicycling movements of the limbs. They may also consist of brief jerks or episodes of stiffening of the body and limbs. The jerks are called myoclonic or clonic seizures and the episodes of stiffening are called tonic seizures, or, sometimes, spasms.

More information about different types of seizures

Diagnosis

It is important that any baby who is suspected of having seizures is referred to a specialist, who may arrange for diagnostic tests. One of the most commonly performed tests is the electroencephalogram (EEG). While the EEG is not a conclusive test for epilepsy, it can be very useful in detecting subtle seizures, and can also provide information about specific seizure types. It is important that the EEG of a newborn baby is interpreted by someone who specialises in this age group. This is because the brainwave patterns and seizures are often very different to those in older children and adults. 

Treatment

There is a large range of anti-epileptic medication currently available and new ones continue to be developed. However, one of the older drugs, phenobarbital, seems to be particularly useful in treating seizures in babies; other drugs such as carbamazepine or phenytoin may also be effective. Ultimately, the choice of medication will depend on the child’s seizure type, the age when the epilepsy began, the cause of the epilepsy, if known, and the likely outcome of that particular type of epilepsy.

Outlook

Many parents become frustrated as they feel that doctors give them little information about how their child will develop and whether the epilepsy will ever go away. This frustration is understandable, but the lack of information may simply be due to the fact that the doctors themselves do not always know what will happen in the future.

One of the things parents may worry about is whether their child’s intellectual abilities will be affected by epilepsy. Many children with epilepsy will develop with the same range of intellectual abilities as children without the condition. However, where the epilepsy is caused by damage to the brain, this damage can, in some cases, also cause learning disabilities.

In the newborn period it is not always possible to predict what the outcome for each child will be. In some cases it is only when particular development milestones are reached, or not reached, that the doctors can try to predict what the future may hold for that child. Ultimately, the outlook for the future, both in terms of general development and future epilepsy, depends on the nature and, most importantly, on the underlying cause of the child’s epilepsy.

Epilepsy Action has fact sheets about some types of childhood epilepsy. Please contact the Epilepsy Helpline, freephone 0808 800 5050 (UK), or helpline@epilepsy.org.uk

For the less common types of epilepsy the UK organisation Contact a Family may be able to provide information on self-help groups for children with specific conditions.

See also: Parents’ guide to epilepsy

  • Updated January 2010
    To be reviewed January 2012

Comments: read the 7 comments or add yours

Comments

my kid age is 2 months.. He is very active and healthy but He is consist of brief jerks or episodes of stiffening of the body and legs spescially at sleepy he jerks the legs.Doctors prescribed the Syp Debreoton(phenobarbital,).plz give any commnet.

Submitted by saqib on

Hello

My daughter who is now 1, had her first seizure when she was 4 months, it lasted over an hour and was very poorly, after a period of 2 months she then started to have more, her first AED did not work and she was having a seizure every 4 days, all of them over 30 minutes long and needing intervention to stop them, she is status epileptic which means she cant stop when fitting, over Chrsitmes she was admitted and had to be given a general anaesthetic to stop the seizure which she was very ill over and took 2 weeks to recover in hospital, she again is in hospital only 4 weeks after, again having to be given a general anaesthetic, she even fitted after the general anaesthetic , she currently is on sodium valporate and reaching a high dosage of it, she could not of had any more suppression drugs to stop her fits last week or 4 weeks ago, has anyone experienced the same, and has anyone found a better solution or alternative methods to control it? We have had lots of data from the hospital but are being informed it’s too early to alter the path of medicine she is on or to try other options such as the diet route?

Speak soon

Paul

Submitted by Paul McMahon on

my son recently died on the 6th december 2010 aged 5months, he started having seizures when he was just a couple of days old and was having seizures every 4 or 5 days untill he was 3weeks old and they caught one on the EEG so he started his epilepsy medication and only had one in the next 4months of his life. The doctors were concerned about his development as ne was always so stiff in his arms and legs, daniel also found it hard to go to the toilet and then kept been sick, his breathing started getting very heavy at around 2and a half months but the doctors just told me that he would grow out of it, it was only when he sadly passed away that they realised in his post mortam that his whole body was totally fine, and his MRIs were always normal so now there thinking its a potassium ion channel disorder? which would of been why he was always tensing up and his eye muscles got stuck, can anybody tell me if they know anymore about this or know anyone it has happened to? because his doctor at yorkhill said he has never had a case like this? thanks

Submitted by rebecca foster on

My daughter is 3 and was diagnosed with epilepsy at 2. She has been seizure free for almost 5 months. She takes trileptal and it took a while to get the dosage right for her. She has partial complex seizures. What helped the doctor diagnose her was an EEG and video I took on my cell phone of her episode. When your child has an episode please record it because it can help and save time in the diagnosing process.

Submitted by Bre on

Hello my son was diagnosed with type of epilepsy this week, when he cries he would pass out and this first happend at the age of 8 monthes he is now 4. After many visits to my GP he finallly referd him to the hospital were he had a EEG and we had some of our questions answerd.
The only thing that is different is that when my son has his seizures he goes flopy and passess out and it only happens when he cries, if anyone else has a child who goes through this please get in touch as i have no information on this type of epilepsy at all.

Submitted by angela on

Hi,
My son is 6 months old and he has recently been having what I think is fits when he is asleep I know when it is going to happen as he tries to sit up feeling a little bit stiff and then he starts shaking and his eyes also start to flicker and was wondering if there is anyone that can tell me if this is a possible sign of epilepsy thanks Nadine

Submitted by Nadine on

Hi Nadine,

It can be really difficult to diagnose epilepsy in babies, so you really need to take him to your doctor. If you can get some video footage of what happens to him that would be good. If not, it’s worth writing down exactly what you see, so that the doctor gets as much information as possible to help them decide what to do next.

If you are in the UK, it’s usual for someone who has had a possible seizure to be referred to an epilepsy specialist within a few weeks.

Kathy
Advice and Information Services

Submitted by Kathy@Epilepsy ... on

We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.

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