Epilepsy in newborn babies
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Last updated 18 Jul 2006, review date due 18 Jul 2010
What causes epilepsy in newborn babies?
There are many different causes of seizures in newborn babies and in the first six months of life. In very premature babies, the most common causes are a reduced blood and oxygen flow to the brain, and bleeding into the brain. Other causes include infections such as meningitis, low blood sugar or calcium, poor development of the brain and rarely, problems with the metabolism. In some cases, the seizures may be due to a faulty gene or chromosome. In other cases no cause can be found.
See also: What is epilepsy?
Types of seizures
Seizures in newborn babies are often difficult to recognise. This is because the immature brain of a very young child is unable to produce the more obvious seizures that can be seen in older children. In a newborn baby seizures may be very subtle and consist simply of changes in breathing patterns, movements of the eyelids or lips or bicycling movements of the limbs. They may also consist of brief jerks or episodes of stiffening of the body and limbs. The jerks are called myoclonic or clonic seizures and the episodes of stiffening are called tonic seizures, or, sometimes, spasms.
More information about different types of seizures
Diagnosis
It is important that any baby who is suspected of having seizures is referred to a specialist, who may arrange for diagnostic tests. One of the most commonly performed tests is the electroencephalogram (EEG). While the EEG is not a conclusive test for epilepsy, it can be very useful in detecting subtle seizures, and can also provide information about specific seizure types. It is important that the EEG of a newborn baby is interpreted by someone who specialises in this age group. This is because the brainwave patterns and seizures are often very different to those in older children and adults.
Treatment
There is a large range of anti-epileptic medication currently available and new ones continue to be developed. However, one of the older drugs, phenobarbital, seems to be particularly useful in treating seizures in babies; other drugs such as carbamazepine or phenytoin may also be effective. Ultimately, the choice of medication will depend on the child’s seizure type, the age when the epilepsy began, the cause of the epilepsy, if known, and the likely outcome of that particular type of epilepsy.
Outlook
Many parents become frustrated as they feel that doctors give them little information about how their child will develop and whether the epilepsy will ever go away. This frustration is understandable, but the lack of information may simply be due to the fact that the doctors themselves do not always know what will happen in the future.
One of the things parents may worry about is whether their child’s intellectual abilities will be affected by epilepsy. Many children with epilepsy will develop with the same range of intellectual abilities as children without the condition. However, where the epilepsy is caused by damage to the brain, this damage can, in some cases, also cause learning disabilities.
In the newborn period it is not always possible to predict what the outcome for each child will be. In some cases it is only when particular development milestones are reached, or not reached, that the doctors can try to predict what the future may hold for that child. Ultimately, the outlook for the future, both in terms of general development and future epilepsy, depends on the nature and, most importantly, on the underlying cause of the child’s epilepsy.
Epilepsy Action has fact sheets about some types of childhood epilepsy. Please contact the Epilepsy Helpline, freephone 0808 800 5050 (UK), or helpline@epilepsy.org.uk
For the less common types of epilepsy the UK organisation Contact a Family may be able to provide information on self-help groups for children with specific conditions.
See also: Parents’ guide to epilepsy
We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.
Epilepsy advice and information A to Z
- What is epilepsy?
- Children
- Depression
- Disability Discrimination Act (UK)
- Driving
- Education
- Employment
- Entitlements for people with epilepsy in England
- Entitlements for people with epilepsy in Wales
- Epilepsy and caring for children: a comprehensive guide
- Epilepsy and learning disabilities
- Epilepsy in later life
- Epilepsy information for prisons
- Getting a diagnosis
- Identity jewellery
- Inheritance
- Living with dificult to control epilepsy
- Me and my dad
- Memory
- Men and Epilepsy
- Mobile phones and epilepsy
- Osteoporosis, osteomalacia and epilepsy
- Photosensitive epilepsy
- Safety
- Seizures
- Sports and leisure
- Stress and epilepsy
- Sudden unexpected death in epilepsy (SUDEP)
- Swine flu and epilepsy
- Syndromes
- Travel abroad
- Treatment
- Women and epilepsy
- Young people and epilepsy
- Epilepsy Action and the Information Standard
- The Epilepsies: You, Epilepsy and the NICE Guideline
- Epilepsy Action Information Reviewers (EAIRs)
- Technical editing/writing and copyright
Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Txt msg: 07797 805 390 info







Comments
Hello Rebecca,
Speak with your neurologist regarding a referral to a dietician for the ketogenic diet. Our son (9 months old) started having seizures at 6 months of age. He has been on the keto diet for 3 months with no meds and is seizure free!! Through prayer and this miracle diet we beleive our son has been healed!
Dear Rebecca,
Your description sounds a lot like my little sister struggle with epilepsy. She is now 26 yrs old.
She first had a seizure at age 5 after a high fever, was later treated with phenobarbital but no episodes occured and was off the med a couple of years later, so she was not considered as an epileptic patient. At around age 13, reaching puberty, she started having seizures again but this time it was definitely epilepsy as the episodes where there very often. She visited over half a dozen of doctors, and went on all those meds you mention. At this point seizures could occur to up to 20 a day leaving her laying down in bed without even being able to eat normally, or standing and walking by herself. This went on for a while until a Dr. (brought from heaven!) finally found the combination of meds to control her seizures: tegretol AND atemperator (magnesium valproate). Under this meds she managed to stay seizure-free for over 7 years; she has been able to live her life to the fullest and catch up on the time when she was seizing all the time. She eventually started having seizures again, (apparently her body and brain got used to the meds) but this time are very random seizures. She is now using keppra instead of tegretol, and is still using atemperator, and we expect her to have no more than 4 seizures per year.
I have to say that even though I'm not her parent, I went through hell when my little sister was at its worst having between 12 and 20 episodes a day; I thank the higher authority of the universe for healing my sister as he/she did, and thank for having Dr. Santos Viloria among us to help my sister get out of this. She may not be able to drive a car, or play video games, but she is now happily married and has two gorgeous kids who both are epilepsy free. My point here for you is to hang in there while the correct meds are found for your kid, because I can assure you there IS a treatment out there to heal/help your kid, and also to suggest that it may not be just one or two meds that will work, but maybe a combination of meds, so make sure you explore those options with your doctors.
Blessings for your and your family.
Massiel.
Hi,
Ask your GP for a 2nd opinion and be referred to Great Ormaond Street in London. Your son is having nocturnal Seizures. My son is now ten years of age, I struggled tremensously with him and to get a definitive diagnosis. He has since had a Hemispherectomy in 2006 and although his seizures have decreased in the intensity and amount, they are now generalised. I know I have done everyrhing to give my son the quality of life he so deserves. I hope you get answers and this has been of some help to you. Kind regards, Julie x
Hi all, myself and my son were in a car accident when he was only 9wks old and 2 days latr he had his first 'episode' so they called it. I kept taking him to the doctors as he was fitting quite often and i knew it wasnt right. eventually when i changed doctors he got refferred and at 1yr old was diagnosed with focal epilepsy. He still has 3 to 8 fits every night and i am at my wits end. He is now 4yrs old on thursday and has had tegretol, carbamezapine, clonazepam, keppra, lamotrigine, and now on epilim and still fitting every night. I am shattered and cant seem to get any answers from anyone. does anyone have any ideas or suggestions to help me and my son as we are both very frustrated and tired as he has his fits at night time and only when hes sleeping. Thankyou bekxqueen
Dear Lottie,
My 6 weeks old baby had 4 Apnea attacks and has now been dianosed with Epilepsy. The signs we picked up was pulling back het whole body when upset, staring and glazing into a distance. She also had occassions where her eyes tilts back and her hand is twitchy, it was only when they wanted to discharge her with baby colic and reflux that the doctor witnessed a convulsion that he said she needs to be tested for Epilepsy. Keeping in mind, when she had her first 2 Apnea attacks she had an EEG, MRI and blood tests which shown no sign of Epilepsy.
She is still in hospital on medication, but doing much better
Request your pediatrician to do all the tests and be sure
Regards
Anri
My son Harry has just turned one. I have taken him to my local hospital several times as his limbs shake involuntarily, one leg, one arm sometimes just his lower jaw. I also sometimes look at him and his eyes have glazed over and he just isn't there. Its only now that he has been diagnoised with hydrocephalus that the hospital is taking me seriously. Do these symptons sound like epilepsy to anyone out there with a baby with this condition?
Please let me know
Many thanks
Lottie
my baby is 6 months old and is diagoinsed with epilepsy and it would be useful to talk more about it..
my grandson is at present being treated and tested for epilepsy he is 7 months old and any info is helpfull as none of the family have been in contact with this before