Epilepsy in newborn babies

What causes epilepsy in newborn babies?

There are many different causes of seizures in newborn babies and in the first six months of life. In very premature babies, the most common causes are a reduced blood and oxygen flow to the brain, and bleeding into the brain. Other causes include infections such as meningitis, low blood sugar or calcium, poor development of the brain and rarely, problems with the metabolism. In some cases, the seizures may be due to a faulty gene or chromosome. In other cases no cause can be found.

See also: What is epilepsy? 

Types of seizures

Seizures in newborn babies are often difficult to recognise. This is because the immature brain of a very young child is unable to produce the more obvious seizures that can be seen in older children. In a newborn baby seizures may be very subtle and consist simply of changes in breathing patterns, movements of the eyelids or lips or bicycling movements of the limbs. They may also consist of brief jerks or episodes of stiffening of the body and limbs. The jerks are called myoclonic or clonic seizures and the episodes of stiffening are called tonic seizures, or, sometimes, spasms.

More information about different types of seizures

Diagnosis

It is important that any baby who is suspected of having seizures is referred to a specialist, who may arrange for diagnostic tests. One of the most commonly performed tests is the electroencephalogram (EEG). While the EEG is not a conclusive test for epilepsy, it can be very useful in detecting subtle seizures, and can also provide information about specific seizure types. It is important that the EEG of a newborn baby is interpreted by someone who specialises in this age group. This is because the brainwave patterns and seizures are often very different to those in older children and adults. 

Treatment

There is a large range of anti-epileptic medication currently available and new ones continue to be developed. However, one of the older drugs, phenobarbital, seems to be particularly useful in treating seizures in babies; other drugs such as carbamazepine or phenytoin may also be effective. Ultimately, the choice of medication will depend on the child’s seizure type, the age when the epilepsy began, the cause of the epilepsy, if known, and the likely outcome of that particular type of epilepsy.

Outlook

Many parents become frustrated as they feel that doctors give them little information about how their child will develop and whether the epilepsy will ever go away. This frustration is understandable, but the lack of information may simply be due to the fact that the doctors themselves do not always know what will happen in the future.

One of the things parents may worry about is whether their child’s intellectual abilities will be affected by epilepsy. Many children with epilepsy will develop with the same range of intellectual abilities as children without the condition. However, where the epilepsy is caused by damage to the brain, this damage can, in some cases, also cause learning disabilities.

In the newborn period it is not always possible to predict what the outcome for each child will be. In some cases it is only when particular development milestones are reached, or not reached, that the doctors can try to predict what the future may hold for that child. Ultimately, the outlook for the future, both in terms of general development and future epilepsy, depends on the nature and, most importantly, on the underlying cause of the child’s epilepsy.

Epilepsy Action has fact sheets about some types of childhood epilepsy. Please contact the Epilepsy Helpline, freephone 0808 800 5050 (UK), or helpline@epilepsy.org.uk

For the less common types of epilepsy the UK organisation Contact a Family may be able to provide information on self-help groups for children with specific conditions.

See also: Parents’ guide to epilepsy


We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.

Comments

my grandson is at present being treated and tested for epilepsy he is 7 months old and any info is helpfull as none of the family have been in contact with this before

my baby is 6 months old and is diagoinsed with epilepsy and it would be useful to talk more about it..

My son Harry has just turned one. I have taken him to my local hospital several times as his limbs shake involuntarily, one leg, one arm sometimes just his lower jaw. I also sometimes look at him and his eyes have glazed over and he just isn't there. Its only now that he has been diagnoised with hydrocephalus that the hospital is taking me seriously. Do these symptons sound like epilepsy to anyone out there with a baby with this condition?

Please let me know

Many thanks
Lottie

Dear Lottie,

My 6 weeks old baby had 4 Apnea attacks and has now been dianosed with Epilepsy. The signs we picked up was pulling back het whole body when upset, staring and glazing into a distance. She also had occassions where her eyes tilts back and her hand is twitchy, it was only when they wanted to discharge her with baby colic and reflux that the doctor witnessed a convulsion that he said she needs to be tested for Epilepsy. Keeping in mind, when she had her first 2 Apnea attacks she had an EEG, MRI and blood tests which shown no sign of Epilepsy.

She is still in hospital on medication, but doing much better

Request your pediatrician to do all the tests and be sure

Regards
Anri

Hi all, myself and my son were in a car accident when he was only 9wks old and 2 days latr he had his first 'episode' so they called it. I kept taking him to the doctors as he was fitting quite often and i knew it wasnt right. eventually when i changed doctors he got refferred and at 1yr old was diagnosed with focal epilepsy. He still has 3 to 8 fits every night and i am at my wits end. He is now 4yrs old on thursday and has had tegretol, carbamezapine, clonazepam, keppra, lamotrigine, and now on epilim and still fitting every night. I am shattered and cant seem to get any answers from anyone. does anyone have any ideas or suggestions to help me and my son as we are both very frustrated and tired as he has his fits at night time and only when hes sleeping. Thankyou bekxqueen