Visiting your doctor
Last updated 16 Nov 2011, review date due 16 Mar 2013
These pages are about using the National Health Service in the UK. If you are looking for information about using the health service in another country, please contact your local epilepsy organisation.
Introduction
This page is a guide to questions you may wish to ask the doctor that you see about your epilepsy. This might be your family doctor, epilepsy specialist, or epilepsy specialist nurse.
In the UK, the National Institute for Health and Clinical Excellence (NICE) Guideline suggests that if you have epilepsy, you should have a meeting with a health professional, a doctor or nurse, at least once a year, whether or not you are experiencing any particular problems. This is an opportunity to make sure that you are getting the best treatment for your epilepsy.
Understanding your own epilepsy and monitoring your situation, for example by keeping a seizure diary, will give you the confidence to ask questions if necessary.
- More information about keeping a seizure diary
Preparing for your appointment
You may find it helpful to organise your thoughts before you go, for example by making brief notes or a list of questions.
Be persistent in asking your questions until you fully understand the explanation.
You might find it helpful for a close relative or friend to go with you. They can offer support and may also be able to help with information such as describing exactly what happens when you have a seizure.
If there is not enough time to cover all your questions, ask for another appointment.
Questions for your doctor
Here are some questions which you may wish to ask your doctor.
- Why do you think I have developed epilepsy now?
- Has my epilepsy got a particular name?
- What is the future outlook for my epilepsy?
- How does the medication work?
- When should I take it?
- Must I take it exactly as stated?
- What happens if I miss a dose, vomit or have diarrhoea?
- What are the possible side effects of my medication?
- Which side effects are important to see you about?
- What will happen if my medication does not work?
- Can you explain how the driving regulations will affect me?
Contact Epilepsy Action using the Email Helpline or if you live in the UK, by phoning the Freephone Helpline on 0808 800 5050.
We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.
- Information for...
- Information on...
- Fundraise
- Donate
- Membership
- Campaigns
- Take epilepsy action campaign
- Automatic substitution of anti-epileptic drugs
- National commissioning of paediatric epilepsy surgery
- National Epilepsy Week
- Save our Sapphires, protecting all epilepsy specialist nurse posts
- Women's campaigns
- Epilepsy in England: time for change
- 'Epilepsy Aware' scheme for GP practices and pharmacies
- Campaign Supporters' Group
- Surveys
- News
- Research
- Our services
- Forum
- About us
Epilepsy advice and information
- What is epilepsy?
- Caring for a baby or young child when you have epilepsy: a detailed guide
- Children
- Depression and epilepsy
- Developing epilepsy in later life
- Driving and epilepsy
- Education
- Entitlements and benefits for people with epilepsy
- Epilepsy and learning disabilities
- Epilepsy and Travel abroad
- Epilepsy information for prisons
- Epilepsy, osteoporosis and osteomalacia
- Epilepsy: diagnosis, treatment and healthcare in the UK
- Diagnosing epilepsy
- Anti-epileptic drug treatment
- Other ways of treating epilepsy
- Effects of other things on epilepsy treatment
- Sudden unexpected death in epilepsy
- Getting healthcare in the UK
- Getting help if you are unhappy with your care or treatment in the UK
- Complementary Treatment
- Epilepsy and Surgery
- Ketogenic Diet
- Visiting your doctor
- Epilepsy medicines available in the United Kingdom
- Getting the same version of your anti-epileptic drugs every time
- St John's Wort
- The Mozart Effect
- Epileptic seizures explained
- Flu and epilepsy
- Identity jewellery
- Inheritance
- Me and my dad
- Memory
- Mobile phones and epilepsy
- Photosensitive epilepsy
- Safety advice for people with epilepsy
- Sports and leisure
- Stress and epilepsy
- Sudden unexpected death in epilepsy (SUDEP)
- Syndromes
- The Disability Discrimination Act
- The Equality Act and epilepsy
- Vagus nerve stimulation therapy in epilepsy
- Work and epilepsy
- Women and epilepsy
- Young people and epilepsy
- Epilepsy Action and the Information Standard
- The Epilepsies: You, Epilepsy and the NICE Guideline
- Epilepsy Action Information Reviewers (EAIRs)
- Technical editing/writing and copyright
Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Twitter: epilepsyadvice
- Txt msg: 0753 741 0044 info







