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Things that trigger seizures

Some things make seizures more likely for some people with epilepsy. These are often referred to as ‘triggers’. Triggers are things like stress, not sleeping well and drinking too much alcohol. Some people say they have more seizures if they miss meals. Not taking your epilepsy medicine is another common trigger. A very small number of people with epilepsy have seizures triggered by lights that flash or flicker. Avoiding triggers can stop you having seizures.

This information has been produced under the terms of The Information Standard.

  • Updated January 2012
    To be reviewed January 2014

Comments: read the 29 comments or add yours

Comments

My son has been diagnosed with epilepsy a year ago. He is now 4 y/o. He is also autistic so communication is an issue and I have to try to get information elsewhere. He has had seizures while playing with his Thomas the engine so I was wondering if the repetitive noise or movement of those trains would be a trigger. Has anyone had seizures caused by it?

Submitted by Simone on

Simone,
We have a now 11 yr old with seizures and autism. From the information shared about your son and his seizures, maybe he is overstimulated by the trains? we find when our son gets too excited/over stimulated, the tendency is definitely there for more seizure activity! An example to share: while he's in a waterpark and we have to take him out for a snack break he "comes out of his element" then the seizures flare up! It's like he gets "lost in his own world" and when he's taken back to reality, the seizures return with him....maybe do a test like let him play with trains for 5 minutes, have him take a break and return to trains, maybe a pattern will develop and you can get to him before the seizures flare up. hope this makes sense

Submitted by jackie on

Hi I suffer from epilepsy, but I can not remember what type it is. The triggers are stress and extreme heat. Some people do not know how to shut up though which can really annoy me. GET A LIFE PEOPLE!!!!!!!!!!!!

Submitted by Kyle Offord on

Hi, my brother, 19 yrs old. * i dont know how to begin* each time before his fit begins, he will have jerking on his muscles all over his body which includes making noise.

so, we laid him down on the mattress sideways, the moment he faints, his fit occur and just like any other seizure, he will have white bubbles coming out from his mouth, whole body jerking and making sounds. it lasted for couple of minutes. once, his seizure is over, he will fall into a deep sleep. the very next day, he will complain about his backache due to the seizure.

previously he consumed epilim 200 then he changed to Keppra and then back to epilim 300. we've consulted the doctors and they said that epilim 300 is the best option. however, the first day he consume epilim, his seizure came back and the dr told us that it was normal.

my question is does switching pills arouse his seizure? is there anything to do with diet? facing the computer for long time?

thanks

Submitted by dani on

Hi Dani

Certainly switching anti-epileptic drugs (AEDs) can have an effect on your seizure control. It is important to reduce and introduce anti-epileptic drugs slowly. Unfortunately this means someone may have more seizures while this is happening. Hopefully your brother’s AEDs will soon be at a level which will give him seizure control.

People with epilepsy usually find that regular meals can help with controlling seizures.

Facing the computer for a long time is only a problem if someone has photosensitive epilepsy

I really hope this helps. Feel free to email or ring the Helpline Freephone 0800 800 5050 if you are in the UK, if you would like to talk through this more.

Cherry
Advice and Information Services

Submitted by Cherry@Epilepsy... on

I have a few triggers that I have found that bring on my seizures. Once I am out of my normal routine I seem to have a seizure. Large amounts of soda and lack of sleep. I no longer drive while my wife and I travel because I seem to always have a seizure when I am away from home and out of my normal routine. Giving up driving on the highway was hard but it is better than have a seizure and crashing and hurting myself or anyone else.

Submitted by Rob on

My 6 year old son has now had 3 possible seizure. The first 2 times he complained of head aches, then he became non responsive ( lights where on but nobody home) could not look at me or talk, then he vomited huge amounts of food (it was like a continuous long sausage). Once he came around he was confused and very sleepy (all up about 15min). The 3rd time he started complaining that he could not see and was rubbing his eyes, become confused and unable to focus or talk followed by vomiting again, confusion and tired. He does not recall what happens. Is this epilepsy as I have had no dealings with epilepsy before now. I'm so scared that he will be missed diagnosed and just put on medication??????????????
Dose any know if food can trigger seizures as 2 twice during my sons seizure he had cheese. He has eaten different cheese with no seizures, can certain cheese do this?????
We are now waiting for a referal to a neurologist.

Submitted by Elisa on

Hi, yes my son's triggers are too much gluten, cheese, aspartame, lack of sleep and the weird light/sound effect you get in some public indoor swimming pools.

We also held off from medicating and ultimately my son's seizures are caused by another condition - all the tests do take time but I'm glad we held off because it meant nothing was masked.

We also saw a kinesiologist and she advised sheep's cheese would be ok, but not goat's - although I believe that is not always the case.

Hope this was helpful
ATB
Shell x

Submitted by Shell on

Im a high schooler and i have grand mal seizures for about 1-2 years now, i took the tests and my body was 100% healthy, just a couple days ago i had a seizure that people say it lasted for about 15-20 minutes, i would really like info of if this is normal or something im actually getting scared for once...

Submitted by Austin R. Miracle on

Hi Austin

I’m not surprised you’re getting scared – that sounds like a long
seizure
. Are you being treated by an epilepsy specialist? If you are, they should have told you that having clear tests doesn’t mean you don’t have epilepsy. It just means that nothing abnormal has shown up on the tests. If you are not being treated by an epilepsy specialist, it would be worth asking for another opinion from a suitably qualified doctor. If you are not in the UK, your local epilepsy organisationshould be able to tell you where there are epilepsy doctors in your area.

Many people with epilepsy are very healthy. It’s just that they have a brief disruption in the way their brain works from time to time, causing them to have seizures. With the right treatment, seven out of every 10 people will have their seizures controlled.

Have a look at the diagnosis section of our website, as it will give you some information to discuss with your doctors. You could also email the Epilepsy Helpline if you want to discuss this further.

Kathy
Advice and Information Team

Submitted by Kathy@Epilepsy ... on

Oh yes, this is just so much fun. At 58 I had my first seizure, a grand mall. At 2 AM my family heard a loud thump,and found me on the floor, I had hit my head, and was in a full fledged grand mall seizure, 911 was called due to a previous injury that could cause a major problem trying to deal with it, or move me, ect., ect., ect. Once the paramedics got there I guess I decked one of them while they were trying to get me ready for transport, I am led to believe that I really nailed the poor guy, Oh yes, life is wonderful. I have no memory of any of it.
I have since had about 6 more seizures, and have no recolection of any of them, the last 6, or the first one. I have been working with a neurologist who speallizes in the field, and he has told me there is no evidence of any problems on the scans, eegs, ect. There are no triggers that I know of, there is no aura prior, and no indiction that I am about to have one. How do you deal with this, especially starting at age 58. I really don't need this in my life, not with the other major health problems I have. I need answers, lots of them, and soon... I've about had it.

Submitted by Rdean on
Hi Rdean Thank you for your comments. It certainly isn’t easy having yet another condition to deal with – particularly one that is so unpredictable. It’s good that there’s nothing showing up on the scans and EEGs, but that can also be so frustrating. However, having clear tests doesn’t mean you don’t have epilepsy, just that, if you do, there’s no known cause for it. It’s not unusual to be confused after an epileptic seizure. This can mean that you see things differently than you normally would. So, for instance, if someone is trying to help you, you could interprete their actions as threatening, and react in an inappropriate way. That could be what happened when you hurt the paramedic. Memory problems are also common following a seizure. You mention you have other health problems. Does your neurologist think there is any link between these and the seizures you have been having? Have you been given any treatment for the seizures? If your neurologist isn’t able to help you any further, you could consider seeking a second opinion. If you are in the UK, we can try to tell you where your nearest epilepsy specialist is. If you’re in another country, have a look at our website for details of your nearest epilepsy association. If you want to discuss anything further, you can email the Epilepsy Helpline or call the Epilepsy Helpline freephone 0808 800 5050. Hope this helps. Kathy, Epilepsy Action advice and information services
Submitted by Kathy@Epilepsy ... on

I developed a brain tumour related epilepsy AFTER the removal of a large tumour of a type which is highly correlated with developing epileptic seizures at some time after the tumour's removal in people who never had them before. I cannot tolerate anti-epileptic drugs, which I understand is true of at least 25% of people with epileptic seizures. I eat a healthy balanced diet, primarily organic and haven't eaten anything with food additives, etc in decades. I can't help thinking there must be something else I could be doing. Believe me, the obvious stuff, I've tried or I'm already doing it. (Oh, *&~%!!!! some kids are shrieking outside.)

My seizures are simple partial seizures of the frontal lobe. I don't suffer altered or lost consciousness but I lose motor function control and can't speak or breathe properly, often sounding like a barking seal while twitching wildly. I remember every single detail before, during and after. If one more person says "Calm down, lady" to me.... I try to get to a quiet place as soon as I sense it might be coming, but that's not always possible and often I have no warning at all.

The seizures are triggered by sounds of various frequencies, rhythms and volumes. I'd like to know what other people with sound- triggered seizures do because noise-attenuating earplugs don't block all frequencies and it's not recommended to wear them all the time. They help with some of it, but not all.

It's impossible to avoid sound. Moving to the middle of nowhere is not an option. I try to avoid the High Street and then find scaffolding being erected all along the back streets, or road works. I try to walk in a quiet place and some busker has set up a massive amplifier. There's blasting music and construction noise almost everywhere you go these days. The other day I had three bad seizures in 40 minutes,the first one triggered by a squealing 2-year-old with a piercing voice at a place where I had to do an errand. When she began banging on the counter with a metal stapler and her mother ignored my pleas to take it away from her, I went into a seizure and got the usual judgemental looks until people realized what was going on (I carry a letter from my doctor but not always coordinated enough to get it out of my handbag. I do NOT need medical attention - I just need quiet. - went to a quieter safe place where they know me and someone suddenly turned on a noisy electrical machine like a loud drill - went right back into a worse seizure...

I have no intention of avoiding life, sitting home wrapped in cotton wool because of these things, but just getting to the quiet places I enjoy and trying to participate in my normal activities has become so fraught. I'm always having to walk out of places because it's too loud. The seizures are so exhausting I feel ill half the time.

Anybody else have seizures triggered by sounds? How do people manage?

Submitted by Susan on

Hi Susan,

Have a look at this link.
http://epilepsyfoundation.ning.com/forum/topics/seizures-induced-by-musi...
It is from someone who like you has seizures as a result of noise. Apparently ther are quite a few who have music or specific sounds as a trigger .

Hope it is of some use and that you may find a way to reduce or resolve it.

Regards, Susan

Submitted by Susan Brown on

Hello, I too have seizures that are triggered by sound among other things. I know this may sound drastic but I moved to a place in a smaller town that had less traffic and in a much quieter neighborhood. There are some places I can't go to at all. (Concerts, sometimes supermarket on busy days, etc.) I always use noise cancelling ear plugs and if your ears are sensitive, you can purchase the best hoise cancelling head phones you can find. It doesn't completely rid your environment of noise, but it will lessen the chance of my seizures being triggered. If I wake in the morning and feel that I haven't rested at all even when I have, I choose not to make that a day where errrands are ran. Some days when I absolutely have to run errands, I have some of my pills cuts down into quarters and I will take extra under the direction of my doctor. That is not something anyone should do without approval or the direction of a neurologist. I am on such a low dose of Trileptal that a quarter is such an insignificant amount causing minimal drowsiness.

Unfortunately, you can only try your hardest to block some of the noise. It truly sounds like you live in a very populated area and that just didn't work well for me so I had to change that aspect of my life. I do wear a medical bracelet and I would recommend you get one and wear it if you don't have one. They can be quite light and fashionable if that is a concern.

The noise around you won't completely stop and unfortunately others who aren't overstimulated by noise may not even have common sense or courteousy to try to keep their children from screaming, but you can equip yourself as best as possible with the ear plugs or ear phones and if you can, move to a quieter area. Small town where most of the town operates more quietly. Believe me, those places exist.

Good luck with your Epilepsy and may the good LORD direct your paths. He has a watchful hand over all of us and truly has given me peace where I thought it couldn't exist.

Submitted by Laurne on

I have suffered from Epilepsy for the previous twelve years following a criminal assault when I had my head slammed in the car door. The seizures got worse and I moved back to Coventry to a flat next to my cousin who is also my carer. I have a young couple who have no respect for my condition and go out to work at 4.45am every morning, crashing and stamping around disturbing my sleep, and with the stress this causes affects my seizures. Everyday I have to try and adjust my sleep pattern as they have no respect for my condition, and following the seizures the stress and anxiety this matter is causing is also affect my depression and other medical conditions.

Why cant these people show some respect for their neighbours. To avoid disturbing them and their sleep pattern I use cordless headphones to watch the TV and use my stereo, and I can still hear them when they are around as I dont have the sound up too loud after 9.00pm.

I am not a mental case, I just like many others are unfortunate to enough to suffer this through unforeseen circumstances. It would be wonderful to be able to get out and take a salaried position, but even when the interview is going well, mention the epilepsy and the tone of the interview changes, many say due to the requirements of the Health & Safety requirements, but look for voluntary positions and they are everywhere.

But again I have no faith in the Chief Consultants regarding the epilepsy reports that they prepare. I went to see a specialist (?) in Wolverhampton to get a report for my solicitors. This report costing over £700 had to be returned as the first page stated that I had my "hand" slammed in the car door, by the third party and not my "head". Epilepsy is a terrible unseen medical problem, like migraineare,no broken bones or plasters, why cant we be treated with the respect that we deserve.

Well, it has just passed 2.00pm so perhaps I ought to get some sleep now before my sleep pattern is disturbed again during the night, and I enter the downward spiral again.

Submitted by Paul Rutherford on

I am shocked that this article would incorrectly state that there is no evidence that certain foods can be a trigger for people with epilepsy. Aspartame is a very common trigger for people with epilepsy, if you ask many people, you will find this to be the case. It is in my case. The FSA said there was no evidence that aspartame is a seizure trigger in emails from them. I offered to prove it was a trigger for me with proof from my GP and neurologists. However, the FSA then decided to ignore the emails. the evidence IS out there, I doubt very much I am the first person to offer such proof, it is just that nobody wants to "bad mouth" the aspartame companies.

Submitted by David on

Hi David,
Thanks for this feedback. We are looking into latest research and will post our findings shortly.

Cherry

Advice and Information Team

Submitted by Cherry@Epilepsy... on

I'm 25 & Just found out i have epilepsy my neurologist has put me on 500mg keppra twice a day but am 2 scared 2 take it as I've heard this drug can cause more seizures. I had a ctscan it came back clear now am waitin 2 have a mri & eeg done. I know nothing about epilepsy & I'm really scared. My last seizure was a bad 1 i was in the shower then i came 2 in the bottom of it with blood coming out of my mouth . Its effecting my life so much i never want 2 leave the house as I'm scared of having a seizure in public & being judged. Please does any1 have any advice they can give me ????????

Submitted by samantha on

Hi Samantha

I just started taking Keppra about 5 weeks ago. I am only on 250 mg twice a day. So far it's made me tired but that's getting better. I have not experienced any rage, depression, anxiety or anything like that, even though I have a long history of depression. Also, my thoughts are a lot more streamlined it seems, I don't trip over my words as much when I speak and don't vague out as much which is definitely positive. But Keppra can be a great drug for some people and an unpleasant drug for others, you just have to try it, it's the only way to find out.

It hasn't cause more seizures in me, but at least I only have auras now, instead of an aura following a generalised seizure.

Just give it a try and if it's horrible, they will wean you off.

Submitted by Vanessa on

I was diagnosed with epilepsy and given a prescription a few years ago and I was also scared to take it. I kept my pills under the bathroom sink and went on with life. Then one day while driving to the grocery store I had a seizure and lost consciousness. I came to in the emergency room with the paramedics. My gf who was passenger in the car saw me slump over and she pulled the car off to the side, a passerby phoned 911. I realized that day that I needed the medication. Unfortunately I lost my drivers license for a while year after that which was a really rough thing to happen to me, it affected all aspects of my life. Perhaps if I started taking my meds when I was given them, I could have avoided that. Im also very lucky that I wasn't alone in the car that day cause it could have been really ugly. My advice is to take your medication because if this is epilepsy, it's not going to go away on its own.

Submitted by Candice on

I was diagnosed with epilepsy at age 35, now 7 years ago. My first seizure was whilst I was driving the car - I am fortunate that I always have a very definite aura and am able to get into a safe place every time. I've had 7 full sezures in total.

I've not had a full seizure for 5 years now however it's not fully under control and I still have partial seizures around every 3 weeks or so. I take oxcarbazepine (825mg daily) and lamotrogine (500mg daily) however my neurologist is considering changing it as its not 100% effective.

To all the people in this chat who have been recently diagnosed yes, its scary. Yes, it embarassing. Yes, it's frustrating to not know the cause and not be able to do anything about it. My advice is to keep talking to doctors, seek specialist help if you can and if they tell you to take medication, take it! I've not replied to a chat like this before but thank you to everyone - it helps to know we're not alone!

Submitted by Kerstie on

Hi Samantha

Fear is not an uncommon feeling when someone has been diagnosed with epilepsy. You said that you know nothing about epilepsy, or the medicines to control it, which can add to that fear. So, it’s important for you to remember that epilepsy medicines are given to try and control seizures.

The usual way is to start an epilepsy medicine is on a low dose and gradually built it up to find a dose that will control seizures. Doing it this way will lessen the possibility of you getting side effects and give your body a chance to get used to it. Some people find that they can have seizure if they are taking too much of their epilepsy medicine, or not taking enough. So, if you do decide to take Keppra, it should be monitored by your GP or neurologist, while you are increasing it.

You mentioned that your neurologist has put you on 500 mg, twice daily. This is unusual, as in the medicines prescribing guide called British National Formulary (BNF). it says that the usual starter dose of Keppra is 250 mg daily, for one to two weeks. Then to increase to 250 mg, twice daily. After that it is increased in steps of 250 mg until the right dose is found. Although, sometimes a doctor might feel that their patient would benefit from a quicker than recommended increase. You could check this with your GP or neurologist.

It must have been very frightening to wake up at the bottom of the shower. During a tonic-clonic, convulsive, seizure it’s not uncommon to bite the tongue or inside of the cheek. Was this where the blood came from? You might find it helpful to read our website information on the symptoms of tonic clonic seizures. This way you will know what to expect.

I hope you are finding your way around our website, easily, as there is lots of information on many aspects of epilepsy to be found. Many people with epilepsy have said that the more they understand their epilepsy, the more they feel in control of their situation.

If you would like to speak to others with epilepsy for support, you can do this through our forum4e. You will need to become a member to do this, but membership is free. We also have branches where people with epilepsy meet for mutual support. You can find if there’s a branch in your area on our website.

Advice and Information Team

Submitted by Rosanna@Epileps... on

Hi,my husband had a seizure in last yr march for da 1st time,came from toilet fell down, made a funny sound,with white stuff cuming out of his mouth,knocked his head ,bit his tongue,pulled very stuff,came right after a few minutes,confused,dont remember nothing very imbaresed afterwards.test done bt all fine.last nite 07032012 he had da same thing bt dis time in bed at 2am in da morning .iam very scared when dis happen as he can feel it cuming dan he calls me,bt i have no idea what to do to prevent it from happening.vey concern bt his healh as he dnt have any kids yet.please advise what i can do to help him.concern wife

Submitted by Lesley-anne on

Hi Lesley-anne

It can be frightening to watch someone you care for have a seizure. This is a normal reaction. I hope it helps you to know that people who have convulsive type seizures, called tonic-clonic seizures, don’t know what is happening to them. We have some information on first aid for seizures on our website. This also shows a video of what to do if a tonic-clonic seizure happens. Once you know what to do during a seizure, you might feel more confident when you help your husband.

Now that your husband has had another seizure it’s important for him to talk to his doctor. When more than one epileptic seizure happens, this is the time when epilepsy medicine may be discussed to try and stop the seizures.

If your husband is given epilepsy medicine and he does decide to take them, the doctor will choose one that suits his seizure types. It’s usual to start an a low dose and gradually increase it to the maintenance dose. The maintenance dose is the amount of medicine which is thought to work well at controlling seizures. We have more detailed information on treatment of epilepsy on our website.

Advice and Information Team

Submitted by Rosann@Epilepsy... on

Hi, I'm 17 years old and had my 1st seizure last month at school, I was rushed to hospital where the started me on epilim immediately they then took me to get a EEG but it was normal (by then I had epilim in my bloodstream) so I was discharged and was told it was only in my head, so my mom took me to another doctor a week later who did another EEG and saw there is abnormality. After all this I'm still weak, short of breath and get extremely light headed and every time a light flashes fast I get a extremely painful headache ... should I be worried ?

Submitted by Jikita on

Hi Jikita

Epilepsy isn’t an easy medical condition to diagnose and it can take time. So I hope your diagnosis is sorted out now.

You mentioned the symptoms that you are having and asked if you should be worried. I certainly think you should write your symptoms down for your doctor, and mention it next time you go. That includes telling the doctor about your extremely painful headaches. You shouldn’t have to put up with such pain.

There are lots of different reasons why someone might have headaches. Some people who don’t have epilepsy might find a headache starts because of flashing lights, while others have headaches as part of their seizures. So it doesn’t necessarily mean your headaches are due to epilepsy, but they could be. If you have photosensitive epilepsy (seizures due to flickering or flashing lights), the EEG would pick this up. You might remember that lights are flashed in front of your eyes, during the EEG test. So, your doctor should be able to tell you if, what they saw on the EEG results, was epileptic activity due to the lights.

You might find it helpful to read our website information on EEGs;. As you can see from this information it’s not unusual to have a normal EEG and still have epilepsy. An EEG only records what is happening to the brain wave patterns at the time of the test. So, it can be different on two separate days.

Advice and Information Team

 

Submitted by Rosanna@Epileps... on

Hey so I am 18 years old and had my first seizure when I was 16.My parents said that it lasted for about 1 min or a little less. Anyway so the main reasons as to why it happened was because I was in my room no lights on and I had my laptop placed on my stomach and like spent too many hours on it. The other reason was that I wanted to lose weight and I was on a diet ( even if I wanted to eat a candy I wouldn't ). I was stressed because we also had a test coming up , um I had an energy drink and sime time after it just happened. Like I said it lasted
for 1 min and no bubbles or drool or anything. Anyway so I had a standard EEG and the docs said it was crystal clear. The seizure occurred in february but in july it happened again only this time it lasted for a few seconds. The reasons were pretty. Much the same diet playing a video game in a dark room but this time it was really warm outside and I was kind of tired and all of these combined together triggered my second and last one seizure. I went to the docs again and this time I did a sleep deprived EEG again it came out crystal clear . She told me that I had to be careful for at least 2 years and not to drink or smoke ( Iive in Sweden)and stay up late and eventhough nothing happened during those 2 years I still wake up sometimes thinking that something might have happened whilst I was sleeping I talked to my doc and she reassurred me by telling me that it is psychological and that it was normall to feel like that. PS IN all the check ups I had during those 2 years I did tests with my doc like strenght or reflex etc

Submitted by Lena on

i used to have seizures but not had them in 9 years and now I am 17 years old .

Submitted by kendall jackson on

We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.

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