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Visiting your doctor

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Introduction

This page is a guide to questions you may wish to ask the doctor that you see about your epilepsy. This might be your family doctor, epilepsy specialist, or epilepsy specialist nurse.

In the UK, the National Institute for Health and Clinical Excellence (NICE) Guideline suggests that if you have epilepsy, you should have a meeting with a health professional, a doctor or nurse, at least once a year, whether or not you are experiencing any particular problems. This is an opportunity to make sure that you are getting the best treatment for your epilepsy. 

Understanding your own epilepsy and monitoring your situation, for example by keeping a seizure diary, will give you the confidence to ask questions if necessary.

  

Preparing for your appointment

You may find it helpful to organise your thoughts before you go, for example by making brief notes or a list of questions.

Be persistent in asking your questions until you fully understand the explanation.

You might find it helpful for a close relative or friend to go with you. They can offer support and may also be able to help with information such as describing exactly what happens when you have a seizure.

If there is not enough time to cover all your questions, ask for another appointment.

  

Questions for your doctor

  • Here are some questions which you may wish to ask your doctor.
  • Why do you think I have developed epilepsy now?
  • Has my epilepsy got a particular name?
  • What is the future outlook for my epilepsy?
  • How does the medication work?
  • When should I take it?
  • Must I take it exactly as stated?
  • What happens if I miss a dose, vomit or have diarrhoea?
  • What are the possible side effects of my medication?
  • Which side effects are important to see you about?
  • What will happen if my medication does not work?
  • Can you explain how the driving regulations will affect me?

Contact Epilepsy Action using the Email Helpline or if you live in the UK, by phoning the Freephone Helpline on 0808 800 5050.

11 July 2006


We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.
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Comments

My experience with regards seeing your doctor would be to ensure that you see an actual specialist once every three years or so as well to check up to date medication and so on. My reasons for suggesting this are that after relying on my (well meaning!) G.P I ended up taking ineffectual AED's for years!! and it was my recent specialist who pointed this out to me and the 'haze' that I had been living in due to these drugs had been totally unnecessary. Therefore, with all due respect to our G.P's see a specialist for your own peace of mind - health is too important!

Submitted by Pedro on 13 July, 2008 - 13:16.