I am lucky in that having epilepsy has never stopped me from having a family, or a job, or doing most things I’ve wanted to do. However, the downside has been that in general, I have had to question doctors and hospital staff about any treatment I have received, reminding them that I take medication for epilepsy. There seems to be a great lack of knowledge of the medication and its effect on other drugs.
For example, the drug I take for my epilepsy does not suit the medicine I need for an under active thyroid and its taken quite a while to sort out a good dose for me.
There needs to be more research done on women and epilepsy drugs. I know others, who like me, have had problems through being prescribed the pill, HRT etc with little regard being given to side effects we might have.
If you’re a woman with epilepsy you have to learn to ask questions and not be fobbed off.
We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.
- Information for...
- Information on...
- Fundraise
- Donate
- Membership
- Campaigns
- Take epilepsy action campaign
- Automatic substitution of anti-epileptic drugs
- National commissioning of paediatric epilepsy surgery
- National Epilepsy Week
- Save our Sapphires, protecting all epilepsy specialist nurse posts
- Women's campaigns
- Epilepsy in England: time for change
- 'Epilepsy Aware' scheme for GP practices and pharmacies
- Campaign Supporters' Group
- Surveys
- News
- Research
- Our services
- Forum
- About us
Campaigns
- National commissioning of paediatric epilepsy surgery
- Save our Sapphires, protecting all epilepsy specialist nurse posts
- Automatic substitution of anti-epileptic drugs
- Women's campaigns
- A better deal for neurology - support our campaign for a national neurology strategy
- National Epilepsy Week 2012
- Take epilepsy action campaign
- 'Epilepsy Aware' scheme for GP practices and pharmacies
- 'Epilepsy Aware' scheme for beauty therapists
- Previous campaigns
- Campaign Supporters' Group
- Consultation responses
- How Do I Lobby For Better Epilepsy Services?
- MPs to debate epilepsy related death
- Surveys
Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Twitter: epilepsyadvice
- Txt msg: 0753 741 0044 info







