The word epilepsy has a power beyond belief.
When I was diagnosed eleven years ago, my life changed completely.
I now had something shameful, something to be kept secret, something not mentioned, let alone discussed. I was alone with this thing and very frightened. I lost my job and there was no one to talk to. The only “advice” I got was a nurse who casually informed me that having children was now obviously out of the question; a woman with epilepsy would not be allowed to look after a baby. I believed her.
Thankfully some progress has been made, but myths still abound. My hope is the British Epilepsy Association’s vision – acceptance and understanding, fact not fiction.
We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.
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- Take epilepsy action campaign
- Automatic substitution of anti-epileptic drugs
- National commissioning of paediatric epilepsy surgery
- National Epilepsy Week
- Save our Sapphires, protecting all epilepsy specialist nurse posts
- Women's campaigns
- Epilepsy in England: time for change
- 'Epilepsy Aware' scheme for GP practices and pharmacies
- Campaign Supporters' Group
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Campaigns
- National commissioning of paediatric epilepsy surgery
- Save our Sapphires, protecting all epilepsy specialist nurse posts
- Automatic substitution of anti-epileptic drugs
- Women's campaigns
- A better deal for neurology - support our campaign for a national neurology strategy
- National Epilepsy Week 2012
- Take epilepsy action campaign
- 'Epilepsy Aware' scheme for GP practices and pharmacies
- 'Epilepsy Aware' scheme for beauty therapists
- Previous campaigns
- Campaign Supporters' Group
- Consultation responses
- How Do I Lobby For Better Epilepsy Services?
- MPs to debate epilepsy related death
- Surveys
Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Twitter: epilepsyadvice
- Txt msg: 0753 741 0044 info






