Consensus statement in response to the recently published NICE guideline on the diagnosis and management of the epilepsies
November 2004
The Consensus Group:
- Dr Jonathan Bird (Consultant Neuropsychiatrist, Bristol and Consensus Group Chair)
- Simon Wigglesworth (Epilepsy Action, Deputy Chair)
- Jane Hanna (Epilepsy Bereaved)
- David Josephs (Joint Epilepsy Council and National Society for Epilepsy)
- Professor John Duncan (Neurologist, National Hospital for Neurology and Neurosurgery, National Society for Epilepsy and President Elect of the UK Chapter of the International League against Epilepsy),
- Dr Bill Hall (GP, Settle)
- Dr Richard Appleton, (Consultant Paediatric Neurologist, Liverpool)
- Professor Stephen Brown (Professor of Developmental Neuropsychiatry, Bodmin)
- Mel Goodwin (Epilepsy Specialist Nurse and Chair of the Epilepsy Nurses Association)
Other Consensus Supporters:
Epilepsy Clinicians:
|
Name |
Position |
Organisation |
|
Dr Hannah Cock |
Senior Lecturer & Honorary Consultant Neurologist. Clinical Neurosciences (Epilepsy Group) |
St Georges Hospital Medical School, London |
|
Dr Jayaprakash A Gosalakkal |
Consultant Paediatric Neurologist |
UHL Leicester |
|
Dr R F Massey |
Consultant Paediatrician with a special interest in Neurology) |
Hull Royal Infirmary |
|
Khalid Hamandi |
Clinical Research Fellow and Specialist Registrar |
Institute of Neurology and NSE |
|
Robert Jones |
Consultant Paediatrician |
Derriford Hospital, Plymouth |
|
Dr O'Donoghoe |
Consultant Neurologist |
Queens Medical Centre, Nottingham |
|
Paul McKee |
Neurologist |
James Cook University Hospital, Middlesbrough |
|
Dr Mark Lawden |
Consultant Neurologist |
Leicester Royal Infirmary |
|
Marcus Reuber |
Consultant Neurologist |
Royal Hallamshire Hospital, Sheffield |
|
Marian McGowan |
Consultant Paediatrician |
St George’s Hospital. London |
|
Colin Ferrie |
Consultant Paediatric Neurologist |
Leeds General Infirmary |
|
Ingram Wright |
Paediatric Neuropsychologist |
Sheffield Children's Hospital |
|
Dr Daniel Rogers |
Consultant Neuropsychiatrist |
Bristol |
|
Professor Gus A Baker |
Professor Of Clinical Neuropsychology & Consultant Clinical Neuropsychologist |
Dept of Neurological Science, Clinical Science Centre for Research and Education, Liverpool |
|
Dr PRJ Barnes |
Consultant Neurologist |
King’s College Hospital, London |
|
Dr P Cleland |
Consultant Neurologist |
Sunderland Royal Hospital |
|
Udd Wieshmann |
Consultant Neurologist |
The Walton Centre, Liverpool |
|
Dr Helen Cross |
Consultant Paediatric Neurologist |
The Hospital for Sick Children, Gt. Ormond Street |
|
Dr AEL Freeman |
Consultant Paediatrician with responsibility for District Children’s Epilepsy Services |
St Mary’s Hospital, Portsmouth |
|
C Sainsbury |
Consultant Paediatrician |
Torbay Hospital |
|
Anas Olabi |
Consultant Paediatrician with interest in Epilepsy |
Morecambe Bay NHS Trust |
|
Renée McCarter |
Consultant Clinical Neuropsychologist and Head of Neuropsychology |
North Bristol NHS Trust |
|
Alex Hamilton |
Consultant Paediatrician |
Huddersfield Royal Infirmary |
|
RDC Elwes |
Consultant Neurologist |
King’s College Hospital, London |
|
Dr Stefan Cembrowicz |
General Practitioner |
Montpelier Health Centre, Bristol |
|
Andrew Curran |
Consultant paediatric neurologist |
Alder Hey Hospital |
|
Dr Susan Duncan |
Consultant Neurologist |
Hope Hospital, Salford |
|
Dr Steve Hinder |
Consultant in Psychiatry of Learning Disability |
Solihull PCT |
|
Richard Roberts |
Reader in Medicine and Hon Consultant Neurologist |
University of Dundee and NHS Tayside |
|
Neel Kamal |
Consultant Paediatrician with interest in Neurology/Neurodisability |
The Children’s Centre, Hull |
|
M A McShane |
Consultant paediatric neurologist |
The John Radcliffe Hospital, Oxford |
|
Professor Brian G R Neville |
Professor of Childhood Epilepsy |
Neurosciences Unit, Mecklenburgh Square, London |
|
M Driver |
Consultant Paediatrician with interest in Epilepsy and Neurology |
Royal Surrey County Hospital |
|
Dr Holger Allroggen |
Consultant Neurologist |
University Hospital Coventry and Warwickshire |
|
William Whitehouse |
Senior Lecturer in Paediatric Neurology |
Queen’s Medical Centre, Nottingham |
|
Dr Milicia Mavra |
Consultant Neurologist |
Southend Hospital |
|
Colin Kennedy |
President |
British Paediatric Neurology Association |
|
Dr Kathleen Murtagh |
Consultant Community Paediatrician |
Central Suffolk PCT NHS Trust |
|
Dr Kahlid Mohamed |
Consultant paediatric neurologist |
Alder Hey Hospital, Liverpool |
|
Dr Tim J von Oertzen |
Consultant Neurologist/Epileptologist |
Atkinson Morley Regional Neuroscience Centre (Epilepsy Group) |
|
Dr Patricia Atkinson |
Consultant Paediatrician |
Crawley Hospital |
|
Dr CI Dellaportas |
Associate Specialist and Hon Lecturer in Clinical Neurology |
West London Neurosciences Centre |
|
Dr G R Lawson |
Consultant Paediatrician |
Sunderland Royal Hospital |
|
P T Goulding |
Consultant Neurologist |
St James Hospital, Leeds |
|
Dr Partha Ray |
Consultant Neurologist |
Walton Centre for Neurology, Liverpool |
|
Heather Angus-Leppan |
Consultant Neurologist |
Royal Free Hospital, London |
|
Elaine Hughes |
Consultant Paediatric Neurologist |
Guys Hospital and Kings College Hospital |
Epilepsy Specialist Nurses:
|
Name |
Position |
Organisation |
|
Gillian Greenwood |
Sapphire Nurse |
Calderdale & Huddersfield NHS Trust |
|
Joanne Hill |
Epilepsy Specialist Nurse |
Quarriers |
|
Edna O’Neill |
Sapphire Nurse LD |
Down Lisburn Trust |
|
Erica Chisanga |
Epilepsy Specialist Nurse |
Addenbrooke’s Hospital |
|
Lesley McCoy |
Sapphire Nurse |
Sunderland Royal Hospital |
|
Ena Bingham |
Epilepsy Specialist Nurse |
Royal Hospital Trust, Belfast |
|
Sue Comish |
Epilepsy Specialist Nurse |
Leigh Infirmary, Lancashire |
|
Pam Mantri |
Epilepsy Specialist Nurse |
Durham & Chester-le-Street PCT |
|
Judith H Lanfear |
Nurse Advisor in Epilepsy and Neurological Studies |
Leeds Metropolitan University |
|
Julie Pill |
Learning disability/Epilepsy nurse |
Swindon PCT |
|
Davina Beck |
Epilepsy Specialist Nurse of Children |
Royal Shrewsbury Hospital |
|
Leila Shannon |
Epilepsy Specialist Nurse |
Solihull Primary Care Trust |
|
Isobel McMichael |
Staff Nurse (Paediatric) |
United Lincoln Trust |
|
Bernie Concannon |
CNS Paediatric Epilepsy |
Birmingham Children’s Hospital |
|
Mary Codling |
Primary Health Care Liaison Nurse |
Wokingham PCT, Berkshire NHS Trust |
|
Phil Tittensoir |
Clinical Nurse Specialist – Epilepsy |
Staffordshire General Hospital |
|
Andrew Pilley |
Clinical Nurse Specialist – Epilepsy |
Barnsley PCT |
|
Kathryn Ibbotson |
Epilepsy Specialist Nurse |
Barnsley PCT |
|
Mrs ISE Shaftsbury |
Epilepsy Liaison Nurse, Paediatrics |
Furness General Hospital, Cumbria |
|
Lorraine Lawton |
Epilepsy Specialist Nurse |
Greater Manchester Clinical Neuroscience Centre |
|
Clare Harrison |
Epilepsy Liaison Nurse |
National Centre for Young People with Epilepsy, Lingfield |
|
Ms S Dziurzynska |
Epilepsy Specialist Nurse |
York Hospitals NHS Trust |
|
Kath Akeroyd |
Epilepsy Specialist Nurse |
Leeds Teaching Hospitals |
|
Aileen Ferguson |
Special School Nursing Sister |
Suffolk West PCT |
|
Paul Donnelly |
Epilepsy Specialist Nurse |
Bromley NHS Trust |
|
Elizabeth Ross |
Epilepsy Specialist Nurse |
Billericay, Brentwood and Wickford PCT |
|
Debbie Bancarz-Dadd |
Epilepsy Specialist Nurse |
TNEY NHS Trust |
|
Christine Morley |
Paediatric Epilepsy Specialist Nurse |
Humber Mental Health Trust |
|
Bernadette Lee |
Epilepsy Specialist Nurse |
Stepping Hill Hospital, Stockport |
|
Carole Doran |
Clinical Nurse Specialist, Epilepsy |
Tickhill Road Hospital, Doncaster |
|
Terry Burton |
Nurse Manager, Learning Disabilities |
Devon Partnership NHS Trust |
|
Carina Mack |
Clinical Manager Neurosciences |
Royal Hallamshire Hospital |
|
Judith Reed |
Epilepsy Surgery Liaison Nurse |
North Bristol NHS Trust |
|
Helen Coyle |
Epilepsy Nurse Specialist |
Hope Hospital, Salford |
|
Lynne Philip |
Community Nurse Manager |
North Warwickshire |
|
Jenny Stewart |
Children's epilepsy nurse specialist |
Arrowe Park Hospital, Wirral |
|
Jennifer Nightingale |
Epilepsy Nurse Specialist |
Barts and London NHS Trust |
|
Sarah Goodman |
Clinical Nurse Specialist in Epilepsy |
Princess Royal Hospital, Telford |
|
W Varndell |
Nurse Practitioner |
Homerton University Hospital, London |
|
Jackie Bradley |
Children’s Outreach Nurse |
Bradford NHS Trust |
|
Mrs V Rimmer |
Roald Dahl Epilepsy Nurse Specialist |
Royal Surrey County Hospital |
|
Beverly Clancey |
Nurse (RNLD) |
Surrey Oaklands NHS Trust |
|
Lynn Neylan |
Midwife Epilepsy Liaison |
Doncaster Bassetlaw Foundation Trust |
|
Wendy Smith |
Community Nurse Specialist |
Park View Resource Centre, Norfolk |
|
Kay France |
Community Nurse (Learning Disabilities) |
Heywood and Middleton PCT |
|
Sue Higgins |
Epilepsy Specialist Nurse |
Gloucester Royal Hospital |
|
Sally-Ann Remnant |
CNS Epilepsy |
East Surrey Hospital, Redhill |
|
Sara Laitey |
Epilepsy Specialist Nurse |
King’s College Hospital NHS Trust |
|
C Kershaw |
Neurology Nurses Specialist |
Worthing Hospital |
|
Andrew Smith |
Specialist Epilepsy Nurse |
Canterbury and Coastal PCT, Kent |
|
Trish Hosking |
Epilepsy Nurse Specialist |
National Hospital for Neurology and Neurosurgery London |
|
Charlie Bell |
Senior Community Nurse – Specialist Epilepsy Service |
Fareham & Gosport PCT |
|
Mr P Ramkoleea |
Clinical Nurse Specialist in Epilepsy |
Charing Cross Hospital |
|
Carol Atherton |
Staff Nurse Neurosurgical ITU/HDU Ward |
Royal Hallamshire Hospital, Sheffield |
Voluntary Organisations:
|
Name |
Position |
Organisation |
|
Graham Faulkner |
Chief Executive | National Society for Epilepsy |
| Bob Haughton | Chief Executive | National Centre for Young People with Epilepsy, Lingfield |
| Hilary Mounfield |
Chief Executive |
Epilepsy Scotland |
| Leigh Slocombe | Executive Director |
Epilepsy Research Foundation |
|
Kevin McMullen |
Chief Executive |
St Elizabeth’s Centre |
| Jacqui Bate | Chairperson | Gwent Epilepsy Group |
| Jo Garside | Director | Fund for Epilepsy |
Other Support:
|
Name |
Position |
Organisation |
|
Baroness Joyce Gould of Potternewton |
Chair |
All Party-Parliamentary Group on Epilepsy |
|
Cheryl Gillan MP |
Vice Chair |
All Party-Parliamentary Group on Epilepsy |
|
Alice Hanscomb |
Trainer and consultant |
Hanscomb Training and Consultancy |
|
Sandra Beeston |
Deputy Manager |
Gables Care Home Limited |
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