If you have an epilepsy specialist nurse, tell us what your nurse means to you. Tell us, the health service and other people with epilepsy who don’t have access to a nurse, what your nurse means to you.
If you don’t have an epilepsy specialist nurse, tell us what difference it could make to your life.
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Comments
To my knowledge there is no Epilepsy Specialist Nurse at my local neurology clinic, though I don't use it, I did find this out a couple of years ago via my MP, who sent me a copy of the hospital's response and how they failed to provide a specialist nurse.
I use a major London epilepsy centre that has two nurses, though I have never seen one and personally not felt the need. I fully appreciate that some people find them a whole lot more approachable and accessible than a neurologist. They are in any case the first line of contact should I need to contact my neuros in London and their phone numbers are provided on the letters.
I strongly support their position and would call on areas lacking to train or recruit one.