Patients' organisations

Patient UK
A directory of health, disease, and related websites from the UK, edited by two GPs.

Expert Patient Programme
Set up by the NHS, the EEP aims to help people living with long-term conditions to maintain their health and quality of life, by promoting self-management.

Patient Advice and Liaison Service
Linked to individual NHS Trusts, they offer on the spot help and information, practical advice and support to any NHS service user. They act independently and are funded by the government.

The Princess Royal Trust For Carers
The Trust exists to make it easier for carers to cope by providing information, support and practical help to carers.

Patient Opinion
A new service that tells you what other people are saying about your local health services and lets you share your story with others.

Carers Online
Provides carers, those supporting them and others with national and local information.

Glaxo Neurological Centre
Provides a non-medical advice and information centre for people with neurological conditions and those who care for them.

Patients Association
A UK organisation that runs campaigns to support patients' rights and to improve health care services and lobbies Government to address health care issues affecting patients.

Crossroads Association
Providing carers with high quality support and breaks in the home.

DIPEX
Watch, listen to or read interviews with people with epilepsy and other conditions.

Epilepsy Helpline

Epilepsy groups challenge patients to take charge of their health
Less than half of patients with active epilepsy in the United States are informed by their doctors about treatment options, according to a survey by the American Epilepsy Society and the Epilepsy Foundation.
Reports of seizure frequency may be inaccurate in patients with partial epilepsy
Asking people who have partial seizures how often they have seizures does not appear to provide an accurate count, according to a report in the journal Archives of Neurology.