We are disappointed to let you know that the second reading of Bill 112, Epilepsy and Related Conditions, did not go ahead in the UK Parliament on Friday 4 March as planned.
This is a set-back, but is not unexpected. This is the point in the process that most ten minute rule bills fail. We hoped that by pressuring the government, they would help make sure the second reading was held.
The Kanye West music video for his latest single All of Lights has been put back on YouTube, this time with a warning that it could trigger seizures in people with photosensitive epilepsy.
We have learned this morning that the music video for Kanye West’s latest single, All of the Lights, has been taken off YouTube.
People with photosensitive epilepsy should not watch the music video for Kanye West’s latest single, All of the Lights, as it contains extensive use of flashing imagery.
The UK Driving and Vehicle Licensing Agency (DVLA) has published their consultation into changes to the driving licence laws for people with epilepsy.
These changes are part of introducing a European Union directive. This directive will make the laws about driving and epilepsy similar across the European Union.
The main changes proposed for the UK are:
On Wednesday 24 November, the first reading of a Ten Minute Rule Bill for epilepsy took place in the House of Commons. The bill is called the Ten Minute Rule Bill on Epilepsy and Related Conditions (Education and Health Services) (Bill 112).
True Stories Productions, an independent television company, is looking for young people aged 16-25 in the UK with uncontrolled epilepsy who may be interested in taking part in a documentary. The documentary will explore the issues and dilemmas young people face in growing up with epilepsy.
From January 2011, Epilepsy Action will be working under the name Epilepsy Action Cymru and Epilepsy Action Northern Ireland in Wales and Northern Ireland. These are not separate charities, just identities designed to describe, identify and represent our work in the two countries. We hope that this move will help us raise our profile in the two countries to improve our campaigning work, promote our services and attract new members and supporters.
Epilepsy Action has launched a survey to find out what it has been like to live with epilepsy in 2010, during the charity’s Diamond Jubilee year.
The survey is similar to surveys carried out in 1990 and 2000. We hope that, by continuing to survey our members and other people with epilepsy every ten years, it can see how attitudes and experiences change with time.
The survey can be completed here. [Updated 31 March 2011: the survey has now closed. Many thanks to everybody who took part!]
The UK government is reviewing the current specialist disability employment programmes.
This is an independent review, lead by Liz Sayce, the Chief Executive of RADAR. RADAR is the UK’s largest disability campaigning organisation.
The review is asking for written evidence of peoples’ experiences if they have been through any government disability employment scheme. This includes Residential Training Colleges, the Access to Work programme and Remploy.
