We are taking a whole new look at what we do online for children and young people. We want to deliver a clear and well targeted online resource for those with epilepsy. To do the best possible job, we need to consult with children and young people with epilepsy, their brothers and sisters, and parents and carers.
How can you help?
We would like to invite you and your child to a consultation session with us and our web partner, hey moscow, to gather your valuable input.
What happens in the session?
There’ll be up to 16 children or young people in the session, and at least one parent or carer with each of them. (Young people aged 18 or over are welcome to come on their own if they wish.)
You’ll be given a questionnaire to complete, after which we will discuss key points as a group. There will be no right or wrong answers – the purpose is simply to explore young people’s needs and priorities for a epilepsy website. We will also show examples of ideas of how the new websites might look, to get their feedback on them.
How long will it take?
About one hour.
Where and when will it be?
We are currently fixing the date and location. That will depend on how many people volunteer to help and where they are.
What’s in it for you?
Most importantly, you will be helping us develop the best possible online service for young people with epilepsy. To thank them for their time and contribution, we’ll give a £50 ‘Love2Shop’ voucher to each child or young person who takes part. This can be spent in many high street stores.
Epilepsy Action will also reimburse reasonable travel costs for upto one adult and one child.
How can you get involved?
Please contact Leanne Creighton lcreighton@epilepsy.org.uk or call 0113 210 8800 and let us know if you are interested. Once we know how many people would like to help us, we can arrange a date and a place.
Due to the costs involved, we can only invite people who live in the UK.


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