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Mothers in mind- The Pregnancy diaries

Last checked 10/09/2008

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Written by mothers to guide you through pregnancy and into early parenthood.

Foreword

Many women with epilepsy have told us that before pregnancy, and in pregnancy, they begin to think about their health and epilepsy. Baby footYou, yourself may wonder what affect your epilepsy, seizures or anti-epileptic drugs may have on the health of your unborn baby. Rather than wondering, you could request a copy of Epilepsy Action’s Mothers in mind booklet and ask your GP to refer you for preconception counselling. 

In the meantime, you may want a little support through your amazing journey or the decision making process. Epilepsy Action set up The Pregnancy Diaries, to help you and other parents and parent to be, to support each other.  

The Pregnancy Diaries has been written by mothers for mothers and fathers with epilepsy. The Pregnancy Diaries enable you to see similar journeys to your own.  You can discuss how scary pregnancy can seem, share tips to try and make parenthood run more smoothly (we can dream) and, laugh about all the funny moments that happen during pregnancy and the early years. You can even become part of it: why not share your own experiences with the diary? 

Whether you are thinking about pregnancy or pregnant already, we really hope that you enjoy reading about our pregnancy experiences and, find them useful. 

Good luck with your journey, wherever it takes you,
Best wishes,

Nicola, Jennifer and Ingrid (new mothers) and Nicole (Epilepsy Action).

 

‹ How you can help Epilepsy ActionupMeet the diary writers ›

Comments

Hi there,

We would really like to hear about your pregnancy experiences and invite you to add your comments here. It would be great to create a networking opportunity where you can share your thoughts, ideas and experiences. Plus, your comments may well help others through what may be a very confusing time.

I look forward to hearing from you.

Lucy Olafsson (nee Rollinson)
Communications Officer
Epilepsy Action

Submitted by andy@epilepsyaction on 8 September, 2008 - 13:08.

My Mother recently heard about the pregnancy diaries in a newspaper and has directed me to the website this evening. I am delighted to have found it and to see such a thing. My Husband & I are blessed to have one Daughter who is now 2yrs and 4 months old and I am currently 30weeks pregnant with our second child. Unfortunately I experienced several seizures during my pregnancy with my Daughter and after the birth and I have recently had a grand mal seizure in the last few weeks with this current pregnancy. With both pregnancies I have been concerned about my AEDs, having seizures whilst pregnant and the impact on the pregnancy/baby and caring for my child/ren and their safety if, when and where I have seizures. I would like to contribute to the diaries if it will be of assistance/helpful and of interest to others.

Submitted by Jo Needham (not verified) on 3 October, 2008 - 21:11.

Hi Jo,
I suggest downloading the Mothers in Mind leaflet if you have not already done so. The link is just above my previous comment. There are a couple of ways you can assist us. The first is to become a media volunteer and help us raise awareness of the issues associated with epilepsy and pregnancy. If you would like further information, please go to the following link, www.epilepsy.org.uk/press/mediavolunteer.html or telephone me for a chat. The second is to record your diary entries on our pregnancy diary web pages, and share your experiences with other women.

Thanks

Lucy

Submitted by andy@epilepsyaction on 6 October, 2008 - 14:45.