Become a media volunteer

Here at Epilepsy Action we get a number of requests each week from the media, particularly from women's, health or family magazines, who wish to interview people with epilepsy who have a story to tell.

At the moment, we're particularly looking for...

Would you like to be part of a new project to map epilepsy services in England?

Epilepsy Action has launched a project which will try to map epilepsy services across England. As part of the project, primary care trusts (PCTs) and acute trusts across England are being surveyed about the epilepsy services they provide.

Complete the online form

Women with epilepsy with a story to tell, anywhere in the UK

We're looking for women who have a story to tell about their epilepsy and issues like hormones, polycystic ovary syndrome (PCOS), contraception, pre-conception counselling, pregnancy, menopause and/or particularly hormone replacement therapy (HRT)

If you have experiences, either positive or negative, about which you would be happy to talk to the media then please complete our online form.

Become a media volunteer

If you have another story, please fill out this form.

Please don't forget to give us a daytime contact number or email address if you have one.

These stories are a good way to raise awareness and educate people about epilepsy and our services, and help other people with epilepsy and their families realise they are not alone.

Please be aware that, although our press office can provide journalists with information about epilepsy, ultimately, we have no say in whether an article is printed and little control over the final printed version of an article.

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Comments

I have a theory that some sufferers of severe PMT may also be suffering symptoms of epilepsy without knowing. My understanding of epilepsy is that it effects various functions being personality, memory, mood and sensation amongst others. These functions are the exact functions that effect most women leading up to their period. Severe PMT sufferers like myself also experience suffer the usual mood swings along with slight tingling of the mouth/lips and a dumbness of the tongue as well as blurred vision. Surely a form of epilepsy cant be ruled out especially since it is already recognised that hormonal changes can be a seizure trigger. The question is, is it possible that some women may be suffering from multiple mild seizures that they simply put down to the usual PMT symptoms due to the fact that they are not physically displaying the common signs of epilepsy. If so, whilst I'm getting ahead of myself, surely similar drugs to the ones people suffering from epilepsy use, can be considered to eradicate some of these symptoms experienced by women leading up to their period.

Submitted by Betty on 31 August, 2008 - 12:07.