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Here at Epilepsy Action we get a number of requests each week from the media, particularly from women's, health or family magazines, who wish to interview people with epilepsy who have a story to tell.
These stories are a good way to raise awareness and educate people about epilepsy and our services, and help other people with epilepsy and their families realise they are not alone.
At the moment, we're particularly looking for...
Women with epilepsy with a story to tell, anywhere in the UK
We're looking for women who have a story to tell about their epilepsy and issues like hormones, polycystic ovary syndrome (PCOS), contraception, pre-conception counselling, pregnancy, menopause and/or particularly hormone replacement therapy (HRT)
If you have experiences, either positive or negative, about which you would be happy to talk to the media then please complete our online form.
Teenagers with epilepsy, or parents of teenagers wirth epilepsy
The theme of National Epilepsy Week this year is young people with epilepsy. Having epilepsy, seizures and taking anti-epileptic drugs may have a huge impact on the lives of teenagers with epilepsy. It may affect how you cope in lessons, what sports you play and what time you go to bed. To make National Epilepsy Week successful, Epilepsy Action is asking all young people with epilepsy to be upfront about epilepsy.
As a media volunteer you can support our campaign by talking to us about your epilepsy. You may be able to review our information for young people. Or you may be asked to talk to a journalist about your epilepsy. Media volunteers enable Epilepsy Action to help more people to understand epilepsy.
If you are under eighteen and would like to be a media volunteer, we would need your parent or carer’s permission too. Perhaps your parent or carer would also like to become a media volunteer. Some newspapers and magazines would like to parents and carers to share their experiences too. Parents and carers can offer advice on how to better support young people with epilepsy.
If you're happy to help, then please let us know
Become a media volunteer
If you have another story, please fill out this form.
Please don't forget to give us a daytime contact number or email address if you have one.
Please be aware that, although our press office can provide journalists with information about epilepsy, ultimately, we have no say in whether an article is printed and little control over the final printed version of an article.
Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Txt msg: 07797 805 390 info






