Epilepsy Action: Tell Your Story

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Epilepsy Action is a working name of British Epilepsy Association.

British Epilepsy Association is a Registered Charity (Registered in England No. 234343) and a Company Limited by Guarantee (Registered in England No. 797997).

© Epilepsy Action 2008

Man with newspaper Here at Epilepsy Action we get a number of requests each week for from the media, particularly from women's, health or family magazines, who wish to interview people with epilepsy who have a story to tell.

At the moment, we're particularly looking for...

people who would be willing to tell their story to journalists, as part of National Epilepsy Week
Find out more about what Epilepsy Action is doing during National Epilepsy Week and how you can get involved.

women with epilepsy with a story to tell, anywhere in the UK
We're looking for women who have a story to tell about their epilepsy and issues like hormones, polycystic ovary syndrome (PCOS), contraception, pre-conception counselling, pregnancy, menopause and/or particularly hormone replacement therapy (HRT)

If you have experiences, either positive or negative, about which you would be happy to talk to the media then please complete the form below. Please don't forget to give us a daytime contact number or email address if you have one.

These stories are a good way to raise awareness and educate people about epilepsy and our services, and help other people with epilepsy and their families realise they are not alone.

Please be aware that, although our press office can provide journalists with information about epilepsy, ultimately, we have no say in whether an article is printed and little control over the final printed version of an article.

Yes... I would be happy to talk to the press about my story:

Name:
Address:
Postcode :
Country:	United Kingdom (At present, we are only looking for people in the UK)
Daytime phone number:
Evening phone number:
Email address:
Date of birth:
Sex:	Male Female

Medical History – relating to your epilepsy e.g. Your age when you first developed epilepsy, when it was diagnosed, treatment etc:

Other Information – relating to your epilepsy e.g. health, employment concerns, social misunderstandings, positive/negative experiences etc:

Comments – please add any details that you would like to submit such as family details, other languages spoken, living arrangements:

Would you be happy to be photographed?

What's your preferred method of contact with Epilepsy Action and/or journalists (mobile phone, home phone, fax, email etc:

Is there a particular time of day you would prefer to be contacted?

Data Protection Agreement

Your data will be kept on our systems for one year. After this time, it will be reviewed and you will be asked if you wish for your records to be removed. If you do wish for the information to be removed, your name, area and telephone number will be kept so we know not to contact you, should you be suggested for media work.
Should you wish to be removed from our records at any time, please contact us and tell us.
The information provided by you to Epilepsy Action will be used for the benefit of Epilepsy Action and people with epilepsy. This may be passed to journalists, whilst maintaining your anonymity, prior to gaining your consent.
Any published information will have entered the public domain, and once there, may be picked up and used for other articles without Epilepsy Action’s explicit consent. Epilepsy Action cannot be held liable for this eventuality.
The information provided by you will be used for articles in a wide range of media formats around the world, i.e. newspapers, publishing, web pages, electronic publishing, television and radio.
You undertake to keep us updated with accurate details.

If you're happy with this agreement, please click in this
box:

What Happens Now?

Once you click on 'send information', your details will be sent through to the press office here at Epilepsy Action. They will be held on file until we get a request from a journalist where we think your story is suitable for the journalist's requirements. At that point we will contact you to ask if you would be happy to talk to the journalist.
We will not pass your contact details on to any journalist without speaking to you first.

Epilepsy Action and your information: Privacy Policy

If you have any questions about being a media volunteer, please contact Epilepsy Action's press office:

Phone: +44 (0)113 210 8800
Fax: +44 (0)113 391 0300
Email: press@epilepsy.org.uk

Press index

Press releases

Press release email service

Press photo library

Epilepsy facts, figures and terminology

Tell your story

Epilepsy helpline
0808 800 5050 (UK)
helpline@epilepsy.org.uk

Email this page to a friend

Terms & conditions

Do you have epilepsy?

Are you successfully employed for a small or medium sized business?

Are you based in South Yorkshire or the West Midlands?

Are you happy to be photographed?

Are you are and your employers willing to act as case studies for the Department of Work and Pensions 'employ ability' campaign?

This national campaign is being launched by the Department for Work and Pensions to highlight to employers how employing disabled people, or people with long-term health conditions, could benefit their business.

If you would like to find out more about the campaign or view previous case studies, please visit the 'employability' website.

If you and your employer would like to get involved, please call the Epilepsy Action press team on 0113 210 8870 and quote the 'employability' campaign.