National Press Releases

National charity Epilepsy Action has expressed concern today over the new National Institute for Health and Clinical Excellence (NICE) guideline for the epilepsies. The guideline, which applies to England and Wales, ‘The epilepsies: the diagnosis and management of the epilepsies in adults and children in primary and secondary care’ was published today.

An article in the latest edition of Seizure, the European Journal of Epilepsy, focuses on the recent ‘European Written Declaration on Epilepsy’. The declaration was recently passed by the European Parliament in Brussels and has been welcomed by epilepsy organisations across Europe.

Epilepsy Action has become the first UK epilepsy charity to launch its member magazine on Amazon’s Kindle eReader. Epilepsy Today became available to Amazon customers across the globe on Friday 9 December.

National charity Epilepsy Action is hosting Upfront - a creative event for teenagers with epilepsy and their families in Leeds. The event is for young people with epilepsy and their families to explore issues surrounding the condition and meet others affected by epilepsy.

A warning has been issued to cinemas that are screening the new Twilight Saga: Breaking Dawn - Part 1 film, following reported instances of cinema goers having epileptic seizures after watching a scene in the film. 

National charity Epilepsy Action is urging tea drinkers across the UK to put the kettle on as part of National Tea Break 2011. 

The event, on Friday 21 October, encourages tea (and coffee) lovers to get together to drink tea, eat cake and raise funds for Epilepsy Action. Since 2003, over 1,000 Tea Breaks have taken place, raising over £100,000 to help fund the vital information and advice services provided by Epilepsy Action. 

National charity Epilepsy Action is again calling all nurses who want training in epilepsy care. The charity is offering a number of training grants to help fund nurses through a Professional Diploma in Epilepsy Care.

We are pleased to see that NICE has issued guidance recommending retigabine as a treatment option for some people with epilepsy. Epilepsy is a complex condition which can be very difficult to treat. Up to 70 per cent of people with epilepsy could have their seizures controlled but only 52 per cent actually do. This drug may offer a potential treatment to people with epilepsy whose seizures are not currently controlled.  

UK charity Epilepsy Action will host the world’s first ever ‘epilepsy radio day’. The 12-hour live show will be broadcast online during National Epilepsy Week (15-21 May) on Wednesday 18 May.

The event will involve a whole day of radio programmes all about epilepsy, which will be broadcast online. Listeners will be able to listen live during the day or download the programmes from Epilepsy Action’s website after the event. The radio programmes will be of interest to anyone affected by epilepsy or wanting to find out more about the condition.

UK charity Epilepsy Action has launched its new Celebrate range. The range of favours, invitations, donation envelopes and pin badges means couples can now support the charity as part of their wedding or civil partnership celebration.