Epilepsy Perceptions and Memory Study

In 2006 Epilepsy Action helped fund a PhD studentship at the University of Sheffield looking at epilepsy and memory. Katharyn Hall was awarded the studentship. After three years of very hard work she received her PhD. Katharyn is now training to become a clinical psychologist at the University of Manchester.

A number of Epilepsy Action members took part in the research and Katharyn would like to thank everyone for their participation.

• Summary of the research

South Asians and Epilepsy: Understanding the health experiences, needs and beliefs in communities in Bradford

In 2001 Epilepsy Action commissioned Bradford Hospitals NHS Trust to undertake research into the experiences and understanding of epilepsy amongst South Asian communities in Bradford. The main aim of the study was to examine the experiences of South Asians with epilepsy in relation to their health needs and beliefs, and to address their health provision needs, lifestyle considerations, complementary therapies and provision of epilepsy services.

• Summary of the findings
• Download the full report [PDF document]

Epilepsy and the defence of insanity – time for change?

Professor Ronnie Mackay, De Montfort University

Current criminal law classifies epilepsy as a 'disease of the mind' within the rules which govern the defence of insanity. Professor Mackay has analysed cases in which people with epilepsy had been given a verdict of ‘'not guilty by reason of insanity'. Such verdicts have attracted considerable criticism. To label a person with epilepsy as 'insane' is both inappropriate and can be deeply stigmatising. This research gives an analysis of the current legal position and assesses competing measures for reform. The Law Commission of England and Wales is due to consider the reform of the defence of insanity. This research will form part of this review and provide an important part of the push for reform.

Professor Ronnie Mackay is Professor of Criminal Law and Mental Health in the School of Law at De Montfort University. He is a highly respected expert in this field and has acted as consultant to several public bodies. He has held numerous scholarships and research grants, and has published widely on issues arround mental health and the judicial system.

• Report summary

• Lay summary

• Final report

Understanding of epilepsy by children with, or without, epilepsy

Professor Ann Lewis, University of Birmingham

To date, there has been little systematic evidence concerning the views of children with epilepsy, and their classmates, about their condition. Schoolmates’ understanding about epilepsy is important; these children are a vital source of potential support, advocacy and friendship. This project explored the understanding of children and young people, in mainstream schools, of the nature, causes and long term effects of epilepsy. The information gathered will be used to produce guidelines concerning the most effective ways for teachers and other professionals to integrate children with epilepsy in an inclusive school.

Professor Ann Lewis is Professor of Special Education and Educational Psychology at University of Birmingham. She has a longstanding concern (both research and professionally-oriented) with exploring the views of children with disabilities, particularly in relation to the way they see educational provision. She is an experienced researcher and has published widely.

• Report

• Lay summary

• Summary for schools

For more information about Epilepsy Action’s research support and funding please contact Margaret Rawnsley on 0113 210 8800 or email research@epilepsy.org.uk or see our research grants page.