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Epilepsy Helpline

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  • UK freephone: 0808 800 5050
    (including calls from Orange, Vodafone, 3 and O2 mobiles*)

  • International: +44 113 210 8850

The Epilepsy Helpline began in 1988. In 1994 it became a freephone service for people in the UK. Being able to call free of charge encouraged many more people to contact the helpline.

TelephoneCallers to the Epilepsy Helpline are guaranteed a friendly welcome and can discuss their concerns confidentially.

The majority of callers are people with epilepsy, concerned about their diagnosis, their medication, driving, pregnancy and many other issues related to their condition. We also welcome and receive calls from family members of people with epilepsy and professionals, requesting information.

The Epilepsy Helpline has twice been awarded the Telephone Helpline Association’s Quality Standard Award. The helpline is open from

  • 9am to 4.30pm Monday to Thursday and
  • 9am to 4 pm on Fridays (all UK times).

It is staffed by advice and information Officers, all with an extensive knowledge of epilepsy related issues.

How to use the Epilepsy Helpline

If you live in the UK you can phone the Epilepsy Helpline (freephone) on 0808 800 5050. There is a charge when people from outside the UK contact the Epilepsy Helpline. You will be able to speak personally to an Advice and Information Officer. The helpline is open from

  • 9am to 4.30pm Monday to Thursday and
  • 9am to 4 pm on Fridays (all UK times).

From UK mobiles*: You may still hear a recorded message saying that calls to 08 numbers may be charged. This message is automatically generated when any 08 number is dialled, but your call to us from those networks will still be free. Other mobile networks may charge for calls to our helpline. Please contact your network for more information.

If you need advice and information in a language other than English, we offer advice in over 150 languages. The helpline staff are also Typetalk trained for people who are deaf or hard of hearing.

Other ways to contact the helpline are by email, fax or post.

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‹ IntroductionupEpilepsy Helpline and language interpreting ›

Comments

I have just spoken to your adviser Cherry and am extremely impressed by all the information I received and the patient and thorough manner of dealing with my particular query. Brilliant, guys!

Submitted by Chris Martin on 13 June, 2008 - 10:53.

The help line is very helpfull ,as i have phoned up in the past myself. the new texting helpline will be a better helpline for the yunger teenagers now days. as they have mobiles, to text for help that they need .

Submitted by kay holbrook on 29 June, 2008 - 23:05.

The helpline is great and i suffered for 14years an it gave me help and understanding of what i was going througg

Submitted by Katie on 27 November, 2008 - 10:46.

Many thanks for your help.
After the shock of suffering a seizure and the worry of losing my driving licence it was great to speak to someone who gave me great hope for continuing my current employment during the appalling credit crunch.

Submitted by Jim Wilcock on 23 January, 2009 - 10:40.

Is there a way of becoming a helpline volunteer for Epilepsy Action, that anyone knows of?

Thanks,

Michelle.

Submitted by Michelle Morris on 15 April, 2009 - 14:04.

I have had numerous problems getting my prescription from Lloyds pharmacies who in addition to having problems fulfilling my prescription have appalling customer service. I have had to chase them up for outstaanding tablets and ring round my GP and other pharmacies to obtain the rest as they cannot be bothered.

I have found Boots to be absolutely brilliant and even if they cannot complete the prescription on the same day can always complete within 48 hours.

I would recommend ringing around pharmacies before going in to checkif they have enough KEPPRA available. I understand the two i have just mentioned use different suppliers hence Boots being more successful at dealing with it.

Submitted by Lisa O'Brien on 25 January, 2010 - 18:07.

ive had epilepsy from birth and have been on so many different tablets that seemed to work for a while until i started gettin emune to them at which point i was still having seizures and the were bad. i have to say that the best tablets for me are keppra they really work i have been on them for just coming up a year now and they seem to be taking effect which is brilliant because i feel like i can rely on them. im 18 now and soon will have my own place its great to have that independance and not being treated different just because of my condition. just recently my neice has started havin funny turns i dont know weather it is epilepsy for sure she has been to the doctors im epileptic maself so i cant see myself when i have a seizure. so what should i be lookin for with my neice. if anyone can help please do . thanks for readin xxshaunaxx18

Submitted by xxshaunaxx18 on 5 March, 2010 - 23:35.