I have had only a handful of grand mal seizures in the ten years up to and since the diagnosis of a benign brain tumour. Although unfortunately two of these were in the past size months, I was surprised to be quoted last night £140 for cover for a single, brief trip to Europe. (The quote was reduced to £20 if I excluded my epilepsy.) Thankfully, I shopped around today and have secured almost identical cover (including my epilepsy) for £16. The insurer - Columbus Direct. I'm not alone - my dad's partner, who recently had a minor stroke, also benefitted from a more proportionate approach to risk.

Unfortunately they would not cover Hannah's epilepsy so went to 'It's So Easy' instead. They covered it fine, single trip for 1 adult and 2 kids (1 with epilepsy) covered £57

I have just finshed insuring my family for a trip to France with Insure&Go. My 4 year old son has had Epilepsy for nearly 2 years and has 3 to 5 petit-mal / head drop seizures a day, but fortunately has not had a tonic-clonic seizure for over a year. Craig at Insure&Go was very professional and knowlegable on Epilepsy and made the whole process very easy. My son is not on any medication as he is on a Ketogenic diet, all which I explained to Craig. The travel insurance policy was very reasonable priced and specifically covers my son's condition. Thanks Craig and Insure&Go, great service. Adrian

I just called insureandgo via Epilepsy Action and had a number of problems - none of these were caused by insureandgo, mostly by my rubbish phone! The 1st guy I spoke to was lovely, had a slight problem with his computer so arranged to call me back to save my costs. My phone didn't ring so he left a message. I returned their call and spoke to a lady who was lovely, friendly, spoke as quickly as possible to save my costs, and I ended the conversation with a perfectly reasonable quote. I called again to ask if it covered repatriation to another equally friendly and efficient phone-person.

In August '09 I insured myself with insureandgo for a trip to India. This was lucky as I was very ill and in hospital and sent back home to England within 7 days! I called them upon my return - have yet to officially claim - and they said that once you lodge the claim on the phone you can take your time with returning the documentation to them. By far the nicest, easiest insurance company I've ever used!

I too have had a bad experience, and found out as my son has cryptogenic epilepsy and been admitted in hospital 6 times over the past year, that they will not cover him for his epilepsy, which was the reason i called thinking they would provide insurance, now left thoroughly disappointed. Now left wondering where to go for cover, any ideas for those who could not get cover?

Regarding difficulty in getting annual travel insurance for epileptics, I have been buying an annual travel insurance policy for my epileptic son for some years from Flexicover. You have to have a medical endorsement which costs quite a bit more.

Tried to get travel insurance with insure and go but they said they could not give the 10% discount without a promotion code. I telephoned the number on shown on epilepsy action web site page- not impressed. Can anybody recommend an alternative insurance company?

My wife has had cover from this company before without any problem when we went to America.What I am concerned about is that the price goes up by almost 100 o/o .The rest of the family who go have to pay more as you cant buy online.I think that this is unfair and disciminates against the rest of the family.You also have to be aware the price initially quoted wll cover you but not for your epilepsy ,that is extra.So a trip to India costing £98 for three when phoning(£78 gold cover on line)for two weeks shoots up to £185 if you want medical treatment abroad.My wife has had many an eventful times in hospitals so we will definately be paying for the additional cover.What I would like to see is an ability to book on line and then you phone for a separate insurance for your loved one.

i thought great insurance that covers for epilepsy but only covers for a single trip....can people with Epilepsy not go away more than once a year....???

Not impressed! Spoke with an advisor who seemed unsure of what the policy covered; she offered me a bolt-on extra for £7.50 but didn't really know what it was far. More annoying though was giving me an initial quote, then after a long delay and calling me back (the underwriters were confused about another, unrelated medical condition) she announced that my epilepsy caused a further £18 or so to be added to the premium, but could not explain how this figure had been reached.

Overall, I felt the service was not as accommodating to my epilepsy as I had hoped, so I have now purchased cover from Able2Travel who were far more helpful and understanding.

I have just been informed by Insureandgo that they cannot insure my son who has been seizure free for 12 months.
very disappointing.

Hello, I'm very pleased with the Insure&Go quote for a single trip - but agree that a Multi-Trip Policy would be preferable. We had our Family Multi-Trip Policy renewal for epilepsy and cerebral palsy coverage declined by Tesco Travel Insurance after being happy customers for three years (without makng any claims due to those conditions) so I am shopping around for another one. The Tesco policy cost around £130 per year. The renewal quote without the coverage for epilepsy and cerebral palsy was £72. Tesco said they changed their regulations in the past 12 months and no longer insure these conditions.

I have just organised travel insurance to Florida for my daughter. In the past the cost has been in the hundreds and I was delighted to be given a quote less than HALF that! The girl on the phone was very friendly and efficient and the whole process took less than 15 mins. Life with special needs is difficult enough, so it is very refreshing to have some aspect made easier for us. Well done on this arrangement with InsureandGo

Hi Michelle,

We're sorry you had a disappointing experience. Most of the feedback we've had has been positive but we are working constantly to improve things across the industry and sometimes there are cases that for one reason or another can't be covered. Can you make sure you called the Epilepsy Action number (0844 888 3380) as the insurance offered here is different from the general number. Some people have been turned down unnecessarily after calling the main line. I have tried to email you but your address didn't work. If you would like me to help further, can you get in touch with me on marketing@epilepsy.org.uk or 0808 800 5050?

Thanks

Rachel Hunnybun,
Donor & Member Marketing Manager
Epilepsy Action

Hi Amy,
Thanks for your comment, Multi-trip travel and Annual travel insurance is something that we will be working on with InsureandGo in the very near future once the new insurance policy has settled in. We are aware it's an issue and have had quite a few enquiries about it so hope to have something in place as soon as possible.

Rachel
Epilepsy Action