Dear Danny answers 1
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Recent questions:
- Message for Shelley - Danny
- Message for Leanne in Cambridge - Danny
- Can I smoke weed? Nathan
- Can I go to the local swimming pool with one of my mates? Denise
- I was diagnosed with epilepsy last year on my 17th birthday, but why do i still feel as though I want to cry all of the time? Zoe
- What should we do when my friend comes over, are there any precautions I need to take? Nichola
- Is there anything I can do to help my friend more? Nichola
- Is there any connection with aspergus syndrome and epilepsy? Daniel
- How do I tell my friend to stop drinking and smoking? Ciara
- Did my doctor look at the right EEG test? 'Non-knowable case'
- Can I still play rugby even though there is a risk of me having a seisure during game play? Rhys
- Will sunglasses help me to drive? Aneesa
- What do I say to my mum about epilepsy? Philipha
- What activities can i do to lower my chance of having a seizure? Dan
- Can wearing sunglasses decrease the risk or prevent the lights from causing a seizure? Jose
- what sorts of technology helps teenagers with epilepsy? Tegwen
- What money can I claim? Kirk
- I have been having slow motion every now and then, wondering if you know what may cause this or what i might have? Jess
- Is it possible for someone with epilepsy to claim DLA? Is there anything I can do to make my claim stronger? Lynsey
- is epilepsy classed as a disability or an illness? Beth
Dear Dannyim going to start driving soon i was epileptic since the age of 8 years and i havent had a seizire for 4 years iv asked the docters if its ok for me to drive they said i sould be fine iv brought some sun glasses which also have a polieod shade so i wont be dealing with strong light hiting my eyes do you think the sun glasses will help me? Aneesa, Dewsbury
You must be so thrilled to be able to get your driving license. The independence will be wonderful! Wearing polarised sunglasses could lower the risk of seizures if you have problem with photosensitive epilepsy and sunlight. When the sunny days do come, people in general can find wearing sunglasses helpful. Enjoy the driving. Danny |
Dear DannyWell I have been having fits since 2006. At first they were only in my sleep, now they are during the day. Doctors say i may have epilepsy, but arnt sure yet. my mum is really stressing about it and in a way making up excuses just to say that i dont have it. its really annoying me. what do i say 2 her? Philipha, Scotland Hi Philipha I’m sorry to hear that your mum is really stressing you out. She might think that she‘s helping you by saying that you don’t have epilepsy. Does your mum realise that it’s annoying you? You might find it helpful to talk to your mum and tell her how you are feeling. You could also suggest that she reads the Parents guide to epilepsy on this website. This may help her realise that lots of young people have epilepsy and many have their seizures controlled with anti-epileptic drugs, once doctors have made a diagnosis. I hope that helps. Danny |
Dear DannyWhat money can I claim? Kirk, Nottingham
It will all depend on your epilepsy and what support you need. To see what some people with epilepsy may get visit this link to benefits? You may want to contact the benefit enquiry line for help with your own benefits. Danny. |
Dear DannyHi,
Im 17 years old and when i was 3 i had a head injury from falling down a drain, I had to go for a brain scan though they told my parents i was to young for one. thanks jess
If you do have epilepsy, it could be partial seizures you are describing. With partial seizures you are not in control of what you are doing or thinking. You are unable to stop or control the symptoms. Sometime you’re not even aware they have happened. Why people develop epilepsy is not always clear. For some there may be an injury or some damage to the brain but for most people there is no reason. Generally a brain scan could show if there are any injuries or damage. Keeping a diary of your symptoms, and what people witness would be helpful for your doctor. Here is a link to how epilepsy is diagnosed so you will know what to expect if you go see a doctor. Best wishes Danny |
Message for Leanne in CambridgeThanks for your email. It’s quite a complex question, so please could you contact our helpline. One of our advisers will be happy to help you. You can either phone the helpline, freephone 0808 800 5050 or email your question to helpline@epilepsy.org.uk .If you type ‘Danny referral’ in the subject box of your email, they’ll reply as soon as possible. Danny |
Upfront - for young people with epilepsy
- What is epilepsy?
- Seizure types
- First aid for seizures
- How do I know if I have epilepsy?
- Girl Talk – for young women with epilepsy
- Lad Chat – for young men with epilepsy
- Why me?
- What are the risks of having epilepsy?
- Anti-epileptic drugs (AEDs)
- Moving from children’s to adults’ health services
- Other treatments for epilepsy
- Meeting other people when you have epilepsy
- Telling other people about your epilepsy
- School, college and university
- Careers
- Driving, cycling and transport
- Sport and leisure
- Going out and clubbing
- Alcohol and drugs
- Travelling abroad
- Shout outs (Real Lives)
- Dear Debbie and Dear Danny
- Upfront about epilepsy young people’s drama workshop and family conference, Saturday 2 October 2010, London
Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Txt msg: 07797 805 390 info








Comments
Just a little Answer to Katie's Question.
Dear Katie You were so lucky i follow everything to do with Epilepsy and i remember a famous film stars child drowned while having a seizure. Her name was Hunter Tylo and her sons name was Mickey very sad for her. You can actually see her interview on you tube. She is actually the face on the American Epilepsy outreach foundation.
So please be very careful when around water all our love from the family of little Katie Maguire.
To Read more on Katie please visit www.keepbabykatieawake.com
Right, so here we go.
I know this: I don't get seizures through over-tiredness or flashing lights, which means I can quite happily go out clubbing all night long and nothing will happen.
But I simply don't know when my fits are going to happen. I've had them on the toilet, in the shower (X4), in a friend's house, in a university dining room etc. I don't know if it's a reaction to stress.
What are these called? Apparently I foam in the mouth, shake a lot, and feel like I've been hit by a train after it's all over.
I know this: if I take sodium valporate I want to go to sleep all of the time - but I've just been told by a doctor that the levels of a SV in my blood aren't high enough, which sucks because I've been taking the drug fairly regularly over the course of the last year, and how my dosage has now been raised. Oh, and I've got another visit to the neurologist. So what would you recommend doing?