Dear Danny answers 1
Recent questions:
- Message for Carol - Danny
- Can I still play rugby even though there is a risk of me having a seisure during game play? Rhys
- Will sunglasses help me to drive? Aneesa
- Message for Mum - Danny
- Can I smoke weed? Lawrie
- What do I say to my mum about epilepsy? Philipha
- What activities can i do to lower my chance of having a seizure? Dan
- Can wearing sunglasses decrease the risk or prevent the lights from causing a seizure? Jose
- what sorts of technology helps teenagers with epilepsy? Tegwen
- What money can I claim? Kirk
- I have been having slow motion every now and then, wondering if you know what may cause this or what i might have? Jess
- Message for Cynthia, High Wycombe - Danny
- Is it possible for someone with epilepsy to claim DLA? Is there anything I can do to make my claim stronger? Lynsey
- is epilepsy classed as a disability or an illness? Beth
- Does my friend have epilepsy or not? John Doe
- if someone had a sezuire in their sleep would they remember? Joanne
- How long do you have to wait to get your perment after haveing a seizure? Devon
- Can I get my tummy pierced? Hannah
- My son has stopped taking his medication Nina
Dear Dannyim going to start driving soon i was epileptic since the age of 8 years and i havent had a seizire for 4 years iv asked the docters if its ok for me to drive they said i sould be fine iv brought some sun glasses which also have a polieod shade so i wont be dealing with strong light hiting my eyes do you think the sun glasses will help me? Aneesa, Dewsbury
You must be so thrilled to be able to get your driving license. The independence will be wonderful! Wearing polarised sunglasses could lower the risk of seizures if you have problem with photosensitive epilepsy and sunlight. When the sunny days do come, people in general can find wearing sunglasses helpful. Enjoy the driving. Danny |
Dear DannyWell I have been having fits since 2006. At first they were only in my sleep, now they are during the day. Doctors say i may have epilepsy, but arnt sure yet. my mum is really stressing about it and in a way making up excuses just to say that i dont have it. its really annoying me. what do i say 2 her? Philipha, Scotland Hi Philipha I’m sorry to hear that your mum is really stressing you out. She might think that she‘s helping you by saying that you don’t have epilepsy. Does your mum realise that it’s annoying you? You might find it helpful to talk to your mum and tell her how you are feeling. You could also suggest that she reads the Parents guide to epilepsy on this website. This may help her realise that lots of young people have epilepsy and many have their seizures controlled with anti-epileptic drugs, once doctors have made a diagnosis. I hope that helps. Danny |
Dear DannyWhat money can I claim? Kirk, Nottingham
It will all depend on your epilepsy and what support you need. To see what some people with epilepsy may get visit this link to benefits? You may want to contact the benefit enquiry line for help with your own benefits. Danny. |
Dear DannyHi,
Im 17 years old and when i was 3 i had a head injury from falling down a drain, I had to go for a brain scan though they told my parents i was to young for one. thanks jess
If you do have epilepsy, it could be partial seizures you are describing. With partial seizures you are not in control of what you are doing or thinking. You are unable to stop or control the symptoms. Sometime you’re not even aware they have happened. Why people develop epilepsy is not always clear. For some there may be an injury or some damage to the brain but for most people there is no reason. Generally a brain scan could show if there are any injuries or damage. Keeping a diary of your symptoms, and what people witness would be helpful for your doctor. Here is a link to how epilepsy is diagnosed so you will know what to expect if you go see a doctor. Best wishes Danny |
Dear DannyAlright mate, Loads of my mates are into smoking weed. And I would! But I don't know if would effect my epilepsy. Im on medication, 800mg of Tegratol carbamazepine, and my seizures are under control. My mates say it helps epilepsy too? Im confuzed! Lawrie Hi mate No one can tell you what weed (aka marijuana, cannabis, grass, pot and hash) might do to your epilepsy. You might have more seizures or you might have fewer. Weed comes in loads of different qualities. Every time you smoked it, you’d be smoking something different. This means the effect could be different every time. Danny |
Dear DannyHi, I hope you can help me with my question! I suffer from tonic clonic seziures during the day and they are pretty well controlled, but my question is if someone had a sezuire in their sleep would they remember? Its happened to me a few times now where my body would go stiff during the night but I dont jerk so im just in the tonic phase the whole time but i am aware of my surroundings but unable to speak very well ( i know this cause im usuallly calling for my mum or sumthin) but when i wake up I dont know if I was dreaming or not because it all feels so real. I shrugged it off the first few times thinking i was dreaming but its happened quite a few times now and im begining to wonder. I dont feel like ive had a sezuire when i wake up but maybe night sezuires are different to day ones. The bottom line is am i dreaming or should i speak to my doctor about it? Thankyou! Joanna, London
Hi Joanne, This is a difficult one to answer. People can have seizure in their sleep but how they affect them will be individual. It will depend on what seizure type you are having, as to how you will feel both during and after the seizure. Normally when people are aware of their surroundings it is a simple partial seizure they are having. Dreams can be confused with seizures, so you might want to keep a diary of what happens to show your doctor. Could you ask if anyone in your family has noticed anything? If it is sleep seizures your doctor may change your night time mediation.
Danny |
Young people and epilepsy
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Epilepsy Helpline
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Comments
Right, so here we go.
I know this: I don't get seizures through over-tiredness or flashing lights, which means I can quite happily go out clubbing all night long and nothing will happen.
But I simply don't know when my fits are going to happen. I've had them on the toilet, in the shower (X4), in a friend's house, in a university dining room etc. I don't know if it's a reaction to stress.
What are these called? Apparently I foam in the mouth, shake a lot, and feel like I've been hit by a train after it's all over.
I know this: if I take sodium valporate I want to go to sleep all of the time - but I've just been told by a doctor that the levels of a SV in my blood aren't high enough, which sucks because I've been taking the drug fairly regularly over the course of the last year, and how my dosage has now been raised. Oh, and I've got another visit to the neurologist. So what would you recommend doing?
Just a little Answer to Katie's Question.
Dear Katie You were so lucky i follow everything to do with Epilepsy and i remember a famous film stars child drowned while having a seizure. Her name was Hunter Tylo and her sons name was Mickey very sad for her. You can actually see her interview on you tube. She is actually the face on the American Epilepsy outreach foundation.
So please be very careful when around water all our love from the family of little Katie Maguire.
To Read more on Katie please visit www.keepbabykatieawake.com