We fight to improve the lives
of everyone affected by epilepsy


Gavin Barlow

Gavin BarlowI was employed at Epilepsy Action from June 2004 and retired at the end of October 2009. My role as the Sapphire Scheme Co-ordinator was the most rewarding and enjoyable post I have ever held.

During this time, I developed a deep understanding of the issues surrounding people with epilepsy. My work brought me in to contact with people with epilepsy from all walks of life, epilepsy specialist nurses from all over the UK, government ministers and high ranking NHS executives. I have extensive experience in negotiating with hospital trusts and primary care trusts and I have a passion for helping people with epilepsy.

Since retiring, I returned to Epilepsy Action several times as a volunteer to cover for sick leave, to help induct the new Sapphire Scheme Co-ordinator and help induct the maternity cover Sapphire Scheme Co-ordinator. I was also involved in working with NHS County Durham and Darlington in mapping the services for people with epilepsy within the North East Strategic Health Authority.

Prior to working for Epilepsy Action, I ran my own business for nearly 20 years. This gave me extensive experience in sales, purchasing, finance, employment, marketing, networking and legal issues.

Having worked at Epilepsy Action for over five years, I am deeply aware of the importance of the charity to people with epilepsy. I would like to think that I use my skills on the Council of Management to help build and develop the organisation to even greater and more meaningful heights.

I am a professional member of Epilepsy Action, am married to Fiona and have two daughters aged 19 and 21. My other interests include volunteering for the Duke of Edinburgh Award scheme, involvement in creating a local Neighborhood Plan and Crown Green bowling. Since my election to Council, I have attended every Council meeting.

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