My passion to improve the lives of people with epilepsy was born when my son, Matthew developed complex partial seizures nine years ago, aged thirteen. The complex, uncontrolled nature of his seizures during this time has changed his life and that of our family, forever. However, Matthew’s seizures rarely prevent him leading as near normal a life as possible, but this can be challenging. The family has always supported him throughout and his independence is of utmost importance to us. As a parent, to watch him undertake risk is the hardest job of all, but I know how important this is to Matthew’s self-respect and esteem. We had very little support in those early difficult days and turned to the Epilepsy Action website and helpline. We found the charity invaluable and now using my own experiences I want to help others in similar situations by joining the Council of Management.
I have a strong clinical, operational and senior managerial background in the NHS stretching over thirty years. I strongly believe in the concept of improving outcomes for people with epilepsy and the inequitable variation of care. I offer significant experience in transformational service redesign, commissioning of services for people with long term conditions and can demonstrate evidence of tough decision-making. I have successfully engaged and lead senior management and clinicians on many complex issues and have developed excellent motivational, leadership and negotiation skills. I have also won an award for my work on self-care and have made a number of national presentations.
I am an Accredited Volunteer and have also undertaken regular fundraising activities. I firmly believe in Epilepsy Action’s aims, values and priorities and am committed to the development and delivery of high quality, highly performing and cost effective services for people with epilepsy and their families.