We exist to improve the lives
of everyone affected by epilepsy

Jayne Burton

Jayne BurtonI'm 49 years old and was diagnosed with epilepsy in 1997. In 1999 I had surgery to treat my epilepsy. This had made a vast improvement to my condition. It was after this that I became more interested in the world of epilepsy. In 2002 I was medically retired from the National Health Service because of my condition. I worked as a nurse on a paediatric intensive care unit. I had problems with my short term memory and I had started to have simple partial seizures again. So along with support from my manager I made the decision to take retirement. This made me realise it is important that people who live with conditions like epilepsy “stand up and be counted”. Although I had a supportive manager, Epilepsy Action’s helpline supported me by listening.

I became an accredited volunteer for Epilepsy Action raising awareness and supporting people with epilepsy. From 2006-2008 I was on the Council of Management. It was then I learnt just how valuable the organisation is and that the people who live with epilepsy can make a difference to the way we are represented. One way we can do this is by not letting epilepsy hold us back. I am involved in my local community and sing in a church choir and a barbershop chorus. Doing these activities helps me accept the issues that come along with my epilepsy.

The current changes in the NHS are of great interest to me. I think that we should all take an interest in what is going on so we can make our voice heard. I recently took part in the Take Epilepsy Action awareness campaign when it arrived in Liverpool. Raising awareness of epilepsy has to be a top priority for Epilepsy Action and I take it as a privilege to be able to represent the many people who live with epilepsy.

There are no comments yet. Be the first to comment...

Contact Author

Epilepsy Action changes lives – thanks to people like you.

We would like to keep you up to date about our work and need your permission to do so.

What would you like to hear about?

How would you like to hear from us?

Please tick one or more options

The details you provide will only be used by Epilepsy Action and its trading company (or those working on our behalf). Epilepsy Action will never swap, share or sell your details.

For more information about how we use and protect your data visit epilepsy.org.uk/privacy

To update your preferences, please contact our supporter care team on 0113 210 8800 or visit epilepsy.org.uk/contact

This question is for testing whether you are a human visitor and to prevent automated spam submissions.