We exist to improve the lives
of everyone affected by epilepsy

Jon Barnes

Jon BarnesMy background and interests have resulted in an interesting 57 years!

My working career started on a farm, before I joined the RAF as Aircrew, flying on the Nimrod Maritime Patrol Aircraft based at what was RAF St Mawgan in Cornwall. A county I love, particularly as I met Jan, my wife of very nearly 25 years there!

After the RAF I trained as an Air Traffic Control Officer working at airfields throughout the UK, (including Heathrow!) and coming to Wales to set up a new unit at Swansea Airport in 2001. I just do some part-time work now for Swansea Airport, along with some instructor and examiner work for the Civil Aviation Authority.

I have always played sport of some kind and still play Rugby Union about once a month, and train 2 – 3 times a week in total. I also take part in sea rowing for leisure and racing!

I gave up full time work in 2013 in order to look after our son Stephen, who suffers from intractable epilepsy along with Learning Disabilities. He is the reason I became involved with the charity as an Accredited and Media Volunteer, and the driving force for me to seek election to the Council of Management. He was featured in the “What does Epilepsy Look Like?” campaign in 2015.

Dealing with Stephen’s epilepsy and its consequences has impressed on me the need to keep pushing for better diagnosis, treatment and specialists to fight this condition. But I believe what we desperately need to do is to create more and better informed awareness, so we can fight the ignorance and stigma that I see every day whilst looking after Stevie.

Event Date: 
Thursday 16 June 2016 - 13:52

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