We exist to improve the lives
of everyone affected by epilepsy

Mike Harnor

Mike Harnor

Mike has been a member of the Council of Management for over 20 years, (Chair 2006-9).

Regionally Mike is a Trustee and Executive member of the Greater Manchester Neurological Alliance (Chair 2005-8). On behalf of GMNA he is an alternate member of the NHS Greater Manchester Neurosciences Network board and a member of the NHS Greater Manchester Medicines Management neuroscience sub-group. He has recently been a member of the network’s seizure disorders and neuro-rehabilitation strategy sub-groups. Mike is an NHS North West Ambulance Trust elected Governor and is now an Epilepsy Action Commissioning Advocate working in the area.

Nationally Mike has been a member of various advisory groups concerned with neurological service provision and research. Recently he has been a patient member of the NICE Guideline Development Group for the epilepsies (2009-12) and a member of the NICE topic expert group developing NHS Quality Standards for epilepsy (2013). He is lay member of the Expert Advisory Group on neurology, pain and psychiatry for the Commission on Human Medicines and a member of the lay members group at the MHRA.

Mike is an accredited member of NHS Research Ethics Committees, (National Research Ethics Service / Health Research Authority).

Retired from an academic career, most recently following many years at Manchester Metropolitan University, Mike had a substantial career in schools and higher education and was a member of various university bodies at MMU promoting the interests of students and staff with disabilities.

Mikes interest predominantly arose from his own experiences of epilepsy and neuro-rehabilitation after a mid-career haemorrhagic stroke and brain surgery. Recent rehabilitation from a traumatic haemorrhagic brain injury (2012/3). He believes strongly in self advocacy and that rights and choices are best expressed when properly informed people speak for themselves. Epilepsy Action as the principal membership led epilepsy organisation should be seen as the lead body in enhancing the voice of the service user. Such voices should not be tokenistic or ‘tolerated’ but forthright in pressing the NHS to remedy the persistent shortfalls in NHS epilepsy services.

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