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of everyone affected by epilepsy

Council of Management - Register of interests

Epilepsy Action has a policy on Council member’s conflict of interest and a code of practice to provide guidance on managing real or potential conflicts of interest.

As part of the policy and practice, Epilepsy Action keeps a register of Council member’s interests which may be relevant to their role as a trustee. The purpose of the register is to publicly disclose any interests that trustees might have that might present a conflict with their role as a trustee.

It is a requirement of each Council member that they complete a declaration about their interests and subsequently keep their entry in the register up to date. The register is subject to a systematic annual review in any event.

It is the responsibility of each individual Council member to identify and disclose their potential or real interests.

Interests listed in the register are broadly classified as being either outside of the charity’s normal operation – ‘external interests’ – or inside the charity’s normal operation – ‘internal interests’.

(Last updated as at 26 February 2016, unless otherwise stated)

Gavin Barlow

  • External interests: None listed
  • Internal interests: None listed

Jayne Burton

  • External interests: Epilepsy ambassador at Walton Centre, Liverpool
  • Internal interests: Accredited Volunteer

Helen Caswell

  • External interests: Consultant Clinical Neuropsychologist and Head of Department, Salford Royal Hospital NHS Foundation Trust
  • Internal interests: None listed

Richard Chapman

External interests

  • Pension from the Principal Civil Service Pension Scheme
  • Holdings of shares in various listed companies as personal investments, none of which constitute significant holdings (i.e. more than 1% of the issued share capital) in any one company and none of which has to my knowledge any relationship with or interest in the work of Epilepsy Action.
  • Co-opted member of Narborough Parish Council (unremunerated)

Internal interests

  • Director (unpaid) of Epilepsy UK and Epilepsy Action – both dormant companies and wholly owned by the British Epilepsy Association, (Epilepsy Action).

Peter Clough

  • External interests: None listed
  • Internal interests: None listed

Carl Graham

  • External interests: None listed
  • Internal interests: None Listed

Jan Follett

  • External interests: A member of two other epilepsy charities.
  • Internal interests: None listed.

Michael Harnor (last updated: 2 December 2014)

External Interests:

  • Executive Committee member and Trustee 2004-2015, ‘Greater Manchester Neurological Alliance’ (GMNA) (Chair 2005-8).
  • Accredited lay+ member, NHS Research Ethics Committees ('Health Research Authority / NRES'). 2008 - current (incl two re-appointments. )
  • ‘Commission on Human Medicines’ (hosted at MHRA), appointed lay member, Expert Advisory Group on neurology, pain and psychiatry 2005-current. (Re-appointed 2013).
  • ‘MHRA lay members group’, 2007-current.
  • 'North-West Ambulance NHS Trust', public governor (elected), 2012-current. (An aspirant Foundation Trust)
  • 'NHS SCN / Senate, Greater Manchester, Lancashire and South Cumbria', member, Patient, Carer and Public (PCP) Advisory Group
  • 'NHS SCN / Senate, Cheshire and Merseyside', member, Peoples Voice.
  • 'NHS SCN / Senate Cheshire and Merseyside', lay member, headache / migraine etc pathway group 2015
  • (Recent) ‘NICE’ – appointed patient member, guideline development group for the epilepsies, CG137. 2009-2012.
  • (Recent) ‘NICE’- appointed lay member, Topic Expert Group developing Quality standards for the epilepsies (childr / young people - QS26, adult - QS27) 2012-2013
  • Holdings of shares in 3 healthcare related companies as private ISA investments, none of which constitute significant holdings (i.e. more than 1% of the issued share capital)
  • Other relevant charity memberships:
    • 'Headway – the Brain Injury Association'
    • 'British Tinnitus Association'

Internal interests

  • Director, 'Epilepsy UK' and 'Epilepsy Action' – registered charities / companies (not trading) wholly owned by the British Epilepsy Association
  • Director, 'BEA Trading', a registered company which donates all profits to British Epilepsy Association
  • Accredited by Epilepsy Action Commissioning Advocate scheme

Possible family Connections

  • Son-in- law:
    • Exec Director (currently Deputy Chief Executive), 'Cumbria Partnership NHS Foundation Trust'
    • National Committee member, The 'Community Hospitals Association'.
  • Daughter:
    • GP trainer for 'Health Education England' (north-east).
    • Director, 'Trinity Pharma' (Cumbria).

Jenny Jamnadas-Khoda

  • External interests: None listed
  • Internal interests: None Listed

June Massey

  • External interests: A professional interest in epilepsy and education.
  • Internal interests: 
    • Epilepsy Action Accredited Volunteer.
    • Judge for Edwards awards (2015 and have offered to act in 2016)
    • Epilepsy Action staff requested my input into responses to White Papers on education (2015) and to check information on website

Jim Morrow

  • External interests: None listed
  • Internal interests:
    • Chair of National Advisory Council Northern Ireland
    • Research committee of UK Epilepsy and Pregnancy Register.

Jane Riley

  • External interests:
    • Personal and professional interest in Epilepsy
    • Occasionally works with NHS and other public organisations on a self-employed basis
  • Internal interests:
    • Epilepsy Action Accredited Volunteer
    • Epilepsy Action Reader
    • Working with Epilepsy Action on a voluntary basis to promote the ‘Supporting and caring for people with epilepsy e-learning course’

Beryl Sharlot

External interests

  • Family connection to epilepsy (immediate members)
  • Member of Natural History Society

Internal interests

  • Director of Epilepsy UK (dormant) owned by British Epilepsy Association.
  • Chair/Treasurer Epilepsy Action West Midlands Forum
  • Epilepsy Action Accredited Volunteer
  • Epilepsy Action Accredited Volunteer Co-ordinator
  • Epilepsy Action Local Volunteer
  • Member Epilepsy Action Coffee and Chat Group

Ruth Waddell

External interests

  • Adult Epilepsy Nurse employed by Royal Group of hospitals, Belfast

Internal interests

  • Member of Epilepsy Action’s National Advisory Council Northern Ireland
  • Member of the Epilepsy All Party Group that convenes at Stormont, Belfast

Ian Walker

  • External interests: None listed
  • Internal interests: Member of the National Advisory Council Wales

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Thanks for the information!

Submitted by Carlos R. Lucas on

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