We exist to improve the lives
of everyone affected by epilepsy

Council of Management - Register of interests

Epilepsy Action has a policy on Council member’s conflict of interest and a code of practice to provide guidance on managing real or potential conflicts of interest.

As part of the policy and practice, Epilepsy Action keeps a register of Council member’s interests which may be relevant to their role as a trustee. The purpose of the register is to publicly disclose any interests that trustees might have that might present a conflict with their role as a trustee.

It is a requirement of each Council member that they complete a declaration about their interests and subsequently keep their entry in the register up to date. The register is subject to a systematic annual review in any event.

It is the responsibility of each individual Council member to identify and disclose their potential or real interests.

Interests listed in the register are broadly classified as being either outside of the charity’s normal operation – ‘external interests’ – or inside the charity’s normal operation – ‘internal interests’.

Gavin Barlow

 
External interests:
  • None listed
Internal interests:
  • None listed

John Bostock

 
External interests: 
  • Member of University Hospital North Staffs. hospital trusts.
  • Vice chair of mid-Cheshire area health long term neurology committee.
  • Chair, Stoke-on-Trent parent partnership advisory services.
  • Adviser on youth services in Stoke-on-Trent.
  • Councillor disabilities services, for parents of children with disabilities.
  • A member of Patient Participation Group Local.
Internal interests:
  • Chair, Epilepsy Action Stoke-on-Trent branch.
  • Epilepsy Action Accredited Volunteer
  • Member West Midlands Forum

Jayne Burton

 
External interests:
  • Ambassador for people whith epilepsy at the Walton Centre. Will complete training in November 2013.
Internal interests:
  • Accredited volunteer

Helen Caswell

 
External interests:
  • I am employed by Salford Royal Hospitals NHS Foundation Trust as a Clinical Neuropsychologist
Internal interests:
  • I currently hold a research grant awarded by Epilepsy Action with Dr Susan Duncan (Lead Researcher)

Richard Chapman

 
External interests:
  • Pension from the Principal Civil Service Pension Scheme
  • Holdings of shares in various listed companies as personal investments, none of which constitute significant holdings (i.e. more than 1% of the issued share capital) in any one company and none of which has to my knowledge any relationship with or interest in the work of Epilepsy Action.
Internal interests:
  • Director (unpaid) of Epilepsy UK and Epilepsy Action – both dormant companies and wholly owned by the British Epilepsy Association, (Epilepsy Action).

Peter Clough

 
External interests:
  • None listed 
Internal interests:
  • None listed

Jan Follett

 
External interests:
  • A member of two other epilepsy charities. 

Internal interests:

  • None listed 

Carl Graham

 
External interests:
  • None listed

Internal interests:

  • None listed 

Mike Harnor 

 

External interests:

Items as relevant to healthcare provision

  • Executive Committee member and Trustee, ‘Greater Manchester Neurological Alliance’ (GMNA) (Chair 2005-2008).
  • Representative member (alternating for GMNA), NHS Greater Manchester Neuroscience Network Board.
  • Member, GMNNB appointed review group currently evaluating neuro-rehabilitation services (2009 - ?)
  • Member, GMNNB appointed group developing Greater Manchester Seizure Disorders Strategy (2009 - ?)
  • Public Governor, North West Ambulance NHS Trust (2012 – current)
  • Accredited lay member, NHS Research Ethics Committees (Health Research Agency / NRES) (2006 – current)
  • ‘Commission on Human Medicines’, appointed lay member, Expert Advisory Group on neurology, pain management and psychiatry 2005-current.
  • ‘MHRA ’lay members group’, 2007-current.
  • ‘NICE’ – appointed patient member, guideline development group for the epilepsies, 2009-2012.
  • ‘NICE’- appointed member, Topic Expert Group developing Quality Standards for Epilepsy (child and adult.) (2012 – 2013)
  • NHS Greater Manchester Medicines Management Committee – Neuroscience Medicines Sub-Group (Member on behalf of GMNA)
  • Daughter, Director Castlegate Pharmacy, Cumbria. GP principal and GP trainer for Health Education
  • Son-in-law holds executive directorship with Cumbria Partnership NHS Foundation Trust. Clinical director Community Services and Integration including clinical responsibility for 13 community hospitals and ‘step down’ units.
  • Holdings of shares in 5 healthcare related companies, none of which constitute significant holdings (i.e. more than 1% of the issued share capital)
Internal interests:
  • Director, Epilepsy UK and Epilepsy Action – registered companies (not trading) wholly owned by the British Epilepsy Association.
  • Director, BEA Trading, a registered company which donates all profits to British Epilepsy Association
  • Accredited by Epilepsy Action Commissioning Advocates scheme

June Massey 

 
External interests:
  • A professional interest in epilepsy and education.
Internal interests:
  • Epilepsy Action Accredited Volunteer 

Ron Rosenhead

 
External interests:
  • Own and fully employed by Project Agency, a management consultancy.
  • Occasionally run courses in universities, there may be a researcher engaged in epilepsy research.
Internal interests:
  • None listed

Beryl Sharlot 

 
External interests:
  • Family connection to epilepsy (immediate members)
  • Member of Natural History Society
Internal interests:
  • Director of Epilepsy UK (dormant) owned by British Epilepsy Association.
  • Chair/Treasurer Epilepsy Action West Midlands Forum
  • Epilepsy Action Accredited Volunteer
  • Epilepsy Action Accredited Volunteer Co-ordinator
  • Epilepsy Action Local Volunteer
  • Member Epilpsy Action Coffee and Chat Group

Keith Skivington 

 
External interests:
  • Member of local community health council.
  • Member of Dyfed police force voluntary custody visitor.
  • Member of Plaid Cymru political party. 
Internal interests:
  • Epilepsy Action Accredited Volunteer.
  • Chair of the Epilepsy Action Llanelli branch. 

Ruth Waddell

 
External interests:
  • Employed as an epilepsy specialist nurse at Royal Group of Hospitals Trust, Belfast
Internal interests:
  • None listed

Ian Walker

 
External interests:
  • None listed
Internal interests:
  • None listed

 

   

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