We exist to improve the lives
of everyone affected by epilepsy

2005

February 2005

The Council of Management heard and discussed reports from each of its Committees: Corporate Governance, Education, Finance & Strategic Policy, Standing Committee and Research, and received and discussed reports on finance and investments. In addition, Council discussed and agreed the following items.

A policy on education inclusion of children and young people with epilepsy was considered and approved by Council. This policy states:

'Epilepsy Action promotes the rights of children and young people with epilepsy to receive an education giving full access to the whole-school curriculum. This will take into account a child or young person’s individual abilities and provide the opportunities to achieve their full potential. To be fully ‘inclusive’ this education must include appropriate provision in academic, pastoral and extra-curricular activities.'

Council considered numerous candidates to serve on the Association’s new Advisory Panel for Wales and agreed to invite the following people to serve:

  • Chair: Prof. Mike Kerr (Cardiff)
  • Dr Duncan Cameron (Conwy)
  • Alan Howells (Llandudno)
  • Erica Hillman (Newport)
  • Dee Polacarz (Haverfordwest)
  • Dr Phil Smith (Cardiff)
  • Dr Ajay Thapar (Cardiff)
  • Ian Walker (Conwy)

Council agreed to make the 2004 Epilepsy Action Branch of the Year Award to Nottingham branch. The Stoke-on-Trent branch was also highly commended for its efforts during the year. In addition, Council decided to make Branch Member of the Year Awards to the following people:

  • John Bostock (Stoke-on-Trent)
  • Arlene Chambers (Armagh)
  • Enid Dunn (North Devon)
  • Marie Edgar (London Forum)
  • Alison Jackson (Pershore)
  • Lynne Ratcliffe (South Manchester)
  • Ginny Saffron (Barnet)
  • Ian Wardle (Preston)

Council also considered several nominations from Association members for the Epilepsy Action Award 2005. In the end, it was decided that the worthy recipient should be St Paul’s Primary School, Gloucester.

The Council of Management met on Tuesday 1 February 2005. It heard and discussed reports from each of its Committees: Corporate Governance, Education, Finance & Strategic Policy, Standing Committee and Research, and received and discussed reports on finance and investments. In addition, Council discussed and agreed the following items.

A policy on education inclusion of children and young people with epilepsy was considered and approved by Council. This policy states:

'Epilepsy Action promotes the rights of children and young people with epilepsy to receive an education giving full access to the whole-school curriculum. This will take into account a child or young person’s individual abilities and provide the opportunities to achieve their full potential. To be fully ‘inclusive’ this education must include appropriate provision in academic, pastoral and extra-curricular activities.'

Council considered numerous candidates to serve on the Association’s new Advisory Panel for Wales and agreed to invite the following people to serve:

  • Chair: Prof. Mike Kerr (Cardiff)
  • Dr Duncan Cameron (Conwy)
  • Alan Howells (Llandudno)
  • Erica Hillman (Newport)
  • Dee Polacarz (Haverfordwest)
  • Dr Phil Smith (Cardiff)
  • Dr Ajay Thapar (Cardiff)
  • Ian Walker (Conwy)

Council agreed to make the 2004 Epilepsy Action Branch of the Year Award to Nottingham branch. The Stoke-on-Trent branch was also highly commended for its efforts during the year. In addition, Council decided to make Branch Member of the Year Awards to the following people:

  • John Bostock (Stoke-on-Trent)
  • Arlene Chambers (Armagh)
  • Enid Dunn (North Devon)
  • Marie Edgar (London Forum)
  • Alison Jackson (Pershore)
  • Lynne Ratcliffe (South Manchester)
  • Ginny Saffron (Barnet)
  • Ian Wardle (Preston)

Council also considered several nominations from Association members for the Epilepsy Action Award 2005. In the end, it was decided that the worthy recipient should be St Paul’s Primary School, Gloucester.

April 2005

The Chair gave a particular welcome to three members who have recently suffered accident or illness. Council heard and discussed reports from each of its Committees – Corporate Governance, Education, Finance & Strategic Policy, Standing Committee and Research and received and discussed reports on finance and investments. In addition, Council discussed and agreed the following items.

The Association’s audited accounts for the financial year ending 31st December 2004 were approved and adopted by the Council. These will now be presented to the membership at the Annual General Meeting on Saturday 18th June in Bristol.

Council agreed that a representative of Council should in future attend meetings of the Editorial Board of Seizure, the Association’s scientific journal on epilepsy.

Council agreed to close the register of members of the Association from 18th May to 18th June 2005, covering the period of the Council elections. During this time, people can still apply for membership of the Association, but their membership does not become effective until after 18th June.

The Research Committee is currently reviewing the research strategic plan. The Education Committee is considering campaigning options for education work. The Corporate Governance Committee is currently engaged in a long term review of the Association’s constitution. The Finance and Strategic Policy Committee is reviewing the Association’s Investment Policy and keeps fundraising performance under regular review. The Standing Committee is reviewing the Chief Executives’ conditions of service, Service Level Agreement and Job description.

May 2005

Council heard and discussed update reports from each of its Committees – Corporate Governance, Education, Finance & Strategic Policy, Standing Committee and Research. Each Committee also presented to Council an annual report of its activities and Council renewed the terms of reference for each Committee without amendment.

Council also received and discussed reports on finance and investments.

July 2005

The Council of Management met on Tuesday 19 July 2005 at which time the following people were elected as officers to serve for the next twelve months:

  • Ron Radley, Chair of Council
  • Mike Harnor, Vice Chair of Council
  • Richard Chap, Honorary Treasurer

Council received and discussed reports from each of its committees – Corporate Governance, Education, Finance & Strategic Policy, Standing Committee and Research.

Council also received and discussed reports on finance and investments and reviewed the performance of the 2005 revenue budget, following which it was decided that no changes or adaptations were considered to be necessary.

Council completed its annual review of the Association’s investment policy and made one small change.

The vice-chairman, Mike Harnor, presented a report on the outcomes of Council’s annual self-appraisal. Council will reflect on this in the next few months and will consider what follow up actions might be required as a result.

Council agreed a timetable and process for the review of the Association’s strategic plan which will result in a new plan by the end of 2006.

Council received a report on the 2005 national conference and AGM and confirmed that the Association should once again hold a national conference in 2006 to coincide with its AGM and that the preferred location for this should be a venue in Central England.

Finally, Council agreed some minor amendments to the constitution for voluntary branches.

Council also reviewed the membership of its various committees and confirmed the following for the next twelve months:

Corporate Governance Committee

  • Chair ex-officio
  • Richard Chapman
  • Susan Comish
  • Beryl Sharlot
  • David Streets

Education Committee

  • Mary Clayfield
  • Mark Gibbs
  • Michele Harper
  • June Massey
  • Beryl Sharlot
  • David Streets

Finance & Strategic Policy Committee

  • Chair ex-officio
  • Vice-Chair ex-officio
  • Honourary Treasurer ex-officio
  • Mary Clayfield
  • Hilary Figg
  • Michele Harper
  • Lorraine Lawton
  • Beryl Sharlot

Research Committee

  • Jan Follett
  • Mark Gibbs
  • Mike Harnor
  • Michele Harper
  • Markus Reuber
  • Ingram Wright

Staff Appeals Panel

  • Mary Clayfield
  • Richard Chapman
  • Beryl Sharlot
  • David Streets

October 2005

Members received and discussed reports from each of its committees – Corporate Governance, Education, Finance & Strategic Policy, Standing Committee and Research.

The Council Committee Chairs for the current Council year, until July 2006, are:

  • Corporate Governance: Beryl Sharlot
  • Education: David Streets
  • Finance & Strategic Policy: Mike Harnor
  • Standing Committee Ron Radley
  • Research Committee: Ingram Wright

Council also received and discussed reports on finance and the Association's investments.

The Council began a review of the Association's strategic plan. The current plan is scheduled to run until the end of 2006.

December 2005

Members received and discussed reports from each of its committees – Corporate Governance, Education, Finance & Strategic Policy, Standing Committee and Research. Council also received and discussed reports on finance and the Association’s investments.

Council approved a revenue budget for 2006 and also approved the Association’s business objectives for the next twelve months. The Research Committee presented to Council a new Research strategy document to guide the Association’s research activities for the next three years. This document was approved and adopted by Council.

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