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of everyone affected by epilepsy

Council of Management meeting - April 2012

The Council of Management met on 3 April 2012 when all 14 current members were able to attend. At this meeting the Council considered and approved the trustees’ report and annual accounts for the year ending 31 December 2011. The report and accounts will now be presented to the members of the Association at the Annual General Meeting to be held on 19 June.

Epilepsy Action is a member of the Joint Epilepsy Council (JEC) – an umbrella body which includes some 20 not-for-profit organisations with an interest in epilepsy. Recently the Epilepsy Society and Epilepsy Bereaved decided to leave the JEC. This prompted the remaining members, including Epilepsy Action, to instigate an examination of what JEC is doing and how it might develop in the future. The Council of Management considered Epilepsy Action’s contribution to this process and determined what sort of organisation it wanted JEC to be like in the future.

Epilepsy Action is a keen supporter of research into epilepsy. It has a 3 year plan just for research which identifies particular topics it wants to investigate. The Council uses an independent Scientific Awards Panel of experts to review applications to Epilepsy Action for research funding and this panel makes recommendations to Council. Following this process, in April the Council approved 2 recommendations from the panel.

Firstly, a research grant of £55,560 over 12 months to Dr Markus Reuber, University of Sheffield, for the project ‘Using conversational analysis in the seizure clinic: an intervention study’. Secondly, a PhD studentship of £75,000 over 3 years to Dr Andrew Trevelyan, University of Newcastle, for the project ‘Assessing seizure susceptibility using psychophysical tests’.

Finally, the Council was happy to approve the appointment of Professor Patrick Kwan to the editorial board of the charity’s scientific journal, Seizure.

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