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of everyone affected by epilepsy

Council of Management meeting - April 2013

9 April 2013

The Council of Management met on 9 April. It reviewed and approved the 2012 trustees’ report and the audited accounts for the year ending 31 December 2012. These will now be presented to the members of the Association at the Annual General Meeting on 18 June.

Following a recommendation from its Scientific Awards Panel, the Council considered and approved the award of £75,000 over 3 years to Dr Ciara Keirans of the University of Liverpool to fund a PhD Studentship titled ‘transition of paediatric epilepsy patients with an additional learning disability’. People with epilepsy and a learning disability have a range of needs not all related to their epilepsy. This makes the study of particular importance for increasing our understanding of the experiences of this group of people and their carers as they move from paediatric services to adult services.

The Council also approved a second recommendation from the Panel. This was to provide funding of £22,000 for Professors Sanjay Sisodiya and Helen Cross from University College London for a pilot study of cardiac rhythm in Dravet Syndrome as a possible cause of SUDEP. Dravet Syndrome UK is also providing more than £19,000 of funding for this important piece of research. Epilepsy Action’s contribution will come from its special TeamMax restricted research fund. This is money raised by the fundraising efforts of Gail Miller and her family and friends in memory of Gail’s son Max.

At its meeting in February, the Council agreed to a programme to try and stimulate interest in members of the charity to stand for election to the Council of Management this year. Council heard that this had been spectacularly successful with a total of 17 candidates putting themselves forward. This is the largest number of candidates for a Council election for more than 20 years.

Encouraged by this, the Council decided to develop a plan for the long term promotion and development of Council that will deliver more engagement and understanding by members and other stakeholders and which will be measured in part by the number and diversity of candidates for future Council elections.

The next meeting of the Council is scheduled to take place on 16 July 2013.

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