We exist to improve the lives
of everyone affected by epilepsy

Epilepsy Services

Angella PullenEpilepsy Services Manager, Angela Pullen

Angela is responsible for the Epilepsy Services Department, which provides a range of epilepsy services to people with epilepsy or an interest in the condition. With a team of eleven, the work of the department covers the following areas:

Research

  • We offer an annual round of research funding for grants, studentships and bursaries.
  • We commission research on identified research priorities.
  • We support researchers by helping with recruitment of participants for research studies.
  • We carry out surveys on current epilepsy issues.
  • We are partners in a number of large scale research studies.
  • We are actively promote patient and public involvement in research.
  • We have a network of 50 service users who provide comment on research related issues for Epilepsy Action and external organisations.
  • We work with research teams to ensure that the patient view is fully represented in their studies.

Sapphire Nurse Scheme

  • This scheme provides healthcare trusts with grants to set up specialist nurse posts.
  • We have placed 100 paediatric (child), adult and learning disability epilepsy specialist nurses to date.
  • Sapphire Nurses deal with medical care, counselling, advice and information, training and audits.

Healthcare initiatives

  • We provide a range of tools and education opportunities for healthcare professionals to help them to provide better care for people with epilepsy.
  • We have produced a GP resource pack and tools for Primary Care Trust commissioners.
  • We support trusts and commissioners who want to improve services by giving appropriate advice and information, and providing them with links to national guidelines and relevant papers.
  • We carry out patient-centered reviews of epilepsy services for healthcare trusts.
  • We are currently working to promote patient care planning

Advice and Information Services:

Online community

  • Our online community, forum4e is a secure and supportive ‘virtual’ meeting place for people with epilepsy from all over the world.
  • You can share experiences and support, swap information and make friends – all at the click of a mouse.

There are no comments yet. Be the first to comment...

Contact Author

Epilepsy Action changes lives – thanks to people like you.

We would like to keep you up to date about our work and need your permission to do so.

What would you like to hear about?

How would you like to hear from us?

Please tick one or more options

The details you provide will only be used by Epilepsy Action and its trading company (or those working on our behalf). Epilepsy Action will never swap, share or sell your details.

For more information about how we use and protect your data visit epilepsy.org.uk/privacy

To update your preferences, please contact our supporter care team on 0113 210 8800 or visit epilepsy.org.uk/contact

CAPTCHA
This question is for testing whether you are a human visitor and to prevent automated spam submissions.
By submitting this form, you accept the Mollom privacy policy.