Epilepsy Services Manager, Angela Pullen
Angela is responsible for the Epilepsy Services Department, which provides a range of epilepsy services to people with epilepsy or an interest in the condition. With a team of eleven, the work of the department covers the following areas:
- We offer an annual round of research funding for grants, studentships and bursaries.
- We commission research on identified research priorities.
- We support researchers by helping with recruitment of participants for research studies.
- We carry out surveys on current epilepsy issues.
- We are partners in a number of large scale research studies.
- We are actively promote patient and public involvement in research.
- We have a network of 50 service users who provide comment on research related issues for Epilepsy Action and external organisations.
- We work with research teams to ensure that the patient view is fully represented in their studies.
Sapphire Nurse Scheme
- This scheme provided healthcare trusts with grants to set up specialist nurse posts.
- We have placed 100 paediatric (child), adult and learning disability epilepsy specialist nurses to date.
- Sapphire Nurses deal with medical care, counselling, advice and information, training and audits.
- We provide a range of tools and education opportunities for healthcare professionals to help them to provide better care for people with epilepsy.
- We have produced a GP resource pack and tools for Primary Care Trust commissioners.
- We support trusts and commissioners who want to improve services by giving appropriate advice and information, and providing them with links to national guidelines and relevant papers.
- We carry out patient-centered reviews of epilepsy services for healthcare trusts.
- We are currently working to promote patient care planning
Advice and Information Services:
- Our freephone, text and email advice and information service is staffed by trained advisers. (Telephone helpline service - 0808 800 5050 - UK only. Email helpline - firstname.lastname@example.org)
- We produce and stock a large range of booklets, fact sheets, books, DVDs and audiotapes for all age groups. Many of these can be ordered direct from the online shop.
- We offer a large, up-to-date source of epilepsy information on the website.
- Our online community, forum4e is a secure and supportive ‘virtual’ meeting place for people with epilepsy from all over the world.
- You can share experiences and support, swap information and make friends – all at the click of a mouse.