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of everyone affected by epilepsy

Epilepsy Services

Angella PullenEpilepsy Services Manager, Angela Pullen

Angela is responsible for the Epilepsy Services Department, which provides a range of epilepsy services to people with epilepsy or an interest in the condition. With a team of eleven, the work of the department covers the following areas:

Research

  • We offer an annual round of research funding for grants, studentships and bursaries.
  • We commission research on identified research priorities.
  • We support researchers by helping with recruitment of participants for research studies.
  • We carry out surveys on current epilepsy issues.
  • We are partners in a number of large scale research studies.
  • We are actively promote patient and public involvement in research.
  • We have a network of 50 service users who provide comment on research related issues for Epilepsy Action and external organisations.
  • We work with research teams to ensure that the patient view is fully represented in their studies.

Sapphire Nurse Scheme

  • This scheme provides healthcare trusts with grants to set up specialist nurse posts.
  • We have placed 100 paediatric (child), adult and learning disability epilepsy specialist nurses to date.
  • Sapphire Nurses deal with medical care, counselling, advice and information, training and audits.

Healthcare initiatives

  • We provide a range of tools and education opportunities for healthcare professionals to help them to provide better care for people with epilepsy.
  • We have produced a GP resource pack and tools for Primary Care Trust commissioners.
  • We support trusts and commissioners who want to improve services by giving appropriate advice and information, and providing them with links to national guidelines and relevant papers.
  • We carry out patient-centered reviews of epilepsy services for healthcare trusts.
  • We are currently working to promote patient care planning

Advice and Information Services:

Online community

  • Our online community, forum4e is a secure and supportive ‘virtual’ meeting place for people with epilepsy from all over the world.
  • You can share experiences and support, swap information and make friends – all at the click of a mouse.

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