We exist to improve the lives
of everyone affected by epilepsy

4. We will be a voice for epilepsy

Epilepsy needs a strong, positive and respected representative organisation to campaign on its behalf. It needs an effective voice to influence public policy, social attitudes and the media.

Epilepsy is a personal condition. It is unique to every individual in its severity and the way it affects a person’s life. People want to see Epilepsy Action as a strong organisation with a high national profile. But they also want it to be local – where they live.

By 2017 we will…

  • Be working more effectively at local level and with volunteers.
  • Increase the number of our members.
  • Increase the number of our active supporters.
  • Increase the number of our volunteers.
  • Increase the number of consultation referrals we are asked to contribute to.
  • See evidence of successful campaigning at local level and national level.
  • See evidence of positive changes in public attitudes towards epilepsy.

Within 10 years…
The views of people with epilepsy will be put forward at local and national level. They will be acknowledged and listened to and their views will carry influence and have effect.

We will…

  • Recognise the wide range of interests that people have in epilepsy.
  • Be a diverse membership organisation that anyone can join and be active in.
  • Reflect the personal and local nature of epilepsy and be a national voice for the condition across the UK.
  • Operate as Epilepsy Action Cymru in Wales and as Epilepsy Action Northern Ireland in Northern Ireland.
  • Provide a range of contact opportunities including supporting local groups and volunteers and encouraging social networking.
  • Develop new ways to communicate more effectively.
  • Listen to what people tell us and reflect their interests and priorities in our campaigns and representations.
  • Campaign on behalf of all people with epilepsy and their families but also recognise and represent the particular needs of groups like carers, children and women.
  • Work to influence national health policy and improve local epilepsy health services.
  • Campaign to reduce the stigma of epilepsy and minimise its impact on people’s everyday life.
  • Collaborate with other organisations to influence issues affecting the lives of people with epilepsy.

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