We exist to improve the lives
of everyone affected by epilepsy

Other epilepsy organisations

The organisations work mainly with or for people with epilepsy. They are registered with the Office of the Scottish Charity Regulator, the Charity Commission for England and Wales, or the "deemed" list of Northern Ireland charities compiled by the Charity Commission for Northern Ireland.

Our website linking policy

  • Epilepsy Society 
    Based at the Chalfont Centre in Buckinghamshire
  • Epilepsy Scotland
    Works to enable people with epilepsy in Scotland to maximise their choices in life.
  • Epilepsy Wales
    Aims to help people with epilepsy in Wales, their families and carers by offering services - a bi-lingual service is provided wherever possible
  • Epilepsy Ireland
    Aims to improve the quality of life of people with epilepsy in Ireland.
  • Young Epilepsy
    The major provider of specialist services for young people with epilepsy in the UK
  • Epilepsy Research UK
    The UK’s only national charity dedicated to epilepsy research (formed from the merger, in 2007, of the Epilepy Research Foundation and the Fund for Epilepsy).
  • Muir Maxwell Trust
    Providing practical support to children and their families coping with severe epilepsy
  • Quarriers
    Amongst other work, Quarriers provides epilepsy fieldwork services in Aberdeen, Aberdeenshire, Moray and Glasgow.
  • Epilepsy Connections
    Provides community-based support to people living with epilepsy in the Greater Glasgow area and also in Central Scotland (NHS Forth Valley area)
  • SUDEP Action
    Works towards the prevention of deaths form epilepsy through raising awareness and promoting research and provides information and support to people bereaved by epilepsy.
  • David Lewis Centre for Epilepsy 
    The Centre, in Cheshire, cares for adults and children with severe epilepsy and associated problems.
  • The Meath Trust
    Provides residential and day centre services for people with severe epilepsy, in Godalming in Surrey.
  • St Elizabeth's Centre
    One of only six centres caring for children and adults with epilepsy in the UK, based in Much Hadham in Hertfordshire.
  • Parkhaven Trust
    Provides an extensive range of care services in parkland settings in Maghull near Liverpool.
  • Mersey Region Epilepsy Association
    Working towards improving the quality of life for people with epilepsy and their families across Merseyside and Cheshire.
  • The Daisy Garland
    Aiming to improve the quality of life for children with difficult to control epilepsy accompanied by developmental delay.
  • Dravet Syndrome UK
    Dedicated to improving the lives of children and adults living with Dravet Syndrome and other related genetic sodium channel epilepsies through medical research, education and awareness and appropriate support.
  • Epilepsy HERE
    Aims to help, inform and support the public in East Kent on all matters relating to epilepsy and related neurological conditions and to assist people with epilepsy, their families and carers.
  • Epilepsy Outlook
    Provides free and confidential practical support, advice and information for people with epilepsy and their carers in Hartlepool and the Tees Valley Area.
  • Epilepsy Specialist Nurses Association
    Provides information about Epilepsy Specialist Nurse services.
  • International League Against Epilepsy
    Represents healthcare professionals and aims to promote education and research and improve the treatment and care of people with epilepsy.
  • Matthew's Friends
    The only UK charity dedicated solely to the field of dietary treatments for epilepsy. 

Comments: read the 2 comments or add yours


Why is Epilepsy Sucks not mentioned on this list?

Submitted by Jane Cassidy on

This is a page that is seldom used. Your contact details are on our daily living aid page.

Epilepsy Action Advice and Information Team

Submitted by Cherry, Epileps... on

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