On this page we will be posting Epilepsy Action's position statements on a number of issues important to people with epilepsy.
If you have any questions about the statements, please contact Nicole Crosby-McKenna, our senior policy and campaigns officers, either by email to firstname.lastname@example.org or by phone on 0113 210 8889 (UK) +44 113 210 8889 (International).
Epilepsy Action is not, and has no intention of, taking part in workfare schemes where individuals must undertake work in return for their benefit payments or risk losing them.
Epilepsy is a conditon that can be very difficult to treat. Many people with epilepsy have their condition controlled with epilepsy medicines. For others - around 30 per cent of those with epilepsy - epilepsy medicines are not effective in controlling seizures. Read more
Cycling, cycling events, and cycling clubs
There is no evidence to suggest that anyone with epilepsy should be stopped from cycling or denied access to cycling clubs, and cycling events. This includes ‘electrically assisted pedal cycles’ (EAPCs). To deny people access to these goods and services just because they have epilepsy is direct discrimination, and for this reason unlawful. Read more
Nursery nursing, teaching and lecturing
People with epilepsy can and do work in the nursery nursing, teaching and learning professions. Epilepsy itself is not an automatic barrier to working in these careers or accessing relevant training and work placements. Decisions on fitness to teach or practice must be made on an individual basis. A failure to do so might amount to disability discrimination. To maintain the health and welfare of the employee and those in their care, reasonable adjustments might be required. Read more
Safety of sodium valproate in women of child bearing potential
Epilepsy Action believes that sodium valproate should not be the first-line treatment for epilepsy in women of child bearing potential, or in girls who will need treatment into their child bearing years. This is due to the significantly higher risk of birth malformations associated with this epilepsy medicine. Read more
Epilepsy Action research - April 2012
Epilepsy Action recognises that research is essential to increase knowledge about epilepsy and improve understanding of the condition and its consequences. Greater knowledge and improved levels of understanding are critical to the achievements of Epilepsy Action’s aim to improve the lives of people affected by epilepsy. Read more
Pre-conception counselling - February 2012
Access to pre-conception counselling is vital to the future health of women with epilepsy and their unborn baby during pregnancy. Uncontrolled epileptic seizures in pregnancy increase the risk of maternal death. However, taking anti-epileptic drugs (AEDs) in pregnancy increases the risk of malformation and neurodevelopment impairments in the baby. Read more
Cosmetic treatment and beauty therapy - December 2011
"There is no evidence to suggest that everyone with epilepsy should be denied access to cosmetic treatments and beauty therapies. To deny people access to these services just because they have epilepsy is direct discrimination, and for this reason unlawful." Read more
'Involuntary Dances' at the Bradford Playhouse – 24 November 2009
Dance artist, Rita Marcalo, will attempt to induce an epileptic seizure over a 24-hour period at the Bradford Playhouse as part of a performance art piece on 11 and 12 December. Read more
Social care Green Paper – 'Shaping the Future of Care Together'
"At this stage, Epilepsy Action does not feel able to take a position regarding this green paper as there are no specific proposals to change how social care is delivered. We do not have a position on the future funding mechanisms of social care." Read more
"Epilepsy Action does not challenge the theory that wind turbines may create circumstances where photosensitive seizures can be triggered. However from our experience and that of our members and website users it does appear that this risk is minimal." Read more
As a member-led organisation, Epilepsy Action represents the interests of thousands of people in the UK, including two of the groups who would be affected by the proposal to fortify flour with folic acid: women with epilepsy of child bearing age; and people with epilepsy taking some types of anti-epileptic medication... Read more