We exist to improve the lives
of everyone affected by epilepsy

Clair's story

Clair Cobbold and her daughter

Clair Cobbold shared her story through our Pregnancy Diaries, becoming a vital part of the Health-E mum-to-be campaign. As Epilepsy Action gave her information and support, she shared her journey with the world. In her blog she continues to share her story as a mum with epilepsy. In this extract Clair shares her experience as part of the Epilepsy Action community.

“…I'll be running the London Marathon to raise money for Epilepsy Action.  I don't even have to think about it, they have given me so much support over the last 10 years – without them I wouldn't be in the position I am now.  When I was first diagnosed it was at an Epilepsy Action event where an Accredited Volunteer (you know who you are) stood up and told his story. Suddenly I saw a way in which I could turn this awful situation into something positive, into a way to help others.  Becoming an Accredited Volunteer turned my life around at the time, it gave me a purpose.

"Epilepsy Action has helped empower me to become more knowledgeable about my condition than most of the health professionals I come into contact with.  They gave me the confidence to push for better care and the wonderful team I now have in London.  Probably most importantly they introduced me to Kim, the epilepsy midwife who helped give us the confidence to try for a second child after such a traumatic first birth. And who empowered us to take control of my second pregnancy and made it such a positive experience.

"I want to do something to make sure that others like me get similar support and facing the huge challenge of running the London Marathon just makes perfect sense.  Writing this post sets it in stone and hopefully if all goes well, in just over a year’s time I'll be achieving a huge life goal while also raising money to help others with epilepsy gain the support they deserve.

"So here's the reason I am running - for the two beautiful children we have been blessed with and the hope that others with epilepsy have the same support to start a family if that's what they want.”

Your can read more of Clair’s story on her blog

Funding the work in 2015

Once again in 2015 our members and supporters went above and beyond to help us fund our vital work. From those running marathons to those joining in our bake sales, from companies offering donations to the many personal donations made throughout the year – every penny is incredibly important.

If you would like to help fund our work, you can do that now – thank you!

Comments: read the 1 comments or add yours


This is true inspiration for myself and many others that have been recently diagnosed with having epilepsy. I am usually very active and very healthy with no bad medical history but yet I find my life completely caving in around me. I feel I am stuck and unable to continue with normal day to day life and even scared to go out on my own incase I cause injury to myself while If I were to have a fit.
It would be an honour to help others with the same issues. I used to run on a regular basis and have always had my eye on the London marathon. This is an event I would love to conquer as my confidence grows I might just be able mentally to run again worries free, well done to lady above I hope I can be as free as her one day and if there's any advice on how I can help other people in our situation , rais money for epilepsy and take part in the London marathon to do this then PLEASE let me know, 8 have always believed that if you feel better physically then you will feel better mentally and vise versa. All the best to everyone out there that suffers with epilepsy.

Submitted by Mark Bagnall on

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