We exist to improve the lives
of everyone affected by epilepsy

2011

This page is about National Epilepsy Week 2014. Please visit the National Epilepsy Week 2015 page for information about the next #epilepsyweek.

The focus of National Epilepsy Week 2011 (15-21 May 2011) was information. This is about making sure people affected by epilepsy have everything they need to make informed decisions about their health and lifestyle.

What happened during National Epilepsy Week?

Epilepsy Action Radio day

As part of National Epilepsy Week, we broadcast a 12 hour online radio day. It featured a wide range of programmes with lots of information about epilepsy, how to live with it and how it affects people.

Listen again - Programme schedule

Time Programme
8‑10am

Wake Up with Mark and Aimee

Music and chat, all along an epilepsy-theme.  Includes an interview with Rabbi Lionel Blue.

Pre-show music: 'The Annual New England Xylophone Symposium' by DoKashiteru.  Licensed under the Creative Commons Attribution (3.0) licence

10-‑10.30am 

Inside The Music Room

Author William Fiennes shares his favourite passages from his acclaimed novel 'The Music Room' and talks about how the book has allowed him to raise awareness of epilepsy.
Buy the book from Amazon.co.uk

10.30‑11.10am

Epilepsy and Women

We take a look at the specific issues that affect women with epilepsy, from puberty and pregnancy to the menopause

11.10‑11.50am

A Man’s World

Do men talk about their epilepsy? We look at sex, relationships, fatherhood and everything else that come with being a man with epilepsy.

11.50‑12.30pm

Your Rights

What are your rights when it comes to employment, benefits and social care and how can you access the right support? We explore your experiences and ask those in the know for expert advice.

12.30‑1.30pm

Afternoon Phone-In

Your burning questions about epilepsy: call in and talk to staff from Epilepsy Action’s helpline team

1.30‑2.15pm

The Doctor Will See You Now

A look a health services across the UK: how will NHS reform affect services for epilepsy, what’s going on with the Service Development Directive in Wales and how good are services in Northern Ireland and Wales? We talk to clinicians and people with epilepsy about their experiences and predictions.

2.15‑2.45pm

Afternoon play

A young girl's world is turned upsidedown when she starts have 'funny turns' following a head injury. Follow her journey to diagnosis in Diagnose it Yourself, written by Nina Gray and performed by actors from the Ilkley Players in West Yorkshire.

2.45‑3.30pm

Driving Epilepsy up the Agenda

Why doesn’t epilepsy have the same profile with politicians and departments of health and education as other neurological or long-term conditions? We explore the barriers to raising the profile and how we might overcome them.

3.30‑4pm

What’s the Alternative?

When the drugs don’t work, what else is there? Look at the ketogenic diet, as well as less mainstream treatments such as homeopathy.

4‑4.30pm

Clarrie’s Story: a Social History of Epilepsy

How attitudes to epilepsy have changed over the last 100 years, through the eyes of one fictional character.

4.30‑5.10pm

Upfront

By young people, for young people. Coping with epilepsy growing up and through your teens.

5.10‑5.50pm

Epilepsy and Education

Achieving your potential: how can education establishments best support people with epilepsy? Pupils and students, parents, teachers and special educational needs coordinators share their views.

5.50‑6.35pm

Epilepsy Action around the UK

What are we up to? We speak to branches, volunteers and Diamond projects we have funded

6.35‑7.15pm

Epilepsy in the Media

How is epilepsy portrayed in film, on TV and in the news and how does this shape public opinion? And is it ever ok to make jokes about epilepsy? We talk to those involved about the issues.

7.15‑7.50pm

The Future of Epilepsy

The research that could revoluntionise our understanding of epilepsy and whether stigma can ever be broken down.

7.50‑8pm

A round-up of the day’s highlights

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